Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care?
Objective To assess whether being contacted about or participating in previous research and method of approaching potential participants affected recruitment to a transition study from child to adult healthcare services of young people with cerebral palsy (CP).Design and methods Young people with CP...
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BMJ Publishing Group
2020-08-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/10/8/e035525.full |
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| author | Mark Pearce Mark Linden Luke Vale Tim Rapley Debbie Reape Gail Dovey-Pearce Janet McDonagh Elena Guiomar Garcia Jalón Hanna Merrick Allan Colver Caroline Bennett Ann Le Couteur Helen McConachie Jeremy Parr |
| author_facet | Mark Pearce Mark Linden Luke Vale Tim Rapley Debbie Reape Gail Dovey-Pearce Janet McDonagh Elena Guiomar Garcia Jalón Hanna Merrick Allan Colver Caroline Bennett Ann Le Couteur Helen McConachie Jeremy Parr |
| author_sort | Mark Pearce |
| collection | DOAJ |
| description | Objective To assess whether being contacted about or participating in previous research and method of approaching potential participants affected recruitment to a transition study from child to adult healthcare services of young people with cerebral palsy (CP).Design and methods Young people with CP aged 14–18 years without severe intellectual impairment were identified from regional registers of CP in Northern Ireland and the North of England. χ2 and Mann-Whitney U tests were used to assess differences in CP and sociodemographic characteristics between those recruited and those who refused. Logistic regression was used to assess contact about and recruitment to previous research and method of approach as predictors of recruitment, controlling for demographic and CP characteristics.Results Of the 410 young people who were approached; 162 did not respond and of the 248 who responded, 96 (23%) were recruited. There were significant differences between those recruited and those who refused in age and number of previous studies they had participated in. Those who were older or who had previously been approached about research were more likely to be recruited to our study. However, those who had been recruited to previous studies were more likely to refuse to join our study.Conclusions The method of approach to potential participants did not affect recruitment. Older adolescents and those who had been approached about previous research were more likely to take part in our study, although there was evidence of research fatigue because if they had actually been recruited to the previous studies they were less likely to join our study. Recruitment of adolescents to studies remains challenging. |
| format | Article |
| id | doaj-art-ae5424dbdd8e4b89bdff81334ad29aa2 |
| institution | DOAJ |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-08-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-ae5424dbdd8e4b89bdff81334ad29aa22025-08-20T02:50:48ZengBMJ Publishing GroupBMJ Open2044-60552020-08-0110810.1136/bmjopen-2019-035525Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care?Mark Pearce0Mark Linden1Luke Vale2Tim Rapley3Debbie ReapeGail Dovey-PearceJanet McDonagh4Elena Guiomar Garcia Jalón5Hanna Merrick6Allan Colver7Caroline BennettAnn Le CouteurHelen McConachie8Jeremy Parr9Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UKSchool of Nursing and Midwifery, Queen`s University of Belfast, Belfast, UKHealth Economics Group, Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, Tyne and Wear, UKDepartment of Social Work, Education and Community Wellbeing, Northumbria University, Newcastle upon Tyne, UK3The University of Manchester, Arthritis Research UK Centre for Epidemiology, Centre for Musculoskeletal Research, Manchester, United KingdomSchool of Social Sciences, Queen’s University Belfast, Belfast, UKInstitute of Health and Society, Newcastle University, Newcastle upon Tyne, UK3 Community Child Health, University of Newcastle upon Tyne, Newcastle upon Tyne, UK1 Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UKNewcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UKObjective To assess whether being contacted about or participating in previous research and method of approaching potential participants affected recruitment to a transition study from child to adult healthcare services of young people with cerebral palsy (CP).Design and methods Young people with CP aged 14–18 years without severe intellectual impairment were identified from regional registers of CP in Northern Ireland and the North of England. χ2 and Mann-Whitney U tests were used to assess differences in CP and sociodemographic characteristics between those recruited and those who refused. Logistic regression was used to assess contact about and recruitment to previous research and method of approach as predictors of recruitment, controlling for demographic and CP characteristics.Results Of the 410 young people who were approached; 162 did not respond and of the 248 who responded, 96 (23%) were recruited. There were significant differences between those recruited and those who refused in age and number of previous studies they had participated in. Those who were older or who had previously been approached about research were more likely to be recruited to our study. However, those who had been recruited to previous studies were more likely to refuse to join our study.Conclusions The method of approach to potential participants did not affect recruitment. Older adolescents and those who had been approached about previous research were more likely to take part in our study, although there was evidence of research fatigue because if they had actually been recruited to the previous studies they were less likely to join our study. Recruitment of adolescents to studies remains challenging.https://bmjopen.bmj.com/content/10/8/e035525.full |
| spellingShingle | Mark Pearce Mark Linden Luke Vale Tim Rapley Debbie Reape Gail Dovey-Pearce Janet McDonagh Elena Guiomar Garcia Jalón Hanna Merrick Allan Colver Caroline Bennett Ann Le Couteur Helen McConachie Jeremy Parr Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care? BMJ Open |
| title | Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care? |
| title_full | Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care? |
| title_fullStr | Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care? |
| title_full_unstemmed | Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care? |
| title_short | Did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care? |
| title_sort | did previous involvement in research affect recruitment of young people with cerebral palsy to a longitudinal study of transitional health care |
| url | https://bmjopen.bmj.com/content/10/8/e035525.full |
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