A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer
A child’s cancer diagnosis profoundly impacts the psychological well-being of parents. To alleviate parental distress, researchers developed <i>Taking Back Control Together</i> (TBCT), a manualized six-session program targeting individual problem-solving skills and dyadic coping. The cur...
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MDPI AG
2025-04-01
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| Series: | Current Oncology |
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| Online Access: | https://www.mdpi.com/1718-7729/32/5/253 |
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| author | Nikita Guarascio Ariane Levesque David Ogez Valérie Marcil Daniel Curnier Véronique Bélanger Émélie Rondeau Katherine Péloquin Caroline Laverdière Raoul Santiago Josée Brossard Stéphanie Vairy Serge Sultan The TBCT-Québec Team |
| author_facet | Nikita Guarascio Ariane Levesque David Ogez Valérie Marcil Daniel Curnier Véronique Bélanger Émélie Rondeau Katherine Péloquin Caroline Laverdière Raoul Santiago Josée Brossard Stéphanie Vairy Serge Sultan The TBCT-Québec Team |
| author_sort | Nikita Guarascio |
| collection | DOAJ |
| description | A child’s cancer diagnosis profoundly impacts the psychological well-being of parents. To alleviate parental distress, researchers developed <i>Taking Back Control Together</i> (TBCT), a manualized six-session program targeting individual problem-solving skills and dyadic coping. The current study aimed to refine TBCT for future uptake across different sites. We invited potential interventionists and local stakeholders from three pediatric oncology centers (CHU Sainte-Justine, CHU de Sherbrooke, and CHU de Québec) to join the refinement team. The final working team comprised 26 professionals, including social workers, psychologists, researchers, coordinators, and parent-partners. The study included eight 50- to 90-min discussion sessions designed to stimulate conversation and facilitate the exchange of ideas and perspectives. We used framework analysis to identify and describe patterns within the qualitative data. The data were organized into three categories: (1) intervention description, which addresses changes in personnel, modes of delivery, and tailoring to accommodate different family structures; (2) content modifications, which include language simplification and visual enhancements; and (3) factors influencing TBCT’s future uptake, such as accessibility, participant satisfaction, clinician compensation, and flexibility in program delivery. The direct output of this research is a refined program with an updated manual, tools, and format adapted for use in different sites. |
| format | Article |
| id | doaj-art-b284da07883e4b839b331b917b02ba28 |
| institution | Kabale University |
| issn | 1198-0052 1718-7729 |
| language | English |
| publishDate | 2025-04-01 |
| publisher | MDPI AG |
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| series | Current Oncology |
| spelling | doaj-art-b284da07883e4b839b331b917b02ba282025-08-20T03:47:49ZengMDPI AGCurrent Oncology1198-00521718-77292025-04-0132525310.3390/curroncol32050253A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood CancerNikita Guarascio0Ariane Levesque1David Ogez2Valérie Marcil3Daniel Curnier4Véronique Bélanger5Émélie Rondeau6Katherine Péloquin7Caroline Laverdière8Raoul Santiago9Josée Brossard10Stéphanie Vairy11Serge Sultan12The TBCT-Québec TeamDepartment of Psychology, Université de Montréal, Montreal, QC H2V 2S9, CanadaDepartment of Psychology, Université de Montréal, Montreal, QC H2V 2S9, CanadaDepartment of Psychology, Université de Montréal, Montreal, QC H2V 2S9, CanadaAzrieli Research Center, CHU Sainte-Justine, Montreal, QC H3T 1C5, CanadaAzrieli Research Center, CHU Sainte-Justine, Montreal, QC H3T 1C5, CanadaAzrieli Research Center, CHU Sainte-Justine, Montreal, QC H3T 1C5, CanadaAzrieli Research Center, CHU Sainte-Justine, Montreal, QC H3T 1C5, CanadaDepartment of Psychology, Université de Montréal, Montreal, QC H2V 2S9, CanadaAzrieli Research Center, CHU Sainte-Justine, Montreal, QC H3T 1C5, CanadaDepartment of Pediatrics, CHU de Québec, Université Laval, Québec City, QC G1V 0A6, CanadaDepartment of Pediatrics, Université de Sherbrooke, Sherbrooke, QC J1N 3C6, CanadaDepartment of Pediatrics, Université de Sherbrooke, Sherbrooke, QC J1N 3C6, CanadaDepartment of Psychology, Université de Montréal, Montreal, QC H2V 2S9, CanadaA child’s cancer diagnosis profoundly impacts the psychological well-being of parents. To alleviate parental distress, researchers developed <i>Taking Back Control Together</i> (TBCT), a manualized six-session program targeting individual problem-solving skills and dyadic coping. The current study aimed to refine TBCT for future uptake across different sites. We invited potential interventionists and local stakeholders from three pediatric oncology centers (CHU Sainte-Justine, CHU de Sherbrooke, and CHU de Québec) to join the refinement team. The final working team comprised 26 professionals, including social workers, psychologists, researchers, coordinators, and parent-partners. The study included eight 50- to 90-min discussion sessions designed to stimulate conversation and facilitate the exchange of ideas and perspectives. We used framework analysis to identify and describe patterns within the qualitative data. The data were organized into three categories: (1) intervention description, which addresses changes in personnel, modes of delivery, and tailoring to accommodate different family structures; (2) content modifications, which include language simplification and visual enhancements; and (3) factors influencing TBCT’s future uptake, such as accessibility, participant satisfaction, clinician compensation, and flexibility in program delivery. The direct output of this research is a refined program with an updated manual, tools, and format adapted for use in different sites.https://www.mdpi.com/1718-7729/32/5/253pediatric cancerparental distressproblem-solvingdyadic copingintervention developmentintervention refinement |
| spellingShingle | Nikita Guarascio Ariane Levesque David Ogez Valérie Marcil Daniel Curnier Véronique Bélanger Émélie Rondeau Katherine Péloquin Caroline Laverdière Raoul Santiago Josée Brossard Stéphanie Vairy Serge Sultan The TBCT-Québec Team A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer Current Oncology pediatric cancer parental distress problem-solving dyadic coping intervention development intervention refinement |
| title | A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer |
| title_full | A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer |
| title_fullStr | A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer |
| title_full_unstemmed | A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer |
| title_short | A Multi-Site Refinement Study of <i>Taking Back Control Together</i>, an Intervention to Support Parents Confronted with Childhood Cancer |
| title_sort | multi site refinement study of i taking back control together i an intervention to support parents confronted with childhood cancer |
| topic | pediatric cancer parental distress problem-solving dyadic coping intervention development intervention refinement |
| url | https://www.mdpi.com/1718-7729/32/5/253 |
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