From inclusion to empowerment: advancing equity through co-research with people living with dementia
Too often, people living with dementia are spoken for rather than spoken with. This reflects deeply embedded assumptions/biases about people living with dementia in our society. This article explores the experiences and insights of individuals with dementia, positioning empowerment as a foundational...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2025-05-01
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| Series: | Frontiers in Dementia |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/frdem.2025.1600162/full |
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| author | Lillian Hung Joey Wong Karen Lok Yi Wong Emily Ong Granville Johnson Helen Rochford-Brennan Jim Mann Lester Gierach Lynn Jackson Mario Gregorio Mary Beth Wighton Mary Beth Wighton Phyllis Fehr |
| author_facet | Lillian Hung Joey Wong Karen Lok Yi Wong Emily Ong Granville Johnson Helen Rochford-Brennan Jim Mann Lester Gierach Lynn Jackson Mario Gregorio Mary Beth Wighton Mary Beth Wighton Phyllis Fehr |
| author_sort | Lillian Hung |
| collection | DOAJ |
| description | Too often, people living with dementia are spoken for rather than spoken with. This reflects deeply embedded assumptions/biases about people living with dementia in our society. This article explores the experiences and insights of individuals with dementia, positioning empowerment as a foundational strategy to advance social citizenship and equity. We collaboratively on more than a decade of shared work in research and advocacy. Our collective analysis identifies three key dimensions essential for meaningful empowerment: (a) recognizing strengths and building capacities, (b) equitable leadership, and (c) supportive environments and learning together. Our findings demonstrate that intentional, respectful collaboration produces extensive social, political, and healthcare benefits, actively challenging inequities and fostering a deeper sense of belonging and contribution. |
| format | Article |
| id | doaj-art-c17e33a705fa4e458851e5c6d4cd9bc5 |
| institution | DOAJ |
| issn | 2813-3919 |
| language | English |
| publishDate | 2025-05-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Dementia |
| spelling | doaj-art-c17e33a705fa4e458851e5c6d4cd9bc52025-08-20T02:58:41ZengFrontiers Media S.A.Frontiers in Dementia2813-39192025-05-01410.3389/frdem.2025.16001621600162From inclusion to empowerment: advancing equity through co-research with people living with dementiaLillian Hung0Joey Wong1Karen Lok Yi Wong2Emily Ong3Granville Johnson4Helen Rochford-Brennan5Jim Mann6Lester Gierach7Lynn Jackson8Mario Gregorio9Mary Beth Wighton10Mary Beth Wighton11Phyllis Fehr12School of Nursing, University of British Columbia, Vancouver, BC, CanadaSchool of Nursing, University of British Columbia, Vancouver, BC, CanadaSchool of Social Work, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaBehavioural Supports Ontario, North Bay, ON, CanadaIDEA Lab, School of Nursing, University of British Columbia, Vancouver, BC, CanadaToo often, people living with dementia are spoken for rather than spoken with. This reflects deeply embedded assumptions/biases about people living with dementia in our society. This article explores the experiences and insights of individuals with dementia, positioning empowerment as a foundational strategy to advance social citizenship and equity. We collaboratively on more than a decade of shared work in research and advocacy. Our collective analysis identifies three key dimensions essential for meaningful empowerment: (a) recognizing strengths and building capacities, (b) equitable leadership, and (c) supportive environments and learning together. Our findings demonstrate that intentional, respectful collaboration produces extensive social, political, and healthcare benefits, actively challenging inequities and fostering a deeper sense of belonging and contribution.https://www.frontiersin.org/articles/10.3389/frdem.2025.1600162/fullempowermentPatient and Public Involvement (PPI)dementia researchpatient engagementhealth research |
| spellingShingle | Lillian Hung Joey Wong Karen Lok Yi Wong Emily Ong Granville Johnson Helen Rochford-Brennan Jim Mann Lester Gierach Lynn Jackson Mario Gregorio Mary Beth Wighton Mary Beth Wighton Phyllis Fehr From inclusion to empowerment: advancing equity through co-research with people living with dementia Frontiers in Dementia empowerment Patient and Public Involvement (PPI) dementia research patient engagement health research |
| title | From inclusion to empowerment: advancing equity through co-research with people living with dementia |
| title_full | From inclusion to empowerment: advancing equity through co-research with people living with dementia |
| title_fullStr | From inclusion to empowerment: advancing equity through co-research with people living with dementia |
| title_full_unstemmed | From inclusion to empowerment: advancing equity through co-research with people living with dementia |
| title_short | From inclusion to empowerment: advancing equity through co-research with people living with dementia |
| title_sort | from inclusion to empowerment advancing equity through co research with people living with dementia |
| topic | empowerment Patient and Public Involvement (PPI) dementia research patient engagement health research |
| url | https://www.frontiersin.org/articles/10.3389/frdem.2025.1600162/full |
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