A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study

Abstract Background Adolescent patients with Anorexia Nervosa (AN) and Atypical Anorexia Nervosa (AAN) admitted to an inpatient medical unit are at risk of relapse if they do not receive follow up treatment. Yet treatment adherence following discharge remains poor. One possible reason for poor treat...

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Main Authors: Elizabeth V. Franklin, Margaret Mathias, Duc T. Nguyen, Albert C. Hergenroeder, Constance M. Wiemann
Format: Article
Language:English
Published: BMC 2025-06-01
Series:Journal of Eating Disorders
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Online Access:https://doi.org/10.1186/s40337-025-01315-w
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author Elizabeth V. Franklin
Margaret Mathias
Duc T. Nguyen
Albert C. Hergenroeder
Constance M. Wiemann
author_facet Elizabeth V. Franklin
Margaret Mathias
Duc T. Nguyen
Albert C. Hergenroeder
Constance M. Wiemann
author_sort Elizabeth V. Franklin
collection DOAJ
description Abstract Background Adolescent patients with Anorexia Nervosa (AN) and Atypical Anorexia Nervosa (AAN) admitted to an inpatient medical unit are at risk of relapse if they do not receive follow up treatment. Yet treatment adherence following discharge remains poor. One possible reason for poor treatment adherence is insufficient support for parents. This pilot study explored the preliminary impact of a novel family navigator (FN) intervention on adolescent patient treatment adherence following inpatient care. Methods This was a pilot prospective study with a retrospective control cohort. Twenty-three adolescent patients with AN or AAN discharging from an Adolescent Medicine inpatient medical unit whose parents received three months of weekly support from a FN were compared to 23 patients with AN or AAN whose parents did not receive FN support as the FN was not in place (historical control group). The primary outcome measure was medical, nutrition, and mental health appointment attendance (frequency and rate). Secondary outcomes included self-reported mental health changes over 3 months, whether or not the patient was readmitted to the hospital within 6 months of hospital discharge, and parental satisfaction with the program. Results Patients in the FN intervention group attended more outpatient appointments overall (medical, nutrition, mental health) compared to the historical control group. The FN intervention was not related to readmission rates or self-reported mental health symptom changes. Parental satisfaction was rated helpful or higher in all categories. There were no differences in appointment attendance or parent satisfaction ratings based on age, gender, race, ethnicity, primary language, or insurance status. Conclusions This study provides preliminary support that a FN assisting parents of adolescents with AN or AAN in transitioning from inpatient to outpatient care would improve treatment engagement. Future randomized trials with larger cohorts are needed to best determine how a FN can improve access to care for families, especially for families whose primary language is not English, have public or no insurance, or experience other barriers to care.
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spelling doaj-art-bf51a935d2de49e393dbd61eb20ddfc42025-08-20T02:06:23ZengBMCJournal of Eating Disorders2050-29742025-06-0113111310.1186/s40337-025-01315-wA family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot studyElizabeth V. Franklin0Margaret Mathias1Duc T. Nguyen2Albert C. Hergenroeder3Constance M. Wiemann4Division of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine & Texas Children’s HospitalDivision of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine & Texas Children’s HospitalDivision of Epidemiology, Department of Pediatrics, Baylor College of MedicineDivision of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine & Texas Children’s HospitalDivision of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine & Texas Children’s HospitalAbstract Background Adolescent patients with Anorexia Nervosa (AN) and Atypical Anorexia Nervosa (AAN) admitted to an inpatient medical unit are at risk of relapse if they do not receive follow up treatment. Yet treatment adherence following discharge remains poor. One possible reason for poor treatment adherence is insufficient support for parents. This pilot study explored the preliminary impact of a novel family navigator (FN) intervention on adolescent patient treatment adherence following inpatient care. Methods This was a pilot prospective study with a retrospective control cohort. Twenty-three adolescent patients with AN or AAN discharging from an Adolescent Medicine inpatient medical unit whose parents received three months of weekly support from a FN were compared to 23 patients with AN or AAN whose parents did not receive FN support as the FN was not in place (historical control group). The primary outcome measure was medical, nutrition, and mental health appointment attendance (frequency and rate). Secondary outcomes included self-reported mental health changes over 3 months, whether or not the patient was readmitted to the hospital within 6 months of hospital discharge, and parental satisfaction with the program. Results Patients in the FN intervention group attended more outpatient appointments overall (medical, nutrition, mental health) compared to the historical control group. The FN intervention was not related to readmission rates or self-reported mental health symptom changes. Parental satisfaction was rated helpful or higher in all categories. There were no differences in appointment attendance or parent satisfaction ratings based on age, gender, race, ethnicity, primary language, or insurance status. Conclusions This study provides preliminary support that a FN assisting parents of adolescents with AN or AAN in transitioning from inpatient to outpatient care would improve treatment engagement. Future randomized trials with larger cohorts are needed to best determine how a FN can improve access to care for families, especially for families whose primary language is not English, have public or no insurance, or experience other barriers to care.https://doi.org/10.1186/s40337-025-01315-wEating disordersAdolescentsFamily navigatorContinuity of care
spellingShingle Elizabeth V. Franklin
Margaret Mathias
Duc T. Nguyen
Albert C. Hergenroeder
Constance M. Wiemann
A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study
Journal of Eating Disorders
Eating disorders
Adolescents
Family navigator
Continuity of care
title A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study
title_full A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study
title_fullStr A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study
title_full_unstemmed A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study
title_short A family navigator improves post-discharge treatment adherence among adolescents with anorexia nervosa: a pilot study
title_sort family navigator improves post discharge treatment adherence among adolescents with anorexia nervosa a pilot study
topic Eating disorders
Adolescents
Family navigator
Continuity of care
url https://doi.org/10.1186/s40337-025-01315-w
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