Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review

<b>Background/Objectives:</b> Rett syndrome (RTT) is a rare neurodevelopmental disorder that affects movement and communication skills primarily in females. This study aimed to synthesize the research from the last two decades regarding the verbal and nonverbal communication abilities, a...

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Main Authors: Louiza Voniati, Angelos Papadopoulos, Nafsika Ziavra, Dionysios Tafiadis
Format: Article
Language:English
Published: MDPI AG 2025-07-01
Series:Brain Sciences
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Online Access:https://www.mdpi.com/2076-3425/15/7/753
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author Louiza Voniati
Angelos Papadopoulos
Nafsika Ziavra
Dionysios Tafiadis
author_facet Louiza Voniati
Angelos Papadopoulos
Nafsika Ziavra
Dionysios Tafiadis
author_sort Louiza Voniati
collection DOAJ
description <b>Background/Objectives:</b> Rett syndrome (RTT) is a rare neurodevelopmental disorder that affects movement and communication skills primarily in females. This study aimed to synthesize the research from the last two decades regarding the verbal and nonverbal communication abilities, assessment procedures, and intervention approaches for individuals with RTT. <b>Methods:</b> A structured literature search was conducted using the Embase, Scopus, and PubMed databases. Fifty-seven studies were selected and analyzed based on inclusion criteria. The data were categorized into four domains (verbal communication skills, nonverbal communication skills, assessment procedures, and intervention approaches). <b>Results:</b> The findings indicated a wide variety of communicative behaviors across the RTT population, including prelinguistic signals, regression in verbal output, and preserved nonverbal communicative intent. Moreover, the results highlighted the importance of tailored assessments (Inventory of Potential Communicative Acts, eye tracking tools, and Augmentative and Alternative Communication) to facilitate functional communication. The individualized intervention approaches were found to be the most effective in improving communicative participation. <b>Conclusions:</b> The current review provides an overview of the current evidence with an emphasis on the need for personalized and evidence-based clinical practices. Additionally, it provided guidance for professionals, clinicians, and researchers seeking to improve the quality of life for individuals with RTT.
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spelling doaj-art-baf01fcbfe184bc0bca0bc36e8e32e322025-08-20T03:58:25ZengMDPI AGBrain Sciences2076-34252025-07-0115775310.3390/brainsci15070753Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative ReviewLouiza Voniati0Angelos Papadopoulos1Nafsika Ziavra2Dionysios Tafiadis3Department of Health Sciences, Speech and Language Therapy, European University, Nicosia 22006, CyprusDepartment of Speech and Language Therapy, School of Health Sciences, University of Ioannina, 45 500 Ioannina, GreeceDepartment of Speech and Language Therapy, School of Health Sciences, University of Ioannina, 45 500 Ioannina, GreeceDepartment of Speech and Language Therapy, School of Health Sciences, University of Ioannina, 45 500 Ioannina, Greece<b>Background/Objectives:</b> Rett syndrome (RTT) is a rare neurodevelopmental disorder that affects movement and communication skills primarily in females. This study aimed to synthesize the research from the last two decades regarding the verbal and nonverbal communication abilities, assessment procedures, and intervention approaches for individuals with RTT. <b>Methods:</b> A structured literature search was conducted using the Embase, Scopus, and PubMed databases. Fifty-seven studies were selected and analyzed based on inclusion criteria. The data were categorized into four domains (verbal communication skills, nonverbal communication skills, assessment procedures, and intervention approaches). <b>Results:</b> The findings indicated a wide variety of communicative behaviors across the RTT population, including prelinguistic signals, regression in verbal output, and preserved nonverbal communicative intent. Moreover, the results highlighted the importance of tailored assessments (Inventory of Potential Communicative Acts, eye tracking tools, and Augmentative and Alternative Communication) to facilitate functional communication. The individualized intervention approaches were found to be the most effective in improving communicative participation. <b>Conclusions:</b> The current review provides an overview of the current evidence with an emphasis on the need for personalized and evidence-based clinical practices. Additionally, it provided guidance for professionals, clinicians, and researchers seeking to improve the quality of life for individuals with RTT.https://www.mdpi.com/2076-3425/15/7/753Rett syndrome (RTT)communicative abilitiesassessmentinterventionspeech-pathologynarrative review
spellingShingle Louiza Voniati
Angelos Papadopoulos
Nafsika Ziavra
Dionysios Tafiadis
Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review
Brain Sciences
Rett syndrome (RTT)
communicative abilities
assessment
intervention
speech-pathology
narrative review
title Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review
title_full Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review
title_fullStr Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review
title_full_unstemmed Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review
title_short Communication Abilities, Assessment Procedures, and Intervention Approaches in Rett Syndrome: A Narrative Review
title_sort communication abilities assessment procedures and intervention approaches in rett syndrome a narrative review
topic Rett syndrome (RTT)
communicative abilities
assessment
intervention
speech-pathology
narrative review
url https://www.mdpi.com/2076-3425/15/7/753
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