Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia

Abstract Endometriosis affects 5–14% of women and those presumed female at birth (PFAB), yet public understanding remains limited. In an online survey of 427 Australians, diagnosed individuals had better knowledge about endometriosis than those at risk but undiagnosed. In detail, at-risk individuals...

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Main Authors: Anne Reinhardt, Amelia K. Mardon, Sarah Eitze, Hannah Adler, Danielle Howe, Michelle O’Shea, Mike Armour
Format: Article
Language:English
Published: Nature Portfolio 2025-08-01
Series:npj Women's Health
Online Access:https://doi.org/10.1038/s44294-025-00096-6
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author Anne Reinhardt
Amelia K. Mardon
Sarah Eitze
Hannah Adler
Danielle Howe
Michelle O’Shea
Mike Armour
author_facet Anne Reinhardt
Amelia K. Mardon
Sarah Eitze
Hannah Adler
Danielle Howe
Michelle O’Shea
Mike Armour
author_sort Anne Reinhardt
collection DOAJ
description Abstract Endometriosis affects 5–14% of women and those presumed female at birth (PFAB), yet public understanding remains limited. In an online survey of 427 Australians, diagnosed individuals had better knowledge about endometriosis than those at risk but undiagnosed. In detail, at-risk individuals underestimated prevalence, consequences, and diagnostic pathways. Targeted education may improve symptom recognition and healthcare engagement, supporting earlier diagnosis and better care.
format Article
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institution Kabale University
issn 2948-1716
language English
publishDate 2025-08-01
publisher Nature Portfolio
record_format Article
series npj Women's Health
spelling doaj-art-bbeb5478a90b40a387d48131dcfca02a2025-08-20T04:02:45ZengNature Portfolionpj Women's Health2948-17162025-08-01311510.1038/s44294-025-00096-6Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in AustraliaAnne Reinhardt0Amelia K. Mardon1Sarah Eitze2Hannah Adler3Danielle Howe4Michelle O’Shea5Mike Armour6Department of Media and Communication, Ludwig-Maximilians-Universität MünchenNICM Health Research Institute, Western Sydney UniversityDepartment of Media and Communication Sciences, University of Erfurt, Nordhaeuser Strasse 63Centre of Social and Cultural Research, Griffith UniversityNICM Health Research Institute, Western Sydney UniversityNICM Health Research Institute, Western Sydney UniversityNICM Health Research Institute, Western Sydney UniversityAbstract Endometriosis affects 5–14% of women and those presumed female at birth (PFAB), yet public understanding remains limited. In an online survey of 427 Australians, diagnosed individuals had better knowledge about endometriosis than those at risk but undiagnosed. In detail, at-risk individuals underestimated prevalence, consequences, and diagnostic pathways. Targeted education may improve symptom recognition and healthcare engagement, supporting earlier diagnosis and better care.https://doi.org/10.1038/s44294-025-00096-6
spellingShingle Anne Reinhardt
Amelia K. Mardon
Sarah Eitze
Hannah Adler
Danielle Howe
Michelle O’Shea
Mike Armour
Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia
npj Women's Health
title Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia
title_full Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia
title_fullStr Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia
title_full_unstemmed Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia
title_short Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia
title_sort understanding endometriosis knowledge among diagnosed and symptomatically at risk individuals in australia
url https://doi.org/10.1038/s44294-025-00096-6
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