The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families

The COVID-19 pandemic disproportionately impacted youth with chronic physical illness (CPI) and their caregivers. Emerging research aimed at understanding the impacts of the pandemic on this population is predominantly quantitative, lacking qualitative insights. This study used a qualitative approac...

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Main Authors: Reese Parks, Chloe Bedard, Jennifer Yessis, Samantha B. Meyer, Mark A. Ferro
Format: Article
Language:English
Published: MDPI AG 2025-06-01
Series:Psychiatry International
Subjects:
Online Access:https://www.mdpi.com/2673-5318/6/2/66
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author Reese Parks
Chloe Bedard
Jennifer Yessis
Samantha B. Meyer
Mark A. Ferro
author_facet Reese Parks
Chloe Bedard
Jennifer Yessis
Samantha B. Meyer
Mark A. Ferro
author_sort Reese Parks
collection DOAJ
description The COVID-19 pandemic disproportionately impacted youth with chronic physical illness (CPI) and their caregivers. Emerging research aimed at understanding the impacts of the pandemic on this population is predominantly quantitative, lacking qualitative insights. This study used a qualitative approach to examine the experiences of COVID-19 among youth with CPI and their families, exploring how the pandemic impacted their mental health and use of mental health services. Using a constructivist paradigm and a phenomenological approach, semi-structured interviews were conducted with youth with CPI (<i>n</i> = 8) and their primary caregiver (<i>n</i> = 13) between March 2021 and May 2021. Thematic analysis was used to identify three key themes: (1) mental health impact on youth, (2) caregiver mental health declines, and (3) variability in the experiences of mental healthcare. The findings highlight the heightened depression, anxiety, and stress among youth with CPI and their caregivers, exacerbated by loneliness, uncertainty, and social restrictions, while also revealing that virtual mental healthcare was perceived as less effective than in-person care, which was valued for its human connection, privacy, and comfort. These results emphasize the need for improved, comprehensive mental healthcare and the adoption of family-centred care models to strengthen caregiver–youth relationships and better integrate physical and mental healthcare to improve health outcomes for this population.
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spelling doaj-art-bf62cf627d294dcfb7c7d9138a3385222025-08-20T03:29:48ZengMDPI AGPsychiatry International2673-53182025-06-01626610.3390/psychiatryint6020066The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their FamiliesReese Parks0Chloe Bedard1Jennifer Yessis2Samantha B. Meyer3Mark A. Ferro4School of Public Health Sciences, University of Waterloo, Waterloo, ON N2L 3G1, CanadaGrand Erie District School Board, Brantford, ON N3T 5V3, CanadaSchool of Public Health Sciences, University of Waterloo, Waterloo, ON N2L 3G1, CanadaSchool of Public Health Sciences, University of Waterloo, Waterloo, ON N2L 3G1, CanadaSchool of Public Health Sciences, University of Waterloo, Waterloo, ON N2L 3G1, CanadaThe COVID-19 pandemic disproportionately impacted youth with chronic physical illness (CPI) and their caregivers. Emerging research aimed at understanding the impacts of the pandemic on this population is predominantly quantitative, lacking qualitative insights. This study used a qualitative approach to examine the experiences of COVID-19 among youth with CPI and their families, exploring how the pandemic impacted their mental health and use of mental health services. Using a constructivist paradigm and a phenomenological approach, semi-structured interviews were conducted with youth with CPI (<i>n</i> = 8) and their primary caregiver (<i>n</i> = 13) between March 2021 and May 2021. Thematic analysis was used to identify three key themes: (1) mental health impact on youth, (2) caregiver mental health declines, and (3) variability in the experiences of mental healthcare. The findings highlight the heightened depression, anxiety, and stress among youth with CPI and their caregivers, exacerbated by loneliness, uncertainty, and social restrictions, while also revealing that virtual mental healthcare was perceived as less effective than in-person care, which was valued for its human connection, privacy, and comfort. These results emphasize the need for improved, comprehensive mental healthcare and the adoption of family-centred care models to strengthen caregiver–youth relationships and better integrate physical and mental healthcare to improve health outcomes for this population.https://www.mdpi.com/2673-5318/6/2/66pandemiccaregiverssocial isolationstressqualitative
spellingShingle Reese Parks
Chloe Bedard
Jennifer Yessis
Samantha B. Meyer
Mark A. Ferro
The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families
Psychiatry International
pandemic
caregivers
social isolation
stress
qualitative
title The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families
title_full The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families
title_fullStr The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families
title_full_unstemmed The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families
title_short The Impact of COVID-19 on Mental Health and Healthcare in Youth with Chronic Physical Illness and Their Families
title_sort impact of covid 19 on mental health and healthcare in youth with chronic physical illness and their families
topic pandemic
caregivers
social isolation
stress
qualitative
url https://www.mdpi.com/2673-5318/6/2/66
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