From Policy to Practice: A Delphi Protocol on Life Projects for Autistic Adults
This study presents a research protocol employing the Delphi method to develop a consensus-based definition of the Life Project (LP) for autistic adults in the Italian context. LPs, conceived as individualized, person-centered plans, aim to promote autonomy, social inclusion, and quality of life thr...
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| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2025-06-01
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| Series: | International Journal of Qualitative Methods |
| Online Access: | https://doi.org/10.1177/16094069251357766 |
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| Summary: | This study presents a research protocol employing the Delphi method to develop a consensus-based definition of the Life Project (LP) for autistic adults in the Italian context. LPs, conceived as individualized, person-centered plans, aim to promote autonomy, social inclusion, and quality of life through coordinated health and social care interventions. Despite recent legislative and policy advancements in Italy a unified operational definition and implementation framework for LPs remains lacking. The protocol outlines a three-round Delphi process engaging a panel of 50–80 experts across clinical, social, legislative, and experiential domains. The initial survey will elicit qualitative data regarding current practices, challenges, and priorities in LP development. Second and third rounds will refine emerging themes and evaluate consensus using Likert-scale ratings, with consensus defined as ≥80% agreement. Data will be analyzed through thematic and descriptive statistical methods. The study has received ethical approval from the Comitato Etico di Ateneo per la Ricerca of the University of Modena and Reggio Emilia (Protocol Approvation No. 46821; 17 March 2025). This protocol research is expected to produce a structured and actionable definition of the LP, as well as a consensus-based set of practices and principles to guide implementation. By involving stakeholders from diverse regions and disciplines, the study ensures ecological validity and responsiveness to local service delivery contexts. The outcomes aim to support LP practices across Italy and inform future research on their impact on the well-being of autistic adults. |
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| ISSN: | 1609-4069 |