Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol
Abstract Background While patients and the public are routinely involved as active collaborators in health and social care research, they are rarely involved in the implementation of research. The PIPER (Pathways to Implementation for Public Engagement in Research) research questions are: 1. How can...
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| Format: | Article |
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BMC
2025-07-01
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| Series: | Research Involvement and Engagement |
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| Online Access: | https://doi.org/10.1186/s40900-025-00728-w |
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| author | Sophie Staniszewska Julia Walsh Joe Langley Krysia Dziedzic Alice Moult Nick Andrews Chris Bain Lindsay Bearne Paul Bird Tracy Gazeley Richard Grant Gary Hickey Rebekah Luff Jo Rycroft-Malone Kate Seers Magdalena Skrybant Dawn Stacey Laura Swaithes Mark Rasburn |
| author_facet | Sophie Staniszewska Julia Walsh Joe Langley Krysia Dziedzic Alice Moult Nick Andrews Chris Bain Lindsay Bearne Paul Bird Tracy Gazeley Richard Grant Gary Hickey Rebekah Luff Jo Rycroft-Malone Kate Seers Magdalena Skrybant Dawn Stacey Laura Swaithes Mark Rasburn |
| author_sort | Sophie Staniszewska |
| collection | DOAJ |
| description | Abstract Background While patients and the public are routinely involved as active collaborators in health and social care research, they are rarely involved in the implementation of research. The PIPER (Pathways to Implementation for Public Engagement in Research) research questions are: 1. How can patients, carers, service users and the public be involved in the implementation of health and social care research evidence into practice? 2. What types of roles, contributions and impact can patients, carers, service users and the public make to the implementation of health and social care evidence into practice? 3. How can we support patients, service users, carers and the public to contribute to the implementation of health and social care evidence into practice? 4. How can we co-produce the knowledge that explores a greater role for patients, carers, service users and the public in the implementation of health and social care evidence into practice? Methods Our overarching methodological framework is realist evaluation. This study includes four work packages with a cross-cutting co-production theme. •Work Package 1: A realist review of published literature, grey literature and sources such as blogs. •Work Package 2: Interviews with 40–60 people using a realist approach. •Work Package 3: A series of workshops to co-design the PIPER Toolkit. •Work Package 4: Pilot evaluation of the PIPER Toolkit. Results The scoping of the literature will be informed by the development of an initial programme theory that identifies the potential breadth of the field of public involvement in implementation. Data from the WP2 interviews will be used to iteratively refine the development of the context, mechanism and outcomes (CMOs). This will inform the PIPER Toolkit, which will consist of a set of ‘Guiding Principles’ supported by ‘Practical Resources.’ The PIPER Toolkit will enable an individual or a group to plan and undertake implementation activities. More specifically, the Guiding Principles will enable the Practical Resources to be tailored to specific implementation strategies for an individual or group. Discussion Patient and public involvement in implementation is an emerging area of practice and is likely to significantly strengthen over the next decade. The PIPER Toolkit will recognise this early stage of development, identifying the key system enablers that organisations need to have in place to support this activity. The Toolkit will support patients and the public and implementation teams to navigate the field of implementation practice. The PIPER study will challenge the field of implementation and knowledge mobilisation research to develop clearer forms of partnership with patients and the public in both research and practice. |
| format | Article |
| id | doaj-art-bf20c2c240c94cf9bb5e54f006857b38 |
| institution | Kabale University |
| issn | 2056-7529 |
| language | English |
| publishDate | 2025-07-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj-art-bf20c2c240c94cf9bb5e54f006857b382025-08-20T03:43:31ZengBMCResearch Involvement and Engagement2056-75292025-07-0111111410.1186/s40900-025-00728-wDeveloping a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocolSophie Staniszewska0Julia Walsh1Joe Langley2Krysia Dziedzic3Alice Moult4Nick Andrews5Chris Bain6Lindsay Bearne7Paul Bird8Tracy Gazeley9Richard Grant10Gary Hickey11Rebekah Luff12Jo Rycroft-Malone13Kate Seers14Magdalena Skrybant15Dawn Stacey16Laura Swaithes17Mark Rasburn18Warwick Medical School, University of WarwickWarwick Medical School, University of WarwickLab4Living, Sheffield Hallam UniversityImpact Accelerator Unit, School of Medicine, Keele UniversityImpact Accelerator Unit, School of Medicine, Keele UniversityFaculty of Medicine, Health and Life Science, Swansea UniversityHealthwatch WarwickshireSchool of Health and Medical Sciences , Tooting Campus City St. Georges, University of London, Cranmer Terrace, London, SW17 ORE, UK and NIHR Dissemination and Knowledge Mobilisation Team, Central Commissioning Facility, Grange HouseInstitute of Applied Health, University of Birmingham, Institute of Translational Medicine, University Hospitals Birmingham NHS Foundation Trust, Birmingham Health Trust, Institute for Translational Medicine, Heritage Building, Queen Elizabeth HospitalUniversity Hospital Coventry and Warwickshire NHS TrustPPI Advisor to ARC WM, University of WarwickSchool of Healthcare Enterprise and Innovation, University of SouthamptonMy Home Life England, School of Health and Medical Sciences, City, St George’s, University of LondonFaculty of Health and Medicine, Lancaster UniversityWarwick Medical School, University of WarwickInstitute for Applied Health Research, University of Birmingham, EdgbastonUniversity of Ottawa and Ottawa Hospital Research InstituteImpact Accelerator Unit, School of Medicine, Keele UniversityNational Institute for Health and Care Excellence, 2 Redman PlaceAbstract Background While patients and the public are routinely involved as active collaborators in health and social care research, they are rarely involved in the implementation of research. The PIPER (Pathways to Implementation for Public Engagement in Research) research questions are: 1. How can patients, carers, service users and the public be involved in the implementation of health and social care research evidence into practice? 2. What types of roles, contributions and impact can patients, carers, service users and the public make to the implementation of health and social care evidence into practice? 3. How can we support patients, service users, carers and the public to contribute to the implementation of health and social care evidence into practice? 4. How can we co-produce the knowledge that explores a greater role for patients, carers, service users and the public in the implementation of health and social care evidence into practice? Methods Our overarching methodological framework is realist evaluation. This study includes four work packages with a cross-cutting co-production theme. •Work Package 1: A realist review of published literature, grey literature and sources such as blogs. •Work Package 2: Interviews with 40–60 people using a realist approach. •Work Package 3: A series of workshops to co-design the PIPER Toolkit. •Work Package 4: Pilot evaluation of the PIPER Toolkit. Results The scoping of the literature will be informed by the development of an initial programme theory that identifies the potential breadth of the field of public involvement in implementation. Data from the WP2 interviews will be used to iteratively refine the development of the context, mechanism and outcomes (CMOs). This will inform the PIPER Toolkit, which will consist of a set of ‘Guiding Principles’ supported by ‘Practical Resources.’ The PIPER Toolkit will enable an individual or a group to plan and undertake implementation activities. More specifically, the Guiding Principles will enable the Practical Resources to be tailored to specific implementation strategies for an individual or group. Discussion Patient and public involvement in implementation is an emerging area of practice and is likely to significantly strengthen over the next decade. The PIPER Toolkit will recognise this early stage of development, identifying the key system enablers that organisations need to have in place to support this activity. The Toolkit will support patients and the public and implementation teams to navigate the field of implementation practice. The PIPER study will challenge the field of implementation and knowledge mobilisation research to develop clearer forms of partnership with patients and the public in both research and practice.https://doi.org/10.1186/s40900-025-00728-wPatient and public involvementPublic engagementImplementationKnowledge mobilisationRealist evaluation |
| spellingShingle | Sophie Staniszewska Julia Walsh Joe Langley Krysia Dziedzic Alice Moult Nick Andrews Chris Bain Lindsay Bearne Paul Bird Tracy Gazeley Richard Grant Gary Hickey Rebekah Luff Jo Rycroft-Malone Kate Seers Magdalena Skrybant Dawn Stacey Laura Swaithes Mark Rasburn Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol Research Involvement and Engagement Patient and public involvement Public engagement Implementation Knowledge mobilisation Realist evaluation |
| title | Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol |
| title_full | Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol |
| title_fullStr | Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol |
| title_full_unstemmed | Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol |
| title_short | Developing a role for patients and the public in the implementation of health and social care research evidence into practice: the PIPER study (Pathways to Implementation for Public Engagement in Research) realist evaluation protocol |
| title_sort | developing a role for patients and the public in the implementation of health and social care research evidence into practice the piper study pathways to implementation for public engagement in research realist evaluation protocol |
| topic | Patient and public involvement Public engagement Implementation Knowledge mobilisation Realist evaluation |
| url | https://doi.org/10.1186/s40900-025-00728-w |
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