Building a diverse national research advisory board
In healthcare and medical research, advisory boards are now commonplace, but most boards consist of a relatively homogenous, geographically collocated group, often demonstrating demographic imbalance. It is crucial to include individuals from diverse backgrounds on community advisory boards for heal...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2025-01-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866124011695/type/journal_article |
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| author | Gayle Valensky Jeff B. Pawelek Lauren Serpico David Rodriguez Maribel Pieters Yulissa Perez Julia Moore Vogel |
| author_facet | Gayle Valensky Jeff B. Pawelek Lauren Serpico David Rodriguez Maribel Pieters Yulissa Perez Julia Moore Vogel |
| author_sort | Gayle Valensky |
| collection | DOAJ |
| description | In healthcare and medical research, advisory boards are now commonplace, but most boards consist of a relatively homogenous, geographically collocated group, often demonstrating demographic imbalance. It is crucial to include individuals from diverse backgrounds on community advisory boards for healthcare and medical research to address ongoing health disparities and ensure studies are more culturally competent so that we can achieve more inclusive representation. We conducted purposeful recruitment to attract a demographically diverse group of community members across the United States (U.S.) to partner with the All of Us Research Program to inform our strategies including program recruitment, engagement, retention, and incentives. Recruitment of a diverse group of advisors and purposeful community building has created a psychologically safe environment where members openly share their opinions, thoughts, and perspectives to shape various aspects of this ambitious, nationwide research program. |
| format | Article |
| id | doaj-art-bd72c79f9dd340cfa642688907971dbe |
| institution | Kabale University |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-bd72c79f9dd340cfa642688907971dbe2025-02-10T07:46:32ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2024.1169Building a diverse national research advisory boardGayle Valensky0Jeff B. Pawelek1Lauren Serpico2David Rodriguez3Maribel Pieters4Yulissa Perez5Julia Moore Vogel6https://orcid.org/0000-0002-4902-3540Scripps Research Translational Institute, Scripps Research, La Jolla, CA, USAScripps Research Translational Institute, Scripps Research, La Jolla, CA, USAScripps Research Translational Institute, Scripps Research, La Jolla, CA, USAScripps Research Translational Institute, Scripps Research, La Jolla, CA, USAScripps Research Translational Institute, Scripps Research, La Jolla, CA, USAScripps Research Translational Institute, Scripps Research, La Jolla, CA, USAScripps Research Translational Institute, Scripps Research, La Jolla, CA, USAIn healthcare and medical research, advisory boards are now commonplace, but most boards consist of a relatively homogenous, geographically collocated group, often demonstrating demographic imbalance. It is crucial to include individuals from diverse backgrounds on community advisory boards for healthcare and medical research to address ongoing health disparities and ensure studies are more culturally competent so that we can achieve more inclusive representation. We conducted purposeful recruitment to attract a demographically diverse group of community members across the United States (U.S.) to partner with the All of Us Research Program to inform our strategies including program recruitment, engagement, retention, and incentives. Recruitment of a diverse group of advisors and purposeful community building has created a psychologically safe environment where members openly share their opinions, thoughts, and perspectives to shape various aspects of this ambitious, nationwide research program.https://www.cambridge.org/core/product/identifier/S2059866124011695/type/journal_articleCommunity-based participatory researchcommunity outreachunderrepresented in biomedical researchcommunity advisory boardvirtual technologiesdiversity and inclusion in clinical trials |
| spellingShingle | Gayle Valensky Jeff B. Pawelek Lauren Serpico David Rodriguez Maribel Pieters Yulissa Perez Julia Moore Vogel Building a diverse national research advisory board Journal of Clinical and Translational Science Community-based participatory research community outreach underrepresented in biomedical research community advisory board virtual technologies diversity and inclusion in clinical trials |
| title | Building a diverse national research advisory board |
| title_full | Building a diverse national research advisory board |
| title_fullStr | Building a diverse national research advisory board |
| title_full_unstemmed | Building a diverse national research advisory board |
| title_short | Building a diverse national research advisory board |
| title_sort | building a diverse national research advisory board |
| topic | Community-based participatory research community outreach underrepresented in biomedical research community advisory board virtual technologies diversity and inclusion in clinical trials |
| url | https://www.cambridge.org/core/product/identifier/S2059866124011695/type/journal_article |
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