Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study
BackgroundHaving well-informed patients is crucial to enhancing patient satisfaction, quality of life, and health outcomes, which in turn optimizes health care use. Traditional methods of delivering information, such as booklets and leaflets, are often ineffective and can ove...
Saved in:
| Main Authors: | , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2025-06-01
|
| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2025/1/e70971 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1849687309906083840 |
|---|---|
| author | Eleanor Cheese Raouef Ahmed Bichoo Kartikae Grover Dorin Dumitru Alexandros Zenonos Joanne Groark Douglas Gibson Rebecca Pope |
| author_facet | Eleanor Cheese Raouef Ahmed Bichoo Kartikae Grover Dorin Dumitru Alexandros Zenonos Joanne Groark Douglas Gibson Rebecca Pope |
| author_sort | Eleanor Cheese |
| collection | DOAJ |
| description |
BackgroundHaving well-informed patients is crucial to enhancing patient satisfaction, quality of life, and health outcomes, which in turn optimizes health care use. Traditional methods of delivering information, such as booklets and leaflets, are often ineffective and can overwhelm patients. Educational videos represent a promising alternative; however, their production typically requires significant time and financial resources. Video production using generative artificial intelligence (AI) technology may provide a solution to this problem.
ObjectiveThis study aimed to use natural language processing (NLP) to understand free-text patient feedback on 1 of 7 AI-generated patient educational videos created in collaboration with Roche UK and the Hull University Teaching Hospitals NHS Trust breast cancer team, titled “Breast Cancer Follow Up Programme.”
MethodsA survey was sent to 400 patients who had completed the breast cancer treatment pathway, and 98 (24.5%) free-text responses were received for the question “Any comments or suggestions to improve its [the video’s] contents?” We applied and evaluated different NLP machine learning techniques to draw insights from these unstructured data, namely sentiment analysis, topic modeling, summarization, and term frequency–inverse document frequency word clouds.
ResultsSentiment analysis showed that 81% (79/98) of the responses were positive or neutral, while negative comments were predominantly related to the AI avatar. Topic modeling using BERTopic with k-means clustering was found to be the most effective model and identified 4 key topics: the breast cancer treatment pathway, video content, the digital avatar or narrator, and short responses with little or no content. The term frequency–inverse document frequency word clouds indicated positive sentiment about the treatment pathway (eg, “reassured” and “faultless”) and video content (eg, “informative” and “clear”), whereas the AI avatar was often described negatively (eg, “impersonal”). Summarization using the text-to-text transfer transformer model effectively created summaries of the responses by topic.
ConclusionsThis study demonstrates the success of NLP techniques in efficiently generating insights into patient feedback related to generative AI educational content. Combining NLP methods resulted in clear visuals and insights, enhancing the understanding of patient feedback. Analysis of free-text responses provided clinicians at Hull University Teaching Hospitals NHS Trust with deeper insights than those obtained from quantitative Likert scale responses alone. Importantly, the results validate the use of generative AI in creating patient educational videos, highlighting its potential to address the challenges of costly video production and the limitations of traditional, often overwhelming educational leaflets. Despite the positive overall feedback, negative comments focused on the technical aspects of the AI avatar, indicating areas for improvement. We advocate that patients who receive AI avatar explanations are counseled that this technology is intended to supplement, not replace, human health care interactions. Future investigations are needed to confirm the ongoing effectiveness of these educational tools. |
| format | Article |
| id | doaj-art-bdf3e0fd5de74585b26442cdd9afb006 |
| institution | DOAJ |
| issn | 1438-8871 |
| language | English |
| publishDate | 2025-06-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj-art-bdf3e0fd5de74585b26442cdd9afb0062025-08-20T03:22:21ZengJMIR PublicationsJournal of Medical Internet Research1438-88712025-06-0127e7097110.2196/70971Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey StudyEleanor Cheesehttps://orcid.org/0009-0005-1477-9507Raouef Ahmed Bichoohttps://orcid.org/0000-0002-9386-403XKartikae Groverhttps://orcid.org/0009-0002-6151-7671Dorin Dumitruhttps://orcid.org/0000-0003-4539-0017Alexandros Zenonoshttps://orcid.org/0000-0003-4694-1642Joanne Groarkhttps://orcid.org/0009-0005-7496-9695Douglas Gibsonhttps://orcid.org/0009-0001-7599-3591Rebecca Popehttps://orcid.org/0000-0001-6889-589X BackgroundHaving well-informed patients is crucial to enhancing patient satisfaction, quality of life, and health outcomes, which in turn optimizes health care use. Traditional methods of delivering information, such as booklets and leaflets, are often ineffective and can overwhelm patients. Educational videos represent a promising alternative; however, their production typically requires significant time and financial resources. Video production using generative artificial intelligence (AI) technology may provide a solution to this problem. ObjectiveThis study aimed to use natural language processing (NLP) to understand free-text patient feedback on 1 of 7 AI-generated patient educational videos created in collaboration with Roche UK and the Hull University Teaching Hospitals NHS Trust breast cancer team, titled “Breast Cancer Follow Up Programme.” MethodsA survey was sent to 400 patients who had completed the breast cancer treatment pathway, and 98 (24.5%) free-text responses were received for the question “Any comments or suggestions to improve its [the video’s] contents?” We applied and evaluated different NLP machine learning techniques to draw insights from these unstructured data, namely sentiment analysis, topic modeling, summarization, and term frequency–inverse document frequency word clouds. ResultsSentiment analysis showed that 81% (79/98) of the responses were positive or neutral, while negative comments were predominantly related to the AI avatar. Topic modeling using BERTopic with k-means clustering was found to be the most effective model and identified 4 key topics: the breast cancer treatment pathway, video content, the digital avatar or narrator, and short responses with little or no content. The term frequency–inverse document frequency word clouds indicated positive sentiment about the treatment pathway (eg, “reassured” and “faultless”) and video content (eg, “informative” and “clear”), whereas the AI avatar was often described negatively (eg, “impersonal”). Summarization using the text-to-text transfer transformer model effectively created summaries of the responses by topic. ConclusionsThis study demonstrates the success of NLP techniques in efficiently generating insights into patient feedback related to generative AI educational content. Combining NLP methods resulted in clear visuals and insights, enhancing the understanding of patient feedback. Analysis of free-text responses provided clinicians at Hull University Teaching Hospitals NHS Trust with deeper insights than those obtained from quantitative Likert scale responses alone. Importantly, the results validate the use of generative AI in creating patient educational videos, highlighting its potential to address the challenges of costly video production and the limitations of traditional, often overwhelming educational leaflets. Despite the positive overall feedback, negative comments focused on the technical aspects of the AI avatar, indicating areas for improvement. We advocate that patients who receive AI avatar explanations are counseled that this technology is intended to supplement, not replace, human health care interactions. Future investigations are needed to confirm the ongoing effectiveness of these educational tools.https://www.jmir.org/2025/1/e70971 |
| spellingShingle | Eleanor Cheese Raouef Ahmed Bichoo Kartikae Grover Dorin Dumitru Alexandros Zenonos Joanne Groark Douglas Gibson Rebecca Pope Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study Journal of Medical Internet Research |
| title | Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study |
| title_full | Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study |
| title_fullStr | Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study |
| title_full_unstemmed | Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study |
| title_short | Using Natural Language Processing to Explore Patient Perspectives on AI Avatars in Support Materials for Patients With Breast Cancer: Survey Study |
| title_sort | using natural language processing to explore patient perspectives on ai avatars in support materials for patients with breast cancer survey study |
| url | https://www.jmir.org/2025/1/e70971 |
| work_keys_str_mv | AT eleanorcheese usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT raouefahmedbichoo usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT kartikaegrover usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT dorindumitru usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT alexandroszenonos usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT joannegroark usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT douglasgibson usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy AT rebeccapope usingnaturallanguageprocessingtoexplorepatientperspectivesonaiavatarsinsupportmaterialsforpatientswithbreastcancersurveystudy |