Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review

Objective To review systematically the evidence on the costs and cost-effectiveness of deinstitutionalisation for adults with intellectual disabilities.Design Systematic review.Population Adults (aged 18 years and over) with intellectual disabilities.Intervention Deinstitutionalisation, that is, the...

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Main Authors: Charles Normand, Mary McCarron, Esther Murphy, Peter May, Naoise Webb, Greg Sheaf, Philip McCallion, Roger Stancliffe, Valerie Smith, Richard Lombard Vance, Mary-Ann O'Donovan
Format: Article
Language:English
Published: BMJ Publishing Group 2019-09-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/9/9/e025736.full
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author Charles Normand
Mary McCarron
Esther Murphy
Peter May
Naoise Webb
Greg Sheaf
Philip McCallion
Roger Stancliffe
Valerie Smith
Richard Lombard Vance
Mary-Ann O'Donovan
author_facet Charles Normand
Mary McCarron
Esther Murphy
Peter May
Naoise Webb
Greg Sheaf
Philip McCallion
Roger Stancliffe
Valerie Smith
Richard Lombard Vance
Mary-Ann O'Donovan
author_sort Charles Normand
collection DOAJ
description Objective To review systematically the evidence on the costs and cost-effectiveness of deinstitutionalisation for adults with intellectual disabilities.Design Systematic review.Population Adults (aged 18 years and over) with intellectual disabilities.Intervention Deinstitutionalisation, that is, the move from institutional to community settings.Primary and secondary outcome measures Studies were eligible if evaluating within any cost-consequence framework (eg, cost-effectiveness analysis, cost–utility analysis) or resource use typically considered to fall within the societal viewpoint (eg, cost to payers, service-users, families and informal care costs).Search We searched MEDLINE, PsycINFO, CENTRAL, CINAHL, EconLit, Embase and Scopus to September 2017 and supplemented this with grey literature searches and handsearching of the references of the eligible studies. We assessed study quality using the Critical Appraisals Skills Programme suite of tools, excluding those judged to be of poor methodological quality.Results Two studies were included; both were cohort studies from the payer perspective of people leaving long-stay National Health Service hospitals in the UK between 1984 and 1992. One study found that deinstitutionalisation reduced costs, one study found an increase in costs.Conclusion A wide-ranging literature review found limited evidence on costs associated with deinstitutionalisation for people with intellectual disabilities. From two studies included in the review, the results were conflicting. Significant gaps in the evidence base were observable, particularly with respect to priority populations in contemporary policy: older people with intellectual disabilities and serious medical illness, and younger people with very complex needs and challenging behaviours.PROSPERO registration number CRD42018077406
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spelling doaj-art-b2bdc55450e247df9668f6848df8202d2025-08-20T02:01:57ZengBMJ Publishing GroupBMJ Open2044-60552019-09-019910.1136/bmjopen-2018-025736Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic reviewCharles Normand0Mary McCarron1Esther Murphy2Peter May3Naoise Webb4Greg Sheaf5Philip McCallion6Roger Stancliffe7Valerie Smith8Richard Lombard Vance9Mary-Ann O'Donovan10Centre for Health Policy and Management, The University of Dublin Trinity College, Dublin, Ireland7 School of Nursing & Midwifery, University of Dublin Trinity College, Dublin, Ireland3 School of Nursing and Midwifery, Trinity College Dublin, University of Dublin, Dublin, Ireland1 Centre for Health Policy and Management, Trinity College Dublin, University of Dublin, Dublin, Ireland5 National Learning Network, Institute of Technology Blanchardstown, Dublin, Ireland6 The Library of Trinity College Dublin, University of Dublin, Dublin, Ireland7 College of Public Health, Temple University, Philadelphia, Pennsylvania, USA9 Faculty of Health Sciences, University of Sydney, Sydney, New South Wales, AustraliaDurham Veterans Affairs Hospital, Durham, North Carolina, USA3 School of Nursing and Midwifery, Trinity College Dublin, University of Dublin, Dublin, Ireland4 Centre for People with Intellectual Disabilities, Trinity College Dublin, University of Dublin, Dublin, IrelandObjective To review systematically the evidence on the costs and cost-effectiveness of deinstitutionalisation for adults with intellectual disabilities.Design Systematic review.Population Adults (aged 18 years and over) with intellectual disabilities.Intervention Deinstitutionalisation, that is, the move from institutional to community settings.Primary and secondary outcome measures Studies were eligible if evaluating within any cost-consequence framework (eg, cost-effectiveness analysis, cost–utility analysis) or resource use typically considered to fall within the societal viewpoint (eg, cost to payers, service-users, families and informal care costs).Search We searched MEDLINE, PsycINFO, CENTRAL, CINAHL, EconLit, Embase and Scopus to September 2017 and supplemented this with grey literature searches and handsearching of the references of the eligible studies. We assessed study quality using the Critical Appraisals Skills Programme suite of tools, excluding those judged to be of poor methodological quality.Results Two studies were included; both were cohort studies from the payer perspective of people leaving long-stay National Health Service hospitals in the UK between 1984 and 1992. One study found that deinstitutionalisation reduced costs, one study found an increase in costs.Conclusion A wide-ranging literature review found limited evidence on costs associated with deinstitutionalisation for people with intellectual disabilities. From two studies included in the review, the results were conflicting. Significant gaps in the evidence base were observable, particularly with respect to priority populations in contemporary policy: older people with intellectual disabilities and serious medical illness, and younger people with very complex needs and challenging behaviours.PROSPERO registration number CRD42018077406https://bmjopen.bmj.com/content/9/9/e025736.full
spellingShingle Charles Normand
Mary McCarron
Esther Murphy
Peter May
Naoise Webb
Greg Sheaf
Philip McCallion
Roger Stancliffe
Valerie Smith
Richard Lombard Vance
Mary-Ann O'Donovan
Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review
BMJ Open
title Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review
title_full Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review
title_fullStr Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review
title_full_unstemmed Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review
title_short Effect of deinstitutionalisation for adults with intellectual disabilities on costs: a systematic review
title_sort effect of deinstitutionalisation for adults with intellectual disabilities on costs a systematic review
url https://bmjopen.bmj.com/content/9/9/e025736.full
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