Potential of patient portals to enhance adolescent asthma care engagement
Importance: Electronic health record-based patient portals hold promise for health care transition (HCT), particularly for chronic conditions like asthma. Objective: To understand the potential of a portal-based asthma care management module in adolescent patients with asthma and evaluate its perfor...
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| Format: | Article |
| Language: | English |
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Elsevier
2025-01-01
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| Series: | Health Care Transitions |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2949923225000236 |
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| author | Emma J. Clark, MSc Whitney Chan Emily Gao Ilana Radparvar Rong Guo, MS Ana Gomez, BA Nashica Hamm, BS Dariush Kafashzadeh, MD Gery W. Ryan, PhD Mindy K. Ross, MD, MAS, MBA |
| author_facet | Emma J. Clark, MSc Whitney Chan Emily Gao Ilana Radparvar Rong Guo, MS Ana Gomez, BA Nashica Hamm, BS Dariush Kafashzadeh, MD Gery W. Ryan, PhD Mindy K. Ross, MD, MAS, MBA |
| author_sort | Emma J. Clark, MSc |
| collection | DOAJ |
| description | Importance: Electronic health record-based patient portals hold promise for health care transition (HCT), particularly for chronic conditions like asthma. Objective: To understand the potential of a portal-based asthma care management module in adolescent patients with asthma and evaluate its performance and usability. Methods: We completed semi-structured interviews to determine adolescent perceptions of a portal-based asthma care module and its potential for HCT. We prototype tested a portal-based asthma management module with adolescent patients (12–17 years old) with asthma for their upcoming pediatric pulmonary clinic visits and measured its performance and usability. We reported descriptive statistics for survey data, and content analysis for interviews. Results: Sixteen adolescents completed interviews. Most interviewees favored the idea of using a module before visits and believed it could help them with HCT. We identified five themes: adolescent familiarity with the patient portal, perceived benefits, perceived barriers, suggestions for usability, and perspectives on a portal module’s potential role in supporting their asthma and HCT readiness for asthma management. Eleven adolescents tested the module. The percentage of asthma data captured from the physician visit notes with the module was higher compared to notes without (93.1 % [95 % CI: 90.3, 95.3] vs. 74.6 % [95 % CI: 71.0,77.6], p < 0.005). The average System Usability Scale score of the module was 71 ± 9.6 (considered above average). Conclusions: Our findings support the potential of portal-based based management modules to be accepted by adolescents with asthma and to engage adolescents more in their own care. We will continue to iterate the module for this population. |
| format | Article |
| id | doaj-art-b4b6db8a41e14b0989f32e9b02e64484 |
| institution | DOAJ |
| issn | 2949-9232 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Health Care Transitions |
| spelling | doaj-art-b4b6db8a41e14b0989f32e9b02e644842025-08-20T03:07:12ZengElsevierHealth Care Transitions2949-92322025-01-01310011710.1016/j.hctj.2025.100117Potential of patient portals to enhance adolescent asthma care engagementEmma J. Clark, MSc0Whitney Chan1Emily Gao2Ilana Radparvar3Rong Guo, MS4Ana Gomez, BA5Nashica Hamm, BS6Dariush Kafashzadeh, MD7Gery W. Ryan, PhD8Mindy K. Ross, MD, MAS, MBA9Department of Pediatrics, UCLA Mattel Children's Hospital, University of California at Los Angeles, Los Angeles, California, USADepartment of Pediatrics, UCLA Mattel Children's Hospital, University of California at Los Angeles, Los Angeles, California, USADepartment of Pediatrics, UCLA Mattel Children's Hospital, University of California at Los Angeles, Los Angeles, California, USADepartment of Pediatrics, UCLA Mattel Children's Hospital, University of California at Los Angeles, Los Angeles, California, USADepartment of Medicine Statistics Core, David Geffen School of Medicine, University of California at Los Angeles, California, USAUniversity of California Los Angeles Health System, Information and Services Solutions, Los Angeles, California, USAUniversity of California Los Angeles Health System, Information and Services Solutions, Los Angeles, California, USADepartment of Pediatrics, UCLA Mattel Children's Hospital, University of California at Los Angeles, Los Angeles, California, USAKaiser Permanente Bernard J. Tyson School of Medicine, Pasadena, CA, United StatesDepartment of Pediatrics, UCLA Mattel Children's Hospital, University of California at Los Angeles, Los Angeles, California, USA; Correspondence to: 10833 Le Conte Ave MDCC 22-387B, Los Angeles, CA 90095, USA.Importance: Electronic health record-based patient portals hold promise for health care transition (HCT), particularly for chronic conditions like asthma. Objective: To understand the potential of a portal-based asthma care management module in adolescent patients with asthma and evaluate its performance and usability. Methods: We completed semi-structured interviews to determine adolescent perceptions of a portal-based asthma care module and its potential for HCT. We prototype tested a portal-based asthma management module with adolescent patients (12–17 years old) with asthma for their upcoming pediatric pulmonary clinic visits and measured its performance and usability. We reported descriptive statistics for survey data, and content analysis for interviews. Results: Sixteen adolescents completed interviews. Most interviewees favored the idea of using a module before visits and believed it could help them with HCT. We identified five themes: adolescent familiarity with the patient portal, perceived benefits, perceived barriers, suggestions for usability, and perspectives on a portal module’s potential role in supporting their asthma and HCT readiness for asthma management. Eleven adolescents tested the module. The percentage of asthma data captured from the physician visit notes with the module was higher compared to notes without (93.1 % [95 % CI: 90.3, 95.3] vs. 74.6 % [95 % CI: 71.0,77.6], p < 0.005). The average System Usability Scale score of the module was 71 ± 9.6 (considered above average). Conclusions: Our findings support the potential of portal-based based management modules to be accepted by adolescents with asthma and to engage adolescents more in their own care. We will continue to iterate the module for this population.http://www.sciencedirect.com/science/article/pii/S2949923225000236Health care transition (HCT)Adolescent asthmaPatient portal |
| spellingShingle | Emma J. Clark, MSc Whitney Chan Emily Gao Ilana Radparvar Rong Guo, MS Ana Gomez, BA Nashica Hamm, BS Dariush Kafashzadeh, MD Gery W. Ryan, PhD Mindy K. Ross, MD, MAS, MBA Potential of patient portals to enhance adolescent asthma care engagement Health Care Transitions Health care transition (HCT) Adolescent asthma Patient portal |
| title | Potential of patient portals to enhance adolescent asthma care engagement |
| title_full | Potential of patient portals to enhance adolescent asthma care engagement |
| title_fullStr | Potential of patient portals to enhance adolescent asthma care engagement |
| title_full_unstemmed | Potential of patient portals to enhance adolescent asthma care engagement |
| title_short | Potential of patient portals to enhance adolescent asthma care engagement |
| title_sort | potential of patient portals to enhance adolescent asthma care engagement |
| topic | Health care transition (HCT) Adolescent asthma Patient portal |
| url | http://www.sciencedirect.com/science/article/pii/S2949923225000236 |
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