Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study

Abstract Background Weaning from mechanical ventilation (MV) and tracheal cannula (TC) during neurological early rehabilitation (NER) is mostly successful. However, some patients leave NER with TC/MV, requiring home-based specialized intensive care nursing (HSICN). Data on medical and demographic ch...

Full description

Saved in:
Bibliographic Details
Main Authors: Bernadette Einhäupl, Danae Götze, Stephanie Reichl, Lina Willacker, Romy Pletz, Thomas Kohlmann, Esther Henning, Lena Schmeyers, Andreas Straube, Rebekka Süss, Steffen Fleßa, Simone Schmidt, Jens D. Rollnik, Friedemann Müller, Aukje Bartsch-de Jong, Svenja Blömeke, Jennifer Hartl, Nuria Vallejo, Daniel Liedert, Thomas Olander, Volker Ziegler, Renate Weinhardt, Felix Schlachetzki, Tatjana Groß, Susanne Hirmer, Lea Dillbaner, Lisa Kleinlein, Thomas Platz, Andreas Bender
Format: Article
Language:English
Published: BMC 2025-05-01
Series:Neurological Research and Practice
Subjects:
Online Access:https://doi.org/10.1186/s42466-025-00384-1
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1850268541595418624
author Bernadette Einhäupl
Danae Götze
Stephanie Reichl
Lina Willacker
Romy Pletz
Thomas Kohlmann
Esther Henning
Lena Schmeyers
Andreas Straube
Rebekka Süss
Steffen Fleßa
Simone Schmidt
Jens D. Rollnik
Friedemann Müller
Aukje Bartsch-de Jong
Svenja Blömeke
Jennifer Hartl
Nuria Vallejo
Daniel Liedert
Thomas Olander
Volker Ziegler
Renate Weinhardt
Felix Schlachetzki
Tatjana Groß
Susanne Hirmer
Lea Dillbaner
Lisa Kleinlein
Thomas Platz
Andreas Bender
author_facet Bernadette Einhäupl
Danae Götze
Stephanie Reichl
Lina Willacker
Romy Pletz
Thomas Kohlmann
Esther Henning
Lena Schmeyers
Andreas Straube
Rebekka Süss
Steffen Fleßa
Simone Schmidt
Jens D. Rollnik
Friedemann Müller
Aukje Bartsch-de Jong
Svenja Blömeke
Jennifer Hartl
Nuria Vallejo
Daniel Liedert
Thomas Olander
Volker Ziegler
Renate Weinhardt
Felix Schlachetzki
Tatjana Groß
Susanne Hirmer
Lea Dillbaner
Lisa Kleinlein
Thomas Platz
Andreas Bender
author_sort Bernadette Einhäupl
collection DOAJ
description Abstract Background Weaning from mechanical ventilation (MV) and tracheal cannula (TC) during neurological early rehabilitation (NER) is mostly successful. However, some patients leave NER with TC/MV, requiring home-based specialized intensive care nursing (HSICN). Data on medical and demographic characteristics and long-term outcomes of these patients are limited. Methods A multicentric retrospective observational study across five German NER hospitals collected data from neurological patients with TC/MV at discharge. The study aimed to assess patients’ health status at NER discharge, and to identify predictors of post-discharge survival. Survival rates were analyzed using Kaplan-Meier estimates; further predictors of survival post-discharge were analyzed using Cox regression. Results Among 312 patients, the one-year survival rate was 61.9%, decreasing to 38.1% after approximately 4 years. Older age, higher overall morbidity and discharge with MV were associated with an increased likelihood of death, while a longer stay in NER correlated with survival. Conclusions Patients requiring HSICN after discharge from NER have a high mortality rate. Identifying survival predictors may help to identify patients at risk, and thus could be integrated into the decision-making process for NER discharge. The high mortality post-discharge warrants an evaluation of the current post-hospital care model. Optimizing therapeutic care in the HSICN setting may have the potential to reduce mortality and neuro-disability, and enhance the quality of life in these neurologically severely affected patients. Trial registration The trial OptiNIV - Retrospective study of post-hospital intensive care in neurological patients has been retrospectively registered in the German Clinical Trials Register (DRKS) since 28.10.2022 with the ID DRKS00030580.
format Article
id doaj-art-b1cbacb842e548c7b13f4430ab2fa503
institution OA Journals
issn 2524-3489
language English
publishDate 2025-05-01
publisher BMC
record_format Article
series Neurological Research and Practice
spelling doaj-art-b1cbacb842e548c7b13f4430ab2fa5032025-08-20T01:53:26ZengBMCNeurological Research and Practice2524-34892025-05-01711810.1186/s42466-025-00384-1Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German studyBernadette Einhäupl0Danae Götze1Stephanie Reichl2Lina Willacker3Romy Pletz4Thomas Kohlmann5Esther Henning6Lena Schmeyers7Andreas Straube8Rebekka Süss9Steffen Fleßa10Simone Schmidt11Jens D. Rollnik12Friedemann Müller13Aukje Bartsch-de Jong14Svenja Blömeke15Jennifer Hartl16Nuria Vallejo17Daniel Liedert18Thomas Olander19Volker Ziegler20Renate Weinhardt21Felix Schlachetzki22Tatjana Groß23Susanne Hirmer24Lea Dillbaner25Lisa Kleinlein26Thomas Platz27Andreas Bender28Department of Neurology, LMU University Hospital, LMU MunichDepartment of Neurology, LMU University Hospital, LMU MunichNeurorehabilitation Research Group, Faculty of Medicine, University of GreifswaldDepartment of Neurology, LMU University Hospital, LMU MunichNeurorehabilitation Research Group, Faculty of Medicine, University of GreifswaldInstitute for Community Medicine, Department Methods of Community Medicine, University Medicine GreifswaldInstitute for Community Medicine, Department Methods of Community Medicine, University Medicine GreifswaldFaculty of Law and Economics, Chair of General Business Administration and Health Care Management, University GreifswaldDepartment of Neurology, LMU University Hospital, LMU MunichFaculty of Law and Economics, Chair of General Business Administration and Health Care Management, University GreifswaldFaculty of Law and Economics, Chair of General Business Administration and Health Care Management, University GreifswaldInstitute for Neurorehabilitation Research (InFo), BDH-Clinic Hessisch Oldendorf, Affiliated Institute of Hannover Medical SchoolInstitute for Neurorehabilitation Research (InFo), BDH-Clinic Hessisch Oldendorf, Affiliated Institute of Hannover Medical SchoolSchön Clinic Bad Aibling-HarthausenSchön Clinic Bad Aibling-HarthausenSchön Clinic Bad Aibling-HarthausenSchön Clinic Bad Aibling-HarthausenTherapiezentrum Burgau, Hospital for Neurological RehabilitationTherapiezentrum Burgau, Hospital for Neurological RehabilitationTherapiezentrum Burgau, Hospital for Neurological RehabilitationHospital for Neurological Rehabilitation, Rhön-ClinicHospital for Neurological Rehabilitation, Rhön-ClinicDepartment of Neurology, Centre of Vascular Neurology and Intensive Care, medbo Bezirksklinikum Regensburg, University of RegensburgDepartment of Neurology, Centre of Vascular Neurology and Intensive Care, medbo Bezirksklinikum Regensburg, University of RegensburgDepartment of Neurology, Centre of Vascular Neurology and Intensive Care, medbo Bezirksklinikum Regensburg, University of RegensburgDepartment of Neurology, Centre of Vascular Neurology and Intensive Care, medbo Bezirksklinikum Regensburg, University of RegensburgStatistical Consulting StaBLab, Department of Statistics, LMU MunichNeurorehabilitation Research Group, Faculty of Medicine, University of GreifswaldDepartment of Neurology, LMU University Hospital, LMU MunichAbstract Background Weaning from mechanical ventilation (MV) and tracheal cannula (TC) during neurological early rehabilitation (NER) is mostly successful. However, some patients leave NER with TC/MV, requiring home-based specialized intensive care nursing (HSICN). Data on medical and demographic characteristics and long-term outcomes of these patients are limited. Methods A multicentric retrospective observational study across five German NER hospitals collected data from neurological patients with TC/MV at discharge. The study aimed to assess patients’ health status at NER discharge, and to identify predictors of post-discharge survival. Survival rates were analyzed using Kaplan-Meier estimates; further predictors of survival post-discharge were analyzed using Cox regression. Results Among 312 patients, the one-year survival rate was 61.9%, decreasing to 38.1% after approximately 4 years. Older age, higher overall morbidity and discharge with MV were associated with an increased likelihood of death, while a longer stay in NER correlated with survival. Conclusions Patients requiring HSICN after discharge from NER have a high mortality rate. Identifying survival predictors may help to identify patients at risk, and thus could be integrated into the decision-making process for NER discharge. The high mortality post-discharge warrants an evaluation of the current post-hospital care model. Optimizing therapeutic care in the HSICN setting may have the potential to reduce mortality and neuro-disability, and enhance the quality of life in these neurologically severely affected patients. Trial registration The trial OptiNIV - Retrospective study of post-hospital intensive care in neurological patients has been retrospectively registered in the German Clinical Trials Register (DRKS) since 28.10.2022 with the ID DRKS00030580.https://doi.org/10.1186/s42466-025-00384-1RehabilitationWeaningSurvival rateTracheal cannulaMechanical ventilationStroke
spellingShingle Bernadette Einhäupl
Danae Götze
Stephanie Reichl
Lina Willacker
Romy Pletz
Thomas Kohlmann
Esther Henning
Lena Schmeyers
Andreas Straube
Rebekka Süss
Steffen Fleßa
Simone Schmidt
Jens D. Rollnik
Friedemann Müller
Aukje Bartsch-de Jong
Svenja Blömeke
Jennifer Hartl
Nuria Vallejo
Daniel Liedert
Thomas Olander
Volker Ziegler
Renate Weinhardt
Felix Schlachetzki
Tatjana Groß
Susanne Hirmer
Lea Dillbaner
Lisa Kleinlein
Thomas Platz
Andreas Bender
Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study
Neurological Research and Practice
Rehabilitation
Weaning
Survival rate
Tracheal cannula
Mechanical ventilation
Stroke
title Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study
title_full Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study
title_fullStr Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study
title_full_unstemmed Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study
title_short Long-term outcomes of community-based intensive care treatment following neurological early rehabilitation– results of a multicentric German study
title_sort long term outcomes of community based intensive care treatment following neurological early rehabilitation results of a multicentric german study
topic Rehabilitation
Weaning
Survival rate
Tracheal cannula
Mechanical ventilation
Stroke
url https://doi.org/10.1186/s42466-025-00384-1
work_keys_str_mv AT bernadetteeinhaupl longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT danaegotze longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT stephaniereichl longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT linawillacker longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT romypletz longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT thomaskohlmann longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT estherhenning longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT lenaschmeyers longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT andreasstraube longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT rebekkasuss longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT steffenfleßa longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT simoneschmidt longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT jensdrollnik longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT friedemannmuller longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT aukjebartschdejong longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT svenjablomeke longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT jenniferhartl longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT nuriavallejo longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT danielliedert longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT thomasolander longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT volkerziegler longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT renateweinhardt longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT felixschlachetzki longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT tatjanagroß longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT susannehirmer longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT leadillbaner longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT lisakleinlein longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT thomasplatz longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy
AT andreasbender longtermoutcomesofcommunitybasedintensivecaretreatmentfollowingneurologicalearlyrehabilitationresultsofamulticentricgermanstudy