Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study

A spinal cord injury is a life-changing experience that results in functional limitations and an increased risk of secondary health conditions. People with spinal cord injury identify pain as the most devastating health problem following their injury that not only affects their social life but their...

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Main Authors: Mokgadi Kholofelo Mashola, Elzette Korkie, Diphale Joyce Mothabeng
Format: Article
Language:English
Published: Wiley 2024-01-01
Series:Behavioural Neurology
Online Access:http://dx.doi.org/10.1155/2024/9081530
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author Mokgadi Kholofelo Mashola
Elzette Korkie
Diphale Joyce Mothabeng
author_facet Mokgadi Kholofelo Mashola
Elzette Korkie
Diphale Joyce Mothabeng
author_sort Mokgadi Kholofelo Mashola
collection DOAJ
description A spinal cord injury is a life-changing experience that results in functional limitations and an increased risk of secondary health conditions. People with spinal cord injury identify pain as the most devastating health problem following their injury that not only affects their social life but their mental well-being as well. This study is aimed at exploring the lived experience of living with pain by community-dwelling manual wheelchair users with spinal cord injuries. An explorative qualitative design was used to explore their experiences. In-depth interviews were recorded and transcribed, and the data were analysed using inductive thematic content analysis in the MAXQDA v2020. Fifteen manual wheelchair users with paraplegia participated in this study, and four themes were identified from their experience of living with pain: pain constantly lurks, pain is worse than the direct consequences of the SCI, pain is restrictive, and life continues despite the pain. Categories and subcategories included the participants being one with the pain; pain interfering with sleep; feelings of anger, isolation, and suicidal ideation; and uncertainties about what the future holds living with pain. Living with pain after SCI is a challenging feat, and effective management of pain is necessary to improve not only functioning and mobility but also mental health and life satisfaction.
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spelling doaj-art-b2f00febe29d4ae8aece39ef91d69e492025-08-20T02:23:27ZengWileyBehavioural Neurology1875-85842024-01-01202410.1155/2024/9081530Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative StudyMokgadi Kholofelo Mashola0Elzette Korkie1Diphale Joyce Mothabeng2Department of PhysiotherapyDepartment of PhysiotherapyDepartment of PhysiotherapyA spinal cord injury is a life-changing experience that results in functional limitations and an increased risk of secondary health conditions. People with spinal cord injury identify pain as the most devastating health problem following their injury that not only affects their social life but their mental well-being as well. This study is aimed at exploring the lived experience of living with pain by community-dwelling manual wheelchair users with spinal cord injuries. An explorative qualitative design was used to explore their experiences. In-depth interviews were recorded and transcribed, and the data were analysed using inductive thematic content analysis in the MAXQDA v2020. Fifteen manual wheelchair users with paraplegia participated in this study, and four themes were identified from their experience of living with pain: pain constantly lurks, pain is worse than the direct consequences of the SCI, pain is restrictive, and life continues despite the pain. Categories and subcategories included the participants being one with the pain; pain interfering with sleep; feelings of anger, isolation, and suicidal ideation; and uncertainties about what the future holds living with pain. Living with pain after SCI is a challenging feat, and effective management of pain is necessary to improve not only functioning and mobility but also mental health and life satisfaction.http://dx.doi.org/10.1155/2024/9081530
spellingShingle Mokgadi Kholofelo Mashola
Elzette Korkie
Diphale Joyce Mothabeng
Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study
Behavioural Neurology
title Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study
title_full Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study
title_fullStr Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study
title_full_unstemmed Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study
title_short Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study
title_sort exploring the experience of living with pain after spinal cord injury a qualitative study
url http://dx.doi.org/10.1155/2024/9081530
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