Caregiving for autistic children in Nigeria: experiences and challenges
Abstract Background Raising autistic children poses a daunting task for their caregivers. Providing care may take a toll on caregivers' physical, psychological, social, and financial wellbeing. This study explored the experience of the responsibility of care among caregivers of autistic childre...
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| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Springer
2025-03-01
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| Series: | Discover Mental Health |
| Subjects: | |
| Online Access: | https://doi.org/10.1007/s44192-025-00159-9 |
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| Summary: | Abstract Background Raising autistic children poses a daunting task for their caregivers. Providing care may take a toll on caregivers' physical, psychological, social, and financial wellbeing. This study explored the experience of the responsibility of care among caregivers of autistic children in Nigeria and informed targeted psychosocial support interventions. Methods This phenomenology qualitative study was conducted among 103 caregivers in Cross River, Nigeria. The PREPARE tool was used for the data collection. Data were analyzed using the inductive and deductive approaches qualitatively, using NVivo software. Results Stigma and misunderstanding of autism, emotional impact and acceptance, transportation and accessibility, lack of support networks, and balancing responsibilities and care responsibilities with personal commitments were the major challenges reported by our participants. These factors contributed to emotional strain, underscoring the complexities associated with caregiving experiences. Conclusion Given the significant responsibilities of caregivers, targeted intervention must be taken to properly enlighten Nigerian societies on autistic people, and the need for acceptance. Key stakeholders must provide suitable healthcare facilities and resources for autistic people. Also, social support groups would help establish a sense of belonging and support. |
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| ISSN: | 2731-4383 |