Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. This article outlines methodological considerations a...

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Main Authors: Renee C. Edwards, Elizabeth M. Planalp, Michelle Bosquet Enlow, Natacha Akshoomoff, Stefanie C. Bodison, Marianne B. Brennan, Lucia Ciciolla, Rina D. Eiden, Courtney A. Fillipi, Hanna C. Gustafsson, Lorraine M. McKelvey, Amanda S. Morris, Myriam Peralta-Carcelén, Julie Poehlmann, Lauren S. Wakschlag, Sylia Wilson
Format: Article
Language:English
Published: Elsevier 2024-10-01
Series:Developmental Cognitive Neuroscience
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Online Access:http://www.sciencedirect.com/science/article/pii/S1878929324000835
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author Renee C. Edwards
Elizabeth M. Planalp
Michelle Bosquet Enlow
Natacha Akshoomoff
Stefanie C. Bodison
Marianne B. Brennan
Lucia Ciciolla
Rina D. Eiden
Courtney A. Fillipi
Hanna C. Gustafsson
Lorraine M. McKelvey
Amanda S. Morris
Myriam Peralta-Carcelén
Julie Poehlmann
Lauren S. Wakschlag
Sylia Wilson
author_facet Renee C. Edwards
Elizabeth M. Planalp
Michelle Bosquet Enlow
Natacha Akshoomoff
Stefanie C. Bodison
Marianne B. Brennan
Lucia Ciciolla
Rina D. Eiden
Courtney A. Fillipi
Hanna C. Gustafsson
Lorraine M. McKelvey
Amanda S. Morris
Myriam Peralta-Carcelén
Julie Poehlmann
Lauren S. Wakschlag
Sylia Wilson
author_sort Renee C. Edwards
collection DOAJ
description The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. This article outlines methodological considerations and the decision-making process for measurement selection for child behavior, parenting/caregiver-child interactions, and the family/home environment for HBCD. The decision-making process is detailed, including formation of a national workgroup (WG-BEH) that focused on developmentally appropriate measures that take a rigorous and equitable approach and aligned with HBCD objectives. Multi-level-observational and caregiver-report measures were deemed necessary for capturing the desired constructs across multiple contexts while balancing the nuance of observational data with pragmatic considerations. WG-BEH prioritized developmentally sensitive, validated assessments with psychometrics supporting use in diverse populations and focused on mechanistic linkages and prediction of desired constructs. Other considerations included participant burden and retention, staff training needs, and cultural sensitivity. Innovation was permitted when it was grounded in evidence and filled key gaps. Finally, this article describes the rationale for the selected constructs (e.g., temperament, social-emotional development, parenting behaviors, family organization) and corresponding measures chosen for HBCD visits from early infancy through 17 months of age.
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spelling doaj-art-b208cce630784d0da7876b6bc98a63fc2025-08-20T01:55:21ZengElsevierDevelopmental Cognitive Neuroscience1878-92932024-10-016910142210.1016/j.dcn.2024.101422Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approachRenee C. Edwards0Elizabeth M. Planalp1Michelle Bosquet Enlow2Natacha Akshoomoff3Stefanie C. Bodison4Marianne B. Brennan5Lucia Ciciolla6Rina D. Eiden7Courtney A. Fillipi8Hanna C. Gustafsson9Lorraine M. McKelvey10Amanda S. Morris11Myriam Peralta-Carcelén12Julie Poehlmann13Lauren S. Wakschlag14Sylia Wilson15Corresponding author.; Northwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USANorthwestern University, Feinberg School of Medicine, 625 N. Michigan Ave, Suite 2400, Chicago, IL 60611, USAThe HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. This article outlines methodological considerations and the decision-making process for measurement selection for child behavior, parenting/caregiver-child interactions, and the family/home environment for HBCD. The decision-making process is detailed, including formation of a national workgroup (WG-BEH) that focused on developmentally appropriate measures that take a rigorous and equitable approach and aligned with HBCD objectives. Multi-level-observational and caregiver-report measures were deemed necessary for capturing the desired constructs across multiple contexts while balancing the nuance of observational data with pragmatic considerations. WG-BEH prioritized developmentally sensitive, validated assessments with psychometrics supporting use in diverse populations and focused on mechanistic linkages and prediction of desired constructs. Other considerations included participant burden and retention, staff training needs, and cultural sensitivity. Innovation was permitted when it was grounded in evidence and filled key gaps. Finally, this article describes the rationale for the selected constructs (e.g., temperament, social-emotional development, parenting behaviors, family organization) and corresponding measures chosen for HBCD visits from early infancy through 17 months of age.http://www.sciencedirect.com/science/article/pii/S1878929324000835HBCDParentingSocioemotional developmentCaregiver-child interactionsHome environmentInfant development
spellingShingle Renee C. Edwards
Elizabeth M. Planalp
Michelle Bosquet Enlow
Natacha Akshoomoff
Stefanie C. Bodison
Marianne B. Brennan
Lucia Ciciolla
Rina D. Eiden
Courtney A. Fillipi
Hanna C. Gustafsson
Lorraine M. McKelvey
Amanda S. Morris
Myriam Peralta-Carcelén
Julie Poehlmann
Lauren S. Wakschlag
Sylia Wilson
Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach
Developmental Cognitive Neuroscience
HBCD
Parenting
Socioemotional development
Caregiver-child interactions
Home environment
Infant development
title Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach
title_full Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach
title_fullStr Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach
title_full_unstemmed Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach
title_short Capturing the complexity of child behavior and caregiver-child interactions in the HEALthy Brain and Child Development (HBCD) Study using a rigorous and equitable approach
title_sort capturing the complexity of child behavior and caregiver child interactions in the healthy brain and child development hbcd study using a rigorous and equitable approach
topic HBCD
Parenting
Socioemotional development
Caregiver-child interactions
Home environment
Infant development
url http://www.sciencedirect.com/science/article/pii/S1878929324000835
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