Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.

<h4>Background</h4>Persons with brain disorders experience significant psychosocial difficulties (PSD) in daily life, e.g. problems with managing daily routine or emotional lability, and the level of the PSD depends on social, physical and political environments, and psychologic-personal...

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Main Authors: Carla Sabariego, Michaela Coenen, Carolina Ballert, Maria Cabello, Matilde Leonardi, Marta Anczewska, Tuuli Pitkänen, Alberto Raggi, Blanca Mellor, Venusia Covelli, Piotr Świtaj, Jonna Levola, Silvia Schiavolin, Anna Chrostek, Jerome Bickenbach, Somnath Chatterji, Alarcos Cieza
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2015-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0141322
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author Carla Sabariego
Michaela Coenen
Carolina Ballert
Maria Cabello
Matilde Leonardi
Marta Anczewska
Tuuli Pitkänen
Alberto Raggi
Blanca Mellor
Venusia Covelli
Piotr Świtaj
Jonna Levola
Silvia Schiavolin
Anna Chrostek
Jerome Bickenbach
Somnath Chatterji
Alarcos Cieza
author_facet Carla Sabariego
Michaela Coenen
Carolina Ballert
Maria Cabello
Matilde Leonardi
Marta Anczewska
Tuuli Pitkänen
Alberto Raggi
Blanca Mellor
Venusia Covelli
Piotr Świtaj
Jonna Levola
Silvia Schiavolin
Anna Chrostek
Jerome Bickenbach
Somnath Chatterji
Alarcos Cieza
author_sort Carla Sabariego
collection DOAJ
description <h4>Background</h4>Persons with brain disorders experience significant psychosocial difficulties (PSD) in daily life, e.g. problems with managing daily routine or emotional lability, and the level of the PSD depends on social, physical and political environments, and psychologic-personal determinants. Our objective is to determine a brief set of environmental and psychologic-personal factors that are shared determinants of PSD among persons with different brain disorders.<h4>Methods</h4>Cross-sectional study, convenience sample of persons with either dementia, stroke, multiple sclerosis, epilepsy, migraine, depression, schizophrenia, substance dependence or Parkinson's disease. Random forest regression and classical linear regression were used in the analyses.<h4>Results</h4>722 subjects were interviewed in four European countries. The brief set of determinants encompasses presence of comorbidities, health status appraisal, stressful life events, personality changes, adaptation, self-esteem, self-worth, built environment, weather, and health problems in the family.<h4>Conclusions</h4>The identified brief set of common determinants of PSD can be used to support the implementation of cross-cutting interventions, social actions and policy tools to lower PSD experienced by persons with brain disorders. This set complements a recently proposed reliable and valid direct metric of PSD for brain disorders called PARADISE24.
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spelling doaj-art-b5b7eb0ee5a8423398264517f877dbbf2025-08-20T03:10:02ZengPublic Library of Science (PLoS)PLoS ONE1932-62032015-01-011012e014132210.1371/journal.pone.0141322Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.Carla SabariegoMichaela CoenenCarolina BallertMaria CabelloMatilde LeonardiMarta AnczewskaTuuli PitkänenAlberto RaggiBlanca MellorVenusia CovelliPiotr ŚwitajJonna LevolaSilvia SchiavolinAnna ChrostekJerome BickenbachSomnath ChatterjiAlarcos Cieza<h4>Background</h4>Persons with brain disorders experience significant psychosocial difficulties (PSD) in daily life, e.g. problems with managing daily routine or emotional lability, and the level of the PSD depends on social, physical and political environments, and psychologic-personal determinants. Our objective is to determine a brief set of environmental and psychologic-personal factors that are shared determinants of PSD among persons with different brain disorders.<h4>Methods</h4>Cross-sectional study, convenience sample of persons with either dementia, stroke, multiple sclerosis, epilepsy, migraine, depression, schizophrenia, substance dependence or Parkinson's disease. Random forest regression and classical linear regression were used in the analyses.<h4>Results</h4>722 subjects were interviewed in four European countries. The brief set of determinants encompasses presence of comorbidities, health status appraisal, stressful life events, personality changes, adaptation, self-esteem, self-worth, built environment, weather, and health problems in the family.<h4>Conclusions</h4>The identified brief set of common determinants of PSD can be used to support the implementation of cross-cutting interventions, social actions and policy tools to lower PSD experienced by persons with brain disorders. This set complements a recently proposed reliable and valid direct metric of PSD for brain disorders called PARADISE24.https://doi.org/10.1371/journal.pone.0141322
spellingShingle Carla Sabariego
Michaela Coenen
Carolina Ballert
Maria Cabello
Matilde Leonardi
Marta Anczewska
Tuuli Pitkänen
Alberto Raggi
Blanca Mellor
Venusia Covelli
Piotr Świtaj
Jonna Levola
Silvia Schiavolin
Anna Chrostek
Jerome Bickenbach
Somnath Chatterji
Alarcos Cieza
Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.
PLoS ONE
title Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.
title_full Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.
title_fullStr Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.
title_full_unstemmed Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.
title_short Determinants of Psychosocial Difficulties Experienced by Persons with Brain Disorders: Towards a 'Horizontal Epidemiology' Approach.
title_sort determinants of psychosocial difficulties experienced by persons with brain disorders towards a horizontal epidemiology approach
url https://doi.org/10.1371/journal.pone.0141322
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