Assessing the health-state utility values of rare disease-hemophilia B using EQ-5D-5L: a study based on the Chinese population

Assessing the health-state utility values of rare disease-hemophilia B using EQ-5D-5L: a study based on the Chinese population

Abstract Background Obtaining health-state utility values (HSUVs) aids in making scientific decisions in patient health management, especially for rare disease patients. However, there is currently no research specifically measuring the HSUVs of Chinese hemophilia B patients. Therefore, this study a...

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Bibliographic Details
Main Authors: Chuchuan Wan, Haotao Li, Yulin Zhang, Qiqi Wang, Yiwen Huang, Tao Guan, Xiaoyu Xi
Format: Article
Language:English
Published: BMC 2025-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Health-state utility values
Hemophilia B
China
EQ-5D-5L
Online Access:https://doi.org/10.1186/s13023-025-03894-y
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