Inequities in childhood cancer research: A scoping review
An integral part of understanding and then designing programs to reduce childhood cancer inequities includes adequate representation of people with cancer in research, including children. A scoping review was carried out to understand how cancer research is oriented toward inequities and to identify...
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| Format: | Article |
| Language: | English |
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Elsevier
2024-12-01
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| Series: | EJC Paediatric Oncology |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2772610X24000308 |
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| author | Jean Hunleth Sarah Burack Lindsey Kaufman Caroline Mohrmann Thembekile Shato Eric Wiedenman Janet Njelesani |
| author_facet | Jean Hunleth Sarah Burack Lindsey Kaufman Caroline Mohrmann Thembekile Shato Eric Wiedenman Janet Njelesani |
| author_sort | Jean Hunleth |
| collection | DOAJ |
| description | An integral part of understanding and then designing programs to reduce childhood cancer inequities includes adequate representation of people with cancer in research, including children. A scoping review was carried out to understand how cancer research is oriented toward inequities and to identify who has participated in childhood qualitative cancer research. A systematic search identified 119 qualitative studies that met inclusion criteria, with most studies taking place in high-income countries (n=84). Overall, data were lacking on social determinants of health at multiple levels—structural, household, child, and guardian. Only 29 studies reported on race and/or ethnicity, with the majority of those including predominantly or all white children. Six articles included socioeconomic information, and across most articles, attention was absent to the financial ramifications of cancer care. Limited reporting of sociodemographics highlights a broader issue of neglecting key demographics and social factors that contribute to inequities. |
| format | Article |
| id | doaj-art-bd038c1a0ef341a9a8e79acfb7268dba |
| institution | DOAJ |
| issn | 2772-610X |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | EJC Paediatric Oncology |
| spelling | doaj-art-bd038c1a0ef341a9a8e79acfb7268dba2025-08-20T02:50:16ZengElsevierEJC Paediatric Oncology2772-610X2024-12-01410017110.1016/j.ejcped.2024.100171Inequities in childhood cancer research: A scoping reviewJean Hunleth0Sarah Burack1Lindsey Kaufman2Caroline Mohrmann3Thembekile Shato4Eric Wiedenman5Janet Njelesani6Department of Surgery, Washington University School of Medicine in St. Louis, St. Louis, USA; Correspondence to: 600 S. Taylor Avenue, St. Louis, MO 63110, USA.Department of Surgery, Washington University School of Medicine in St. Louis, St. Louis, USADepartment of Surgery, Washington University School of Medicine in St. Louis, St. Louis, USADivision of Pediatric Hematology/Oncology, Washington University in St. Louis, USADepartment of Surgery, Washington University School of Medicine in St. Louis, St. Louis, USA; Implementation Science Center for Cancer Control and Prevention Research Center, Washington University in St. Louis, St. Louis, USAPhysician Learning Program, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, CanadaDepartment of Occupational Therapy, New York University, New York, USAAn integral part of understanding and then designing programs to reduce childhood cancer inequities includes adequate representation of people with cancer in research, including children. A scoping review was carried out to understand how cancer research is oriented toward inequities and to identify who has participated in childhood qualitative cancer research. A systematic search identified 119 qualitative studies that met inclusion criteria, with most studies taking place in high-income countries (n=84). Overall, data were lacking on social determinants of health at multiple levels—structural, household, child, and guardian. Only 29 studies reported on race and/or ethnicity, with the majority of those including predominantly or all white children. Six articles included socioeconomic information, and across most articles, attention was absent to the financial ramifications of cancer care. Limited reporting of sociodemographics highlights a broader issue of neglecting key demographics and social factors that contribute to inequities.http://www.sciencedirect.com/science/article/pii/S2772610X24000308Childhood cancerPediatric cancerQualitative researchCancer disparitiesScoping review |
| spellingShingle | Jean Hunleth Sarah Burack Lindsey Kaufman Caroline Mohrmann Thembekile Shato Eric Wiedenman Janet Njelesani Inequities in childhood cancer research: A scoping review EJC Paediatric Oncology Childhood cancer Pediatric cancer Qualitative research Cancer disparities Scoping review |
| title | Inequities in childhood cancer research: A scoping review |
| title_full | Inequities in childhood cancer research: A scoping review |
| title_fullStr | Inequities in childhood cancer research: A scoping review |
| title_full_unstemmed | Inequities in childhood cancer research: A scoping review |
| title_short | Inequities in childhood cancer research: A scoping review |
| title_sort | inequities in childhood cancer research a scoping review |
| topic | Childhood cancer Pediatric cancer Qualitative research Cancer disparities Scoping review |
| url | http://www.sciencedirect.com/science/article/pii/S2772610X24000308 |
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