Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses
<b>Background/Objectives:</b> One of the risk groups during the COVID-19 pandemic was people with predominantly antibody deficiencies (PADs) that have a compromised immune system. In the absence of evidence and clinical experience, there were challenges for patients in their daily life a...
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MDPI AG
2025-03-01
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| author | Ramona Fust Sofia Nyström Britt Åkerlind Åsa Nilsdotter-Augustinsson Christina Petersson |
| author_facet | Ramona Fust Sofia Nyström Britt Åkerlind Åsa Nilsdotter-Augustinsson Christina Petersson |
| author_sort | Ramona Fust |
| collection | DOAJ |
| description | <b>Background/Objectives:</b> One of the risk groups during the COVID-19 pandemic was people with predominantly antibody deficiencies (PADs) that have a compromised immune system. In the absence of evidence and clinical experience, there were challenges for patients in their daily life and for staff in counseling during this time. Therefore, the aim of this study was to explore the experiences of PAD patients and nurses during the COVID-19 pandemic. <b>Methods:</b> Focus group interviews with patients (n = 12) and nurses (n = 12) were performed separately, which were then analyzed using content analysis. <b>Results:</b> The daily life of PAD patients was affected during the pandemic, with concerns about becoming seriously ill. Social isolation and adherence to recommendations by the majority of the Swedish population resulted in patients feeling infectiously healthier during this period. The rapid transition of specialist care to telemedicine care encounters was an important measure taken to address patients’ concerns and questions according to both patients and nurses. In addition, patients expressed a need for a coordinated care plan to facilitate access to integrated care. <b>Conclusions:</b> The high level of trust for authorities in Sweden was related to the high compliance with the recommendations, which reduced the spread of the infection. The role of specialized care is an important support for PAD patients, which was particularly evident during the pandemic. Information transfer to a specific risk group, such as people with PADs, is important and can usefully be coordinated by their specialist clinic. Telemedicine meetings are an important complement for people with PADs and need to be further elaborated. Also, there is a need to clarify how to better coordinate primary and specialized care. |
| format | Article |
| id | doaj-art-b76d155e0e8e434f92a0dbe220f71516 |
| institution | OA Journals |
| issn | 2039-439X 2039-4403 |
| language | English |
| publishDate | 2025-03-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Nursing Reports |
| spelling | doaj-art-b76d155e0e8e434f92a0dbe220f715162025-08-20T01:48:49ZengMDPI AGNursing Reports2039-439X2039-44032025-03-0115310410.3390/nursrep15030104Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and NursesRamona Fust0Sofia Nyström1Britt Åkerlind2Åsa Nilsdotter-Augustinsson3Christina Petersson4Department of Infectious Diseases in Region Östergötland, Linköping University, 583 30 Linköping, SwedenDepartment of Biomedical and Clinical Sciences, Linköping University, 583 30 Linköping, SwedenDepartment of Infection Control and Hygiene, Linköping University Hospital Sweden, 583 30 Linköping, SwedenDepartment of Infectious Diseases in Region Östergötland, Linköping University, 583 30 Linköping, SwedenJönköping Academy for Improvement of Health and Welfare, Jönköping University, 551 11 Jönköping, Sweden<b>Background/Objectives:</b> One of the risk groups during the COVID-19 pandemic was people with predominantly antibody deficiencies (PADs) that have a compromised immune system. In the absence of evidence and clinical experience, there were challenges for patients in their daily life and for staff in counseling during this time. Therefore, the aim of this study was to explore the experiences of PAD patients and nurses during the COVID-19 pandemic. <b>Methods:</b> Focus group interviews with patients (n = 12) and nurses (n = 12) were performed separately, which were then analyzed using content analysis. <b>Results:</b> The daily life of PAD patients was affected during the pandemic, with concerns about becoming seriously ill. Social isolation and adherence to recommendations by the majority of the Swedish population resulted in patients feeling infectiously healthier during this period. The rapid transition of specialist care to telemedicine care encounters was an important measure taken to address patients’ concerns and questions according to both patients and nurses. In addition, patients expressed a need for a coordinated care plan to facilitate access to integrated care. <b>Conclusions:</b> The high level of trust for authorities in Sweden was related to the high compliance with the recommendations, which reduced the spread of the infection. The role of specialized care is an important support for PAD patients, which was particularly evident during the pandemic. Information transfer to a specific risk group, such as people with PADs, is important and can usefully be coordinated by their specialist clinic. Telemedicine meetings are an important complement for people with PADs and need to be further elaborated. Also, there is a need to clarify how to better coordinate primary and specialized care.https://www.mdpi.com/2039-4403/15/3/104telemedicinecoordination of careeveryday lifechronic conditionsnursing |
| spellingShingle | Ramona Fust Sofia Nyström Britt Åkerlind Åsa Nilsdotter-Augustinsson Christina Petersson Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses Nursing Reports telemedicine coordination of care everyday life chronic conditions nursing |
| title | Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses |
| title_full | Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses |
| title_fullStr | Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses |
| title_full_unstemmed | Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses |
| title_short | Experience of the COVID-19 Pandemic in the Care of Patients with Predominantly Antibody Deficiencies (PADs)—A Qualitative Study with Perspectives from Both Patients and Nurses |
| title_sort | experience of the covid 19 pandemic in the care of patients with predominantly antibody deficiencies pads a qualitative study with perspectives from both patients and nurses |
| topic | telemedicine coordination of care everyday life chronic conditions nursing |
| url | https://www.mdpi.com/2039-4403/15/3/104 |
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