Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania

Abstract Background Effective antiretroviral treatment has transformed HIV into a manageable chronic condition. In Tanzania, about 1.7 million people are living with HIV (PLWH), with 79% achieving viral suppression. Patient-Reported Outcome Measures (PROMs) evaluate key outcomes that matter most for...

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Main Authors: Berivan Ece, Mrema Kilonzo, Sylvia Kaaya, Edith Tarimo, Candida Moshiro, Erasto Mbugi, Linda B. Mlunde, Lisa R. Hirschhorn, Claudia Hawkins, Emily H. Ho
Format: Article
Language:English
Published: BMC 2025-07-01
Series:BMC Health Services Research
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Online Access:https://doi.org/10.1186/s12913-025-13064-2
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author Berivan Ece
Mrema Kilonzo
Sylvia Kaaya
Edith Tarimo
Candida Moshiro
Erasto Mbugi
Linda B. Mlunde
Lisa R. Hirschhorn
Claudia Hawkins
Emily H. Ho
author_facet Berivan Ece
Mrema Kilonzo
Sylvia Kaaya
Edith Tarimo
Candida Moshiro
Erasto Mbugi
Linda B. Mlunde
Lisa R. Hirschhorn
Claudia Hawkins
Emily H. Ho
author_sort Berivan Ece
collection DOAJ
description Abstract Background Effective antiretroviral treatment has transformed HIV into a manageable chronic condition. In Tanzania, about 1.7 million people are living with HIV (PLWH), with 79% achieving viral suppression. Patient-Reported Outcome Measures (PROMs) evaluate key outcomes that matter most for PLWH and are an essential tool to evaluate and improve health system performance. Research is needed to adapt and test PROMs to increase their use in HIV care in many low- and middle-income countries including Tanzania. Since 2019, Northwestern University and Muhimbili University of Health and Allied Sciences (MUHAS) have led an NIH-funded Fogarty D43 grant to build Patient-Centered Outcomes Research (PCOR) capacity in Tanzania. We report on the results of a workshop to strengthen capacity in PROMs development, adaptation and psychometric validation for improving health outcomes for PLWH in Tanzania. Methods The three-day in-person workshop featured expert-led instruction and practical exercises on PROMs selection, development, adaptation, validity testing, factor analysis, and manuscript writing. We applied Kirkpatrick Framework (Level 1-reaction, Level 2-knowledge, and Level 3-use) for workshop evaluation. Participants completed pre-workshop surveys on goals, experience, confidence, and knowledge, followed by a post-workshop survey to assess satisfaction (Level 1), knowledge changes (Level 2), and plans for use (Level 3), along with feedback. Results Twenty-seven participants (44.4% male) attended the workshop, with 92% stating it met workshop goals and 87.5% reporting personal goal fulfillment (Level 1). There was a significant increase in knowledge and confidence ratings across all topics (p <.001) (Level 2). Knowledge ratings rose from a mean of 0.44 (SD = 0.68) to 2.55 (SD = 0.56) while confidence increased from 0.47 (SD = 0.72) to 2.55 (SD = 0.56). Correct answer rates on knowledge assessments also improved and all attendees reported plans to use the skills in future research. Qualitative feedback indicated high enthusiasm for the course and increased confidence in applying the learned skills to current or future research (Level 3). Conclusions The workshop effectively strengthened capacity of attendees to adapt and validate PROMs for use in research and care in Tanzania. Plans are in place to incorporate this training into formal MUHAS courses. Similar workshops are needed to further enhance PROMs research capacity in the region for future application both in research and clinical care of PLWH.
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spelling doaj-art-ae1e5daf2d83437d85157f1127e6b66c2025-08-20T03:37:29ZengBMCBMC Health Services Research1472-69632025-07-0125111010.1186/s12913-025-13064-2Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in TanzaniaBerivan Ece0Mrema Kilonzo1Sylvia Kaaya2Edith Tarimo3Candida Moshiro4Erasto Mbugi5Linda B. Mlunde6Lisa R. Hirschhorn7Claudia Hawkins8Emily H. Ho9Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern UniversityDepartment of Psychiatry and Mental Health, School of Clinical Medicine, Muhimbili University of Health and Allied SciencesDepartment of Psychiatry and Mental Health, School of Clinical Medicine, Muhimbili University of Health and Allied SciencesDepartment of Nursing Management, School of Nursing, Muhimbili University of Health and Allied SciencesDepartment of Epidemiology and Biostatistics, School of Public Health and Social Sciences, Muhimbili University of Health and Allied SciencesDepartment of Biochemistry and Molecular Biology, School of Medicine, Muhimbili University of Health and Allied SciencesDepartment of Community Health, School of Public Health and Social Sciences, Muhimbili University of Health and Allied SciencesDepartment of Medical Social Sciences, Feinberg School of Medicine, Northwestern UniversityRobert J Havey Institute for Global Health - Center for Global Communicable and Emerging Infectious Diseases, Feinberg School of Medicine, Northwestern UniversityDepartment of Medical Social Sciences, Feinberg School of Medicine, Northwestern UniversityAbstract Background Effective antiretroviral treatment has transformed HIV into a manageable chronic condition. In Tanzania, about 1.7 million people are living with HIV (PLWH), with 79% achieving viral suppression. Patient-Reported Outcome Measures (PROMs) evaluate key outcomes that matter most for PLWH and are an essential tool to evaluate and improve health system performance. Research is needed to adapt and test PROMs to increase their use in HIV care in many low- and middle-income countries including Tanzania. Since 2019, Northwestern University and Muhimbili University of Health and Allied Sciences (MUHAS) have led an NIH-funded Fogarty D43 grant to build Patient-Centered Outcomes Research (PCOR) capacity in Tanzania. We report on the results of a workshop to strengthen capacity in PROMs development, adaptation and psychometric validation for improving health outcomes for PLWH in Tanzania. Methods The three-day in-person workshop featured expert-led instruction and practical exercises on PROMs selection, development, adaptation, validity testing, factor analysis, and manuscript writing. We applied Kirkpatrick Framework (Level 1-reaction, Level 2-knowledge, and Level 3-use) for workshop evaluation. Participants completed pre-workshop surveys on goals, experience, confidence, and knowledge, followed by a post-workshop survey to assess satisfaction (Level 1), knowledge changes (Level 2), and plans for use (Level 3), along with feedback. Results Twenty-seven participants (44.4% male) attended the workshop, with 92% stating it met workshop goals and 87.5% reporting personal goal fulfillment (Level 1). There was a significant increase in knowledge and confidence ratings across all topics (p <.001) (Level 2). Knowledge ratings rose from a mean of 0.44 (SD = 0.68) to 2.55 (SD = 0.56) while confidence increased from 0.47 (SD = 0.72) to 2.55 (SD = 0.56). Correct answer rates on knowledge assessments also improved and all attendees reported plans to use the skills in future research. Qualitative feedback indicated high enthusiasm for the course and increased confidence in applying the learned skills to current or future research (Level 3). Conclusions The workshop effectively strengthened capacity of attendees to adapt and validate PROMs for use in research and care in Tanzania. Plans are in place to incorporate this training into formal MUHAS courses. Similar workshops are needed to further enhance PROMs research capacity in the region for future application both in research and clinical care of PLWH.https://doi.org/10.1186/s12913-025-13064-2Patient-Centered outcomes research (PCOR)TanzaniaPatient-Reported outcome measures (PROMs)HIVResearch capacity-building
spellingShingle Berivan Ece
Mrema Kilonzo
Sylvia Kaaya
Edith Tarimo
Candida Moshiro
Erasto Mbugi
Linda B. Mlunde
Lisa R. Hirschhorn
Claudia Hawkins
Emily H. Ho
Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania
BMC Health Services Research
Patient-Centered outcomes research (PCOR)
Tanzania
Patient-Reported outcome measures (PROMs)
HIV
Research capacity-building
title Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania
title_full Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania
title_fullStr Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania
title_full_unstemmed Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania
title_short Building research capacity to adapt and develop Patient-Reported outcome measures in low- and middle-income countries: results from a psychometrics workshop in Tanzania
title_sort building research capacity to adapt and develop patient reported outcome measures in low and middle income countries results from a psychometrics workshop in tanzania
topic Patient-Centered outcomes research (PCOR)
Tanzania
Patient-Reported outcome measures (PROMs)
HIV
Research capacity-building
url https://doi.org/10.1186/s12913-025-13064-2
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