Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review
Abstract Introduction Thalassemia major is a chronic genetic disease requiring long-term treatment, significantly impacting the quality of life of affected children and their parents. Parents often experience emotional, social, and economic burdens in caring for children with thalassemia. Nursing in...
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BMC
2025-03-01
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| Series: | BMC Nursing |
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| Online Access: | https://doi.org/10.1186/s12912-025-02994-1 |
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| author | Ai Mardhiyah Iyus Yosep Sri Hendrawati Windy Rakhmawati Khoirunnisa Khoirunnisa Theresia Eriyani Rohman Hikmat |
| author_facet | Ai Mardhiyah Iyus Yosep Sri Hendrawati Windy Rakhmawati Khoirunnisa Khoirunnisa Theresia Eriyani Rohman Hikmat |
| author_sort | Ai Mardhiyah |
| collection | DOAJ |
| description | Abstract Introduction Thalassemia major is a chronic genetic disease requiring long-term treatment, significantly impacting the quality of life of affected children and their parents. Parents often experience emotional, social, and economic burdens in caring for children with thalassemia. Nursing interventions play a crucial role in improving their quality of life by providing holistic support. This scoping review aims to explore nursing interventions that enhance the quality of life of parents with children diagnosed with thalassemia major. Methods A scoping review methodology was applied. Literature searches were conducted in CINAHL, PubMed, and Scopus, as well as Google Scholar. The primary keywords included “nursing intervention,” “quality of life,” “thalassemia,” “parents,” and “family support.” Inclusion criteria comprised full-text, original research articles published in English from 2015 to 2024. Data extraction was performed manually, and qualitative descriptive analysis was used. Results Nine studies met the inclusion criteria, discussing various nursing interventions to improve parental quality of life. Effective interventions included positive thinking therapy, family empowerment, counseling, and education, which enhanced parental knowledge, coping skills, emotional well-being, and overall quality of life. Key factors supporting intervention success included active parental participation, continuous healthcare support, and the availability of accessible educational resources. Conclusion This study highlights the essential role of nurses in supporting parents of children with thalassemia. A holistic nursing approach is crucial in addressing the multifaceted needs of these parents. Further research should explore the long-term effectiveness of these interventions and their adaptation to individual family circumstances. |
| format | Article |
| id | doaj-art-b4b8e10c154d4ecf9da5ac18acd275e4 |
| institution | Kabale University |
| issn | 1472-6955 |
| language | English |
| publishDate | 2025-03-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Nursing |
| spelling | doaj-art-b4b8e10c154d4ecf9da5ac18acd275e42025-08-20T03:40:46ZengBMCBMC Nursing1472-69552025-03-0124111210.1186/s12912-025-02994-1Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping reviewAi Mardhiyah0Iyus Yosep1Sri Hendrawati2Windy Rakhmawati3Khoirunnisa Khoirunnisa4Theresia Eriyani5Rohman Hikmat6Department of Pediatric Nursing, Faculty of Nursing, Universitas PadjadjaranDepartment of Mental Health Nursing, Faculty of Nursing, Universitas PadjadjaranDepartment of Pediatric Nursing, Faculty of Nursing, Universitas PadjadjaranDepartment of Pediatric Nursing, Faculty of Nursing, Universitas PadjadjaranDepartment of Pediatric Nursing, Faculty of Nursing, Universitas PadjadjaranDepartment of Fundamental Nursing, Faculty of Nursing, Universitas PadjadjaranNursing Department, Faculty of Health Science, Universitas ‘Aisyiyah BandungAbstract Introduction Thalassemia major is a chronic genetic disease requiring long-term treatment, significantly impacting the quality of life of affected children and their parents. Parents often experience emotional, social, and economic burdens in caring for children with thalassemia. Nursing interventions play a crucial role in improving their quality of life by providing holistic support. This scoping review aims to explore nursing interventions that enhance the quality of life of parents with children diagnosed with thalassemia major. Methods A scoping review methodology was applied. Literature searches were conducted in CINAHL, PubMed, and Scopus, as well as Google Scholar. The primary keywords included “nursing intervention,” “quality of life,” “thalassemia,” “parents,” and “family support.” Inclusion criteria comprised full-text, original research articles published in English from 2015 to 2024. Data extraction was performed manually, and qualitative descriptive analysis was used. Results Nine studies met the inclusion criteria, discussing various nursing interventions to improve parental quality of life. Effective interventions included positive thinking therapy, family empowerment, counseling, and education, which enhanced parental knowledge, coping skills, emotional well-being, and overall quality of life. Key factors supporting intervention success included active parental participation, continuous healthcare support, and the availability of accessible educational resources. Conclusion This study highlights the essential role of nurses in supporting parents of children with thalassemia. A holistic nursing approach is crucial in addressing the multifaceted needs of these parents. Further research should explore the long-term effectiveness of these interventions and their adaptation to individual family circumstances.https://doi.org/10.1186/s12912-025-02994-1ChildrenInterventionParentsQuality of lifeThalassemia |
| spellingShingle | Ai Mardhiyah Iyus Yosep Sri Hendrawati Windy Rakhmawati Khoirunnisa Khoirunnisa Theresia Eriyani Rohman Hikmat Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review BMC Nursing Children Intervention Parents Quality of life Thalassemia |
| title | Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review |
| title_full | Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review |
| title_fullStr | Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review |
| title_full_unstemmed | Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review |
| title_short | Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review |
| title_sort | nursing interventions for improving quality of life among parents with major thalassemic children a scoping review |
| topic | Children Intervention Parents Quality of life Thalassemia |
| url | https://doi.org/10.1186/s12912-025-02994-1 |
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