Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients
Background. Health Related Quality of Life (HRQL) is a person’s perception of the effect of a disease on physical, social and psychological functioning and wealth. Questionnaires that help assess the HRQL can give a concept of child’s state, identify arcane issues and they are of great importance fo...
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| Format: | Article |
| Language: | Russian |
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Union of pediatricians of Russia
2023-05-01
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| Series: | Педиатрическая фармакология |
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| Online Access: | https://www.pedpharma.ru/jour/article/view/2282 |
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| author | Anna L. Arakelyan Andrey N. Surkov Aleksander A. Baranov Leyla S. Namazova-Baranova Valeri V. Gorev Elena B. Moskvina Tamara A. Skvorcova Artem V. Nikitin Vladislav V. Chernikov |
| author_facet | Anna L. Arakelyan Andrey N. Surkov Aleksander A. Baranov Leyla S. Namazova-Baranova Valeri V. Gorev Elena B. Moskvina Tamara A. Skvorcova Artem V. Nikitin Vladislav V. Chernikov |
| author_sort | Anna L. Arakelyan |
| collection | DOAJ |
| description | Background. Health Related Quality of Life (HRQL) is a person’s perception of the effect of a disease on physical, social and psychological functioning and wealth. Questionnaires that help assess the HRQL can give a concept of child’s state, identify arcane issues and they are of great importance for a full understanding of how the state of health affects the child. Universal HRQL tools allow to compare results with general parameters, indicators with specific symptoms better reflect clinically significant moments. The most widespread in the Russian Federation was the general PedsQLTM 4.0 questionnaire, widely used in practice to assess HRQL in children with various pathologies. Objective.The aim of the study is to describe the analysis of linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQLTM questionnaire, measuring HRQL, in children with gastrointestinal disorders (GIDs).Materials and methods. The establishment of linguistic accuracy and authenticity of the content was carried out according to international standards. The process included forward translation, scientific assessment and coordination, reverse translation, verification of the reverse translation and interviews with 17 children aged 5–18 years with symptoms of GIDs and 20 parents of children with symptoms of GIDs aged 2–18 years.Results. The Russian version of PedsQLTM module of gastrointestinal symptoms (report from children 5-18 years old, report from parents for children 2–18 years old) was developed without significant difficulties. Eight questions required discussion after the forward translation, one change was made after the reverse translation, and three changes were made after the study of the symptom’s module by patients and parents.Conclusion. A conceptually equivalent version of the of PedsQLTM module of gastrointestinal symptoms in Russian has been developed for children aged 2–18 years. It allows to improve the assessment of HRQL in children with GIDs in the Russian Federation. To assess authenticity and reliability of the Russian version of the module, it’s recommended to conduct further research using a larger sample |
| format | Article |
| id | doaj-art-bd91293e45e64f2cb4094c3621b408df |
| institution | DOAJ |
| issn | 1727-5776 2500-3089 |
| language | Russian |
| publishDate | 2023-05-01 |
| publisher | Union of pediatricians of Russia |
| record_format | Article |
| series | Педиатрическая фармакология |
| spelling | doaj-art-bd91293e45e64f2cb4094c3621b408df2025-08-20T03:19:39ZrusUnion of pediatricians of RussiaПедиатрическая фармакология1727-57762500-30892023-05-0120210.15690/pf.v20i2.25531968Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patientsAnna L. Arakelyan0Andrey N. Surkov1Aleksander A. Baranov2Leyla S. Namazova-Baranova3Valeri V. Gorev4Elena B. Moskvina5Tamara A. Skvorcova6Artem V. Nikitin7Vladislav V. Chernikov8Research Institute of Pediatrics and Children’s Health in Petrovsky National Research Centre of SurgeryResearch Institute of Pediatrics and Children’s Health in Petrovsky National Research Centre of Surgery; Pirogov Russian National Research Medical UniversityResearch Institute of Pediatrics and Children’s Health in Petrovsky National Research Centre of Surgery; Sechenov First Moscow State Medical UniversityResearch Institute of Pediatrics and Children’s Health in Petrovsky National Research Centre of Surgery; Pirogov Russian National Research Medical UniversityMorozov Children’s City Clinical HospitalPirogov Russian National Research Medical UniversityPirogov Russian National Research Medical University; Morozov Children’s City Clinical HospitalPirogov Russian National Research Medical University; Morozov Children’s City Clinical HospitalNational Medical Research Center of Children’s HealthBackground. Health Related Quality of Life (HRQL) is a person’s perception of the effect of a disease on physical, social and psychological functioning and wealth. Questionnaires that help assess the HRQL can give a concept of child’s state, identify arcane issues and they are of great importance for a full understanding of how the state of health affects the child. Universal HRQL tools allow to compare results with general parameters, indicators with specific symptoms better reflect clinically significant moments. The most widespread in the Russian Federation was the general PedsQLTM 4.0 questionnaire, widely used in practice to assess HRQL in children with various pathologies. Objective.The aim of the study is to describe the analysis of linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQLTM questionnaire, measuring HRQL, in children with gastrointestinal disorders (GIDs).Materials and methods. The establishment of linguistic accuracy and authenticity of the content was carried out according to international standards. The process included forward translation, scientific assessment and coordination, reverse translation, verification of the reverse translation and interviews with 17 children aged 5–18 years with symptoms of GIDs and 20 parents of children with symptoms of GIDs aged 2–18 years.Results. The Russian version of PedsQLTM module of gastrointestinal symptoms (report from children 5-18 years old, report from parents for children 2–18 years old) was developed without significant difficulties. Eight questions required discussion after the forward translation, one change was made after the reverse translation, and three changes were made after the study of the symptom’s module by patients and parents.Conclusion. A conceptually equivalent version of the of PedsQLTM module of gastrointestinal symptoms in Russian has been developed for children aged 2–18 years. It allows to improve the assessment of HRQL in children with GIDs in the Russian Federation. To assess authenticity and reliability of the Russian version of the module, it’s recommended to conduct further research using a larger samplehttps://www.pedpharma.ru/jour/article/view/2282gastrointestinal disorderhealth related quality of lifemodule for assessing gastrointestinal symptomslinguistic accuracychildren |
| spellingShingle | Anna L. Arakelyan Andrey N. Surkov Aleksander A. Baranov Leyla S. Namazova-Baranova Valeri V. Gorev Elena B. Moskvina Tamara A. Skvorcova Artem V. Nikitin Vladislav V. Chernikov Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients Педиатрическая фармакология gastrointestinal disorder health related quality of life module for assessing gastrointestinal symptoms linguistic accuracy children |
| title | Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients |
| title_full | Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients |
| title_fullStr | Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients |
| title_full_unstemmed | Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients |
| title_short | Linguistic accuracy and authenticity of the content of the Russian version of the module of gastrointestinal symptoms of the PedsQL<sup>™</sup> questionnaire for pediatric patients |
| title_sort | linguistic accuracy and authenticity of the content of the russian version of the module of gastrointestinal symptoms of the pedsql sup ™ sup questionnaire for pediatric patients |
| topic | gastrointestinal disorder health related quality of life module for assessing gastrointestinal symptoms linguistic accuracy children |
| url | https://www.pedpharma.ru/jour/article/view/2282 |
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