Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome

ObjectiveRheumatic disease-associated macrophage activation syndrome (RD-MAS) is a rare and life-threatening complication of rheumatic diseases, with approximately 30% of cases being refractory to conventional therapeutic protocols. Ruxolitinib, a Janus kinase 1/2 inhibitor, has emerged as a potenti...

Full description

Saved in:
Bibliographic Details
Main Authors: Jingjing Li, Ran Wang, Jie Chen, Antao Xu, Yakai Fu, Yanwei Lin, Xiaodong Wang, Shuang Ye, Ye Yuan, Fang Du, Qiong Fu
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-06-01
Series:Frontiers in Immunology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fimmu.2025.1604648/full
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850157211737653248
author Jingjing Li
Ran Wang
Jie Chen
Antao Xu
Yakai Fu
Yanwei Lin
Xiaodong Wang
Shuang Ye
Ye Yuan
Fang Du
Qiong Fu
Qiong Fu
author_facet Jingjing Li
Ran Wang
Jie Chen
Antao Xu
Yakai Fu
Yanwei Lin
Xiaodong Wang
Shuang Ye
Ye Yuan
Fang Du
Qiong Fu
Qiong Fu
author_sort Jingjing Li
collection DOAJ
description ObjectiveRheumatic disease-associated macrophage activation syndrome (RD-MAS) is a rare and life-threatening complication of rheumatic diseases, with approximately 30% of cases being refractory to conventional therapeutic protocols. Ruxolitinib, a Janus kinase 1/2 inhibitor, has emerged as a potential therapy for refractory RD-MAS. This study aimed to evaluate its efficacy and safety in patients with refractory RD-MAS.MethodsA meticulous chart review was conducted on 20 refractory RD-MAS patients treated with ruxolitinib. Data from no ruxolitinib treatment RD-MAS patients served as historical controls. Clinical and laboratory parameters, therapeutic response, and survival outcomes were analyzed. Ruxolitinib’s efficacy and safety were evaluated, and survival rates were compared to historical controls.ResultsThe cohort included 20 refractory RD-MAS patients (17 females, 3 males) with underlying conditions: adult-onset Still’s disease (n = 13), systemic lupus erythematosus (n = 4), and other connective tissue diseases (CTDs) (n = 3). All patients displayed active disease at baseline. By week 8, 50% (10/20) of patients achieved partial remission, while 30% (6/20) attained complete remission. The ruxolitinib group had a significantly higher survival rate (19/20, 95%) compared to historical controls (13/21, 62%) (P = 0.011). By week 8, the median daily glucocorticoid dose dropped from 2.7 mg/kg to 0.5 mg/kg. Cytomegalovirus infection occurred in 20% (4/20) of patients.ConclusionRuxolitinib demonstrated substantial efficacy and tolerability in refractory RD-MAS, improving clinical outcomes and reducing glucocorticoid dependence. Although limited by its retrospective nature and small cohort size, this study suggests that ruxolitinib may serve as a potential therapy for refractory RD-MAS, warranting further investigation.
format Article
id doaj-art-b797c4b6b8f4406bb88bc5d4a94149d4
institution OA Journals
issn 1664-3224
language English
publishDate 2025-06-01
publisher Frontiers Media S.A.
record_format Article
series Frontiers in Immunology
spelling doaj-art-b797c4b6b8f4406bb88bc5d4a94149d42025-08-20T02:24:14ZengFrontiers Media S.A.Frontiers in Immunology1664-32242025-06-011610.3389/fimmu.2025.16046481604648Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndromeJingjing Li0Ran Wang1Jie Chen2Antao Xu3Yakai Fu4Yanwei Lin5Xiaodong Wang6Shuang Ye7Ye Yuan8Fang Du9Qiong Fu10Qiong Fu11Department of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaState Key Laboratory of Biopharmaceutical Preparation and Delivery, Institute of Process Engineering, Chinese Academy of Sciences, Beijing, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaDepartment of Rheumatology, Renji Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, ChinaShanghai Immune Therapy Institute, Shanghai, ChinaObjectiveRheumatic disease-associated macrophage activation syndrome (RD-MAS) is a rare and life-threatening complication of rheumatic diseases, with approximately 30% of cases being refractory to conventional therapeutic protocols. Ruxolitinib, a Janus kinase 1/2 inhibitor, has emerged as a potential therapy for refractory RD-MAS. This study aimed to evaluate its efficacy and safety in patients with refractory RD-MAS.MethodsA meticulous chart review was conducted on 20 refractory RD-MAS patients treated with ruxolitinib. Data from no ruxolitinib treatment RD-MAS patients served as historical controls. Clinical and laboratory parameters, therapeutic response, and survival outcomes were analyzed. Ruxolitinib’s efficacy and safety were evaluated, and survival rates were compared to historical controls.ResultsThe cohort included 20 refractory RD-MAS patients (17 females, 3 males) with underlying conditions: adult-onset Still’s disease (n = 13), systemic lupus erythematosus (n = 4), and other connective tissue diseases (CTDs) (n = 3). All patients displayed active disease at baseline. By week 8, 50% (10/20) of patients achieved partial remission, while 30% (6/20) attained complete remission. The ruxolitinib group had a significantly higher survival rate (19/20, 95%) compared to historical controls (13/21, 62%) (P = 0.011). By week 8, the median daily glucocorticoid dose dropped from 2.7 mg/kg to 0.5 mg/kg. Cytomegalovirus infection occurred in 20% (4/20) of patients.ConclusionRuxolitinib demonstrated substantial efficacy and tolerability in refractory RD-MAS, improving clinical outcomes and reducing glucocorticoid dependence. Although limited by its retrospective nature and small cohort size, this study suggests that ruxolitinib may serve as a potential therapy for refractory RD-MAS, warranting further investigation.https://www.frontiersin.org/articles/10.3389/fimmu.2025.1604648/fullrefractory macrophage activation syndrome (MAS)rheumatic diseasesruxolitinibJAK inhibitorsalvage treatmentreal-world evidence
spellingShingle Jingjing Li
Ran Wang
Jie Chen
Antao Xu
Yakai Fu
Yanwei Lin
Xiaodong Wang
Shuang Ye
Ye Yuan
Fang Du
Qiong Fu
Qiong Fu
Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome
Frontiers in Immunology
refractory macrophage activation syndrome (MAS)
rheumatic diseases
ruxolitinib
JAK inhibitor
salvage treatment
real-world evidence
title Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome
title_full Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome
title_fullStr Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome
title_full_unstemmed Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome
title_short Efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease-associated macrophage activation syndrome
title_sort efficacy and safety of ruxolitinib in adult patients with refractory rheumatic disease associated macrophage activation syndrome
topic refractory macrophage activation syndrome (MAS)
rheumatic diseases
ruxolitinib
JAK inhibitor
salvage treatment
real-world evidence
url https://www.frontiersin.org/articles/10.3389/fimmu.2025.1604648/full
work_keys_str_mv AT jingjingli efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT ranwang efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT jiechen efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT antaoxu efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT yakaifu efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT yanweilin efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT xiaodongwang efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT shuangye efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT yeyuan efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT fangdu efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT qiongfu efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome
AT qiongfu efficacyandsafetyofruxolitinibinadultpatientswithrefractoryrheumaticdiseaseassociatedmacrophageactivationsyndrome