A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review

The KBG syndrome (KBGS) affects several systems caused by the mutation of the ANKRD11 gene. The main manifestations of KGBS included hearing loss, feeding difficulties, craniofacial abnormalities, tooth deformity, and developmental delay (delayed overall development, convulsions, and intellectual ab...

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Main Authors: Jie Gao, Ruiqin Wang, Zhen Pan, Ruolan Hu, Mingyan Jiang, Jinrong Li
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-06-01
Series:Frontiers in Pediatrics
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Online Access:https://www.frontiersin.org/articles/10.3389/fped.2025.1565261/full
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author Jie Gao
Jie Gao
Ruiqin Wang
Zhen Pan
Zhen Pan
Ruolan Hu
Ruolan Hu
Mingyan Jiang
Mingyan Jiang
Jinrong Li
Jinrong Li
author_facet Jie Gao
Jie Gao
Ruiqin Wang
Zhen Pan
Zhen Pan
Ruolan Hu
Ruolan Hu
Mingyan Jiang
Mingyan Jiang
Jinrong Li
Jinrong Li
author_sort Jie Gao
collection DOAJ
description The KBG syndrome (KBGS) affects several systems caused by the mutation of the ANKRD11 gene. The main manifestations of KGBS included hearing loss, feeding difficulties, craniofacial abnormalities, tooth deformity, and developmental delay (delayed overall development, convulsions, and intellectual abnormalities). Only 10%–26% of patients with KBG syndrome have congenital heart disease, including atrial and ventricular septal defects. Here, we report a case of KBG syndrome in a preterm newborn with low birth weight, a huge ventricular septal defect, and a congenital chylothorax. Whole-exome sequencing detected an ANKRD11 gene mutation in the infant. The finding expands the understanding of the clinical and genetic phenotype. The multidisciplinary consultation of the complex KGB syndrome including interventional occlusion, nutritional management, and rehabilitation training can improve the prognosis and outcome.
format Article
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institution OA Journals
issn 2296-2360
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publishDate 2025-06-01
publisher Frontiers Media S.A.
record_format Article
series Frontiers in Pediatrics
spelling doaj-art-b10eda68034e466796b61e2d5ab0946b2025-08-20T02:33:00ZengFrontiers Media S.A.Frontiers in Pediatrics2296-23602025-06-011310.3389/fped.2025.15652611565261A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature reviewJie Gao0Jie Gao1Ruiqin Wang2Zhen Pan3Zhen Pan4Ruolan Hu5Ruolan Hu6Mingyan Jiang7Mingyan Jiang8Jinrong Li9Jinrong Li10Department of Pediatrics, West China Second University Hospital, Sichuan University, Chengdu, Sichuan, ChinaKey Laboratory of Birth Defects and Related Diseases of Women and Children, Ministry of Education, Sichuan University, Chengdu, Sichuan, ChinaMedical College, Mudanjiang Medical University, Mudanjiang, Heilongjiang, ChinaDepartment of Pediatrics, West China Second University Hospital, Sichuan University, Chengdu, Sichuan, ChinaWest China School of Medicine, Sichuan University, Chengdu, Sichuan, ChinaDepartment of Pediatrics, West China Second University Hospital, Sichuan University, Chengdu, Sichuan, ChinaWest China School of Medicine, Sichuan University, Chengdu, Sichuan, ChinaDepartment of Pediatrics, West China Second University Hospital, Sichuan University, Chengdu, Sichuan, ChinaKey Laboratory of Birth Defects and Related Diseases of Women and Children, Ministry of Education, Sichuan University, Chengdu, Sichuan, ChinaDepartment of Pediatrics, West China Second University Hospital, Sichuan University, Chengdu, Sichuan, ChinaKey Laboratory of Birth Defects and Related Diseases of Women and Children, Ministry of Education, Sichuan University, Chengdu, Sichuan, ChinaThe KBG syndrome (KBGS) affects several systems caused by the mutation of the ANKRD11 gene. The main manifestations of KGBS included hearing loss, feeding difficulties, craniofacial abnormalities, tooth deformity, and developmental delay (delayed overall development, convulsions, and intellectual abnormalities). Only 10%–26% of patients with KBG syndrome have congenital heart disease, including atrial and ventricular septal defects. Here, we report a case of KBG syndrome in a preterm newborn with low birth weight, a huge ventricular septal defect, and a congenital chylothorax. Whole-exome sequencing detected an ANKRD11 gene mutation in the infant. The finding expands the understanding of the clinical and genetic phenotype. The multidisciplinary consultation of the complex KGB syndrome including interventional occlusion, nutritional management, and rehabilitation training can improve the prognosis and outcome.https://www.frontiersin.org/articles/10.3389/fped.2025.1565261/fullANKRD11congenital chylothoraxKBG syndromeprematureheterozygous mutation
spellingShingle Jie Gao
Jie Gao
Ruiqin Wang
Zhen Pan
Zhen Pan
Ruolan Hu
Ruolan Hu
Mingyan Jiang
Mingyan Jiang
Jinrong Li
Jinrong Li
A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review
Frontiers in Pediatrics
ANKRD11
congenital chylothorax
KBG syndrome
premature
heterozygous mutation
title A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review
title_full A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review
title_fullStr A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review
title_full_unstemmed A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review
title_short A novel heterozygous mutation of ANKRD11 causes KBG syndrome in a preterm neonate: a case report and literature review
title_sort novel heterozygous mutation of ankrd11 causes kbg syndrome in a preterm neonate a case report and literature review
topic ANKRD11
congenital chylothorax
KBG syndrome
premature
heterozygous mutation
url https://www.frontiersin.org/articles/10.3389/fped.2025.1565261/full
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