Navigating the Healthcare System with a Complex Chronic Condition: Multidimensional Roles of Adolescents, Young Adults, and Parents

Navigating the Healthcare System with a Complex Chronic Condition: Multidimensional Roles of Adolescents, Young Adults, and Parents

Background/Objective: Adolescents and young adults with complex chronic conditions and parents of children with complex chronic conditions interact frequently with the healthcare system. However, these groups have unique characteristics and needs. The objective of this qualitative study was to explo...

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Bibliographic Details
Main Authors:	Allison F. Wise, Emily J. Upham, Danielle D. DeCourcey
Format:	Article
Language:	English
Published:	MDPI AG 2025-02-01
Series:	Children
Subjects:	pediatric palliative care decision-making qualitative research life-limiting illness life-threatening illness serious illness
Online Access:	https://www.mdpi.com/2227-9067/12/3/318
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