Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka

Abstract Objective Sri Lanka’s aging population is contributing to a rising burden of neurodegenerative diseases (NDDs), exacerbated by limited care infrastructure and a shortage of trained professionals. To address this, Sri Lankan universities, through the EU-funded “nEUROcare” project, aim to dev...

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Main Authors: Nirmala Rathnayake, Thamudi Sundarapperuma, Pramudika Nirmani, Bimba Wickramarachchi, Kumari De Silva, Prasanna Herath, Damayanthi Dassanayake, Sudath Warnakulasuriya, Martin Persson
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Language:English
Published: BMC 2025-05-01
Series:BMC Research Notes
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Online Access:https://doi.org/10.1186/s13104-025-07305-0
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author Nirmala Rathnayake
Thamudi Sundarapperuma
Pramudika Nirmani
Bimba Wickramarachchi
Kumari De Silva
Prasanna Herath
Damayanthi Dassanayake
Sudath Warnakulasuriya
Martin Persson
author_facet Nirmala Rathnayake
Thamudi Sundarapperuma
Pramudika Nirmani
Bimba Wickramarachchi
Kumari De Silva
Prasanna Herath
Damayanthi Dassanayake
Sudath Warnakulasuriya
Martin Persson
author_sort Nirmala Rathnayake
collection DOAJ
description Abstract Objective Sri Lanka’s aging population is contributing to a rising burden of neurodegenerative diseases (NDDs), exacerbated by limited care infrastructure and a shortage of trained professionals. To address this, Sri Lankan universities, through the EU-funded “nEUROcare” project, aim to develop a Master’s program in NDD care. This mixed-method study surveyed 150 healthcare professionals and students, alongside Focus Group Discussions (FGDs) with 18 professionals, using pre-tested tools to assess knowledge, perceptions, and conduct a SWOT analysis. Results Over half of the participants rated their knowledge of NDDs as above average, and 77.4% endorsed the need for a Master’s program. Key motivators included career advancement and enhanced social recognition. Identified strengths were institutional and government support and the capacity of existing universities. Weaknesses included a lack of national policy, inadequate infrastructure, and insufficient trained teaching staff. Opportunities were seen in the demographic shift toward an aging population and the potential for economic and academic benefits. Threats included limited stakeholder awareness and funding constraints. The study clearly demonstrates the urgent need for specialized training in NDD care. Establishing a Master’s program would significantly bridge current gaps in care, empower professionals, and improve outcomes for patients and their caregivers in Sri Lanka. Clinical trial number Not applicable.
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spelling doaj-art-bb1a9419a20747d0a5fbf5ac8eb5a55a2025-08-20T01:59:57ZengBMCBMC Research Notes1756-05002025-05-011811810.1186/s13104-025-07305-0Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri LankaNirmala Rathnayake0Thamudi Sundarapperuma1Pramudika Nirmani2Bimba Wickramarachchi3Kumari De Silva4Prasanna Herath5Damayanthi Dassanayake6Sudath Warnakulasuriya7Martin Persson8Department of Nursing, Faculty of Allied Health Sciences, University of RuhunaDepartment of Nursing, Faculty of Allied Health Sciences, University of RuhunaDepartment of Nursing, Faculty of Allied Health Sciences, University of RuhunaDepartment of Nursing, Faculty of Allied Health Sciences, University of RuhunaDepartment of Nursing, Faculty of Allied Health Sciences, University of RuhunaDepartment of Nursing and Midwifery, Faculty of Allied Health Sciences, Kotelawala Defence UniversityDepartment of Nursing, Faculty of Allied Health Sciences, University of PeradeniyaDepartment of Clinical Nursing, Faculty of Nursing, University of ColomboFaculty of Health Sciences, Kristianstad UniversityAbstract Objective Sri Lanka’s aging population is contributing to a rising burden of neurodegenerative diseases (NDDs), exacerbated by limited care infrastructure and a shortage of trained professionals. To address this, Sri Lankan universities, through the EU-funded “nEUROcare” project, aim to develop a Master’s program in NDD care. This mixed-method study surveyed 150 healthcare professionals and students, alongside Focus Group Discussions (FGDs) with 18 professionals, using pre-tested tools to assess knowledge, perceptions, and conduct a SWOT analysis. Results Over half of the participants rated their knowledge of NDDs as above average, and 77.4% endorsed the need for a Master’s program. Key motivators included career advancement and enhanced social recognition. Identified strengths were institutional and government support and the capacity of existing universities. Weaknesses included a lack of national policy, inadequate infrastructure, and insufficient trained teaching staff. Opportunities were seen in the demographic shift toward an aging population and the potential for economic and academic benefits. Threats included limited stakeholder awareness and funding constraints. The study clearly demonstrates the urgent need for specialized training in NDD care. Establishing a Master’s program would significantly bridge current gaps in care, empower professionals, and improve outcomes for patients and their caregivers in Sri Lanka. Clinical trial number Not applicable.https://doi.org/10.1186/s13104-025-07305-0Need surveyNeurodegenerative disease careMaster's programSri Lanka
spellingShingle Nirmala Rathnayake
Thamudi Sundarapperuma
Pramudika Nirmani
Bimba Wickramarachchi
Kumari De Silva
Prasanna Herath
Damayanthi Dassanayake
Sudath Warnakulasuriya
Martin Persson
Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka
BMC Research Notes
Need survey
Neurodegenerative disease care
Master's program
Sri Lanka
title Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka
title_full Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka
title_fullStr Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka
title_full_unstemmed Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka
title_short Bridging the gap in neurodegenerative disease care: a needs assessment for a Master’s program in Sri Lanka
title_sort bridging the gap in neurodegenerative disease care a needs assessment for a master s program in sri lanka
topic Need survey
Neurodegenerative disease care
Master's program
Sri Lanka
url https://doi.org/10.1186/s13104-025-07305-0
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