Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease

Self-care management is an important part of living with a chronic illness. Sickle cell disease (SCD) is a chronic disease with acute, painful exacerbations that often results in a shortened life expectancy. Some middle-aged and older adults with SCD lived with the disease prior to having a diagnosi...

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Main Authors: Coretta M. Jenerette, Cheryl Brewer, Ashley N. Leak
Format: Article
Language:English
Published: Wiley 2011-01-01
Series:Nursing Research and Practice
Online Access:http://dx.doi.org/10.1155/2011/270594
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author Coretta M. Jenerette
Cheryl Brewer
Ashley N. Leak
author_facet Coretta M. Jenerette
Cheryl Brewer
Ashley N. Leak
author_sort Coretta M. Jenerette
collection DOAJ
description Self-care management is an important part of living with a chronic illness. Sickle cell disease (SCD) is a chronic disease with acute, painful exacerbations that often results in a shortened life expectancy. Some middle-aged and older adults with SCD lived with the disease prior to having a diagnosis and without modern advances. The purpose of this study is to share the self-care recommendations of middle-aged and older adults with SCD. Using descriptive qualitative methods, data were gathered through semistructured interviews from 11 individuals living with SCD, including 6 women and 5 men. Self-care recommendations themes included physiological, psychological, and provider-related. The self-care recommendations may be seen as an additional resource or “words of wisdom” for younger adults with SCD who can use the recommendations to better manage their own disease. Additionally, providers may be able to use these recommendations to inform their practice.
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spelling doaj-art-aef0944b0e45499c80238df6f5c6cf572025-08-20T03:39:04ZengWileyNursing Research and Practice2090-14292090-14372011-01-01201110.1155/2011/270594270594Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell DiseaseCoretta M. Jenerette0Cheryl Brewer1Ashley N. Leak2School of Nursing, The University of North Carolina at Chapel Hill, Campus Box 7460, Chapel Hill, NC 27599-7460, USASchool of Nursing, The University of North Carolina at Chapel Hill, Campus Box 7460, Chapel Hill, NC 27599-7460, USASchool of Nursing, The University of North Carolina at Chapel Hill, Campus Box 7460, Chapel Hill, NC 27599-7460, USASelf-care management is an important part of living with a chronic illness. Sickle cell disease (SCD) is a chronic disease with acute, painful exacerbations that often results in a shortened life expectancy. Some middle-aged and older adults with SCD lived with the disease prior to having a diagnosis and without modern advances. The purpose of this study is to share the self-care recommendations of middle-aged and older adults with SCD. Using descriptive qualitative methods, data were gathered through semistructured interviews from 11 individuals living with SCD, including 6 women and 5 men. Self-care recommendations themes included physiological, psychological, and provider-related. The self-care recommendations may be seen as an additional resource or “words of wisdom” for younger adults with SCD who can use the recommendations to better manage their own disease. Additionally, providers may be able to use these recommendations to inform their practice.http://dx.doi.org/10.1155/2011/270594
spellingShingle Coretta M. Jenerette
Cheryl Brewer
Ashley N. Leak
Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease
Nursing Research and Practice
title Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease
title_full Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease
title_fullStr Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease
title_full_unstemmed Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease
title_short Self-Care Recommendations of Middle-Aged and Older Adults with Sickle Cell Disease
title_sort self care recommendations of middle aged and older adults with sickle cell disease
url http://dx.doi.org/10.1155/2011/270594
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