Person-Centred Care for People with Profound Intellectual and Multiple Disabilities: A Rapid Review
Context: Person-centred care (PCC) requires a profound understanding of who a person is. Many components of PCC assume that persons can verbally express their wishes, needs and values. However, individuals with profound intellectual and multiple disabilities (PIMD) have limited communicative abilit...
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| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
LSE Press
2025-04-01
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| Series: | Journal of Long-Term Care |
| Subjects: | |
| Online Access: | https://account.journal.ilpnetwork.org/index.php/lse-j-jltc/article/view/324 |
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| Summary: | Context: Person-centred care (PCC) requires a profound understanding of who a person is. Many components of PCC assume that persons can verbally express their wishes, needs and values. However, individuals with profound intellectual and multiple disabilities (PIMD) have limited communicative abilities, affecting the way PCC can be provided for this group.
Objective: This study aims to synthesise the preconditions, methods, intended outcomes and challenges of PCC for individuals with PIMD to get an insight in the application of PCC for this group.
Method: A rapid literature review is conducted using the PRISMA guidelines in the selection process. Twenty articles were included. These were coded top-down focussing on relevant content, and that content was coded bottom-up using thematic analysis.
Findings: Four categories were found as preconditions of PCC: enablers, knowledge and skills builders, implementation and evaluation. Six different methods of PCC were found. The intended outcomes of PCC can be divided into two levels: (1) level of the person, including well-being, self-determination, meaningful activity and relationships, and participation; and (2) level of the social/care environment, including quality of support. The challenges of PCC were divided in practical and social challenges.
Limitations: Only 20 articles were included in this review, some of which did not focus primarily on PCC or people with PIMD.
Implications: This review highlights the need for more inclusive approaches and a more explicit definition of PCC.
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| ISSN: | 2516-9122 |