Ethical Principles for the Well-Being of Participants and Researchers in Qualitative Intersex-Related Studies: A Community-Based and Trauma-Informed Approach
Research with population groups who have undergone circumstances of vulnerability demands a careful ethical approach to ensure that the study is conducted with the utmost respect and sensitivity, addressing potential challenges not only in regards to safeguarding participants’ rights but also in pre...
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| Format: | Article |
| Language: | English |
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MDPI AG
2025-06-01
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| Series: | Sexes |
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| Online Access: | https://www.mdpi.com/2411-5118/6/2/28 |
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| Summary: | Research with population groups who have undergone circumstances of vulnerability demands a careful ethical approach to ensure that the study is conducted with the utmost respect and sensitivity, addressing potential challenges not only in regards to safeguarding participants’ rights but also in preserving the well-being of researchers. This paper is based on a qualitative research project. Employing snowball sampling techniques, I contacted 21 participants by e-mail, comprising intersex individuals who had engaged in research, as well as researchers and ethics experts with experience in qualitative intersex-related studies. I conducted semi-structured interviews to gather insights from their respective experiences. The research article focuses on a set of ethical principles that could be valuable in the development of intersex-related studies. While certain principles are directed towards participants and others towards researchers, it is important to note that these categories are not strictly delineated. As the findings suggest, these categories are closely interrelated. Both the literature review and fieldwork underscore the significance of adopting various research methods, such as community-based and trauma-informed approaches, to collaborate in enhancing knowledge production for intersex-related studies. |
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| ISSN: | 2411-5118 |