Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India

Abstract Aim To explore the roles and responsibilities of Accredited Social Health Activists (ASHAs) and Anganwadi Workers (AWWs) in providing support to people living with disability and their households. Subject and methods The current qualitative study involves a sequential research design involv...

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Main Authors: Lorane Scaria, Rachel Blance-Palmer, Lynette Joubert, Saju Madavanakadu Devassy
Format: Article
Language:English
Published: Springer 2025-05-01
Series:Discover Social Science and Health
Subjects:
Online Access:https://doi.org/10.1007/s44155-025-00233-1
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author Lorane Scaria
Rachel Blance-Palmer
Lynette Joubert
Saju Madavanakadu Devassy
author_facet Lorane Scaria
Rachel Blance-Palmer
Lynette Joubert
Saju Madavanakadu Devassy
author_sort Lorane Scaria
collection DOAJ
description Abstract Aim To explore the roles and responsibilities of Accredited Social Health Activists (ASHAs) and Anganwadi Workers (AWWs) in providing support to people living with disability and their households. Subject and methods The current qualitative study involves a sequential research design involving two phases of qualitative data collection. Phase one includes a brief qualitative interview with thirty-three ASHAs to map the key themes of their work in the disability sector and how they work alongside AWWs. Phase two includes in-depth interviews with seven AWWs to explore their perspectives on the services available to people with disabilities in India, including the practical, emotional, and social support they provide and how they work alongside ASHAs. Thematic analysis was undertaken to analyze the results. Results The key responsibilities of the ASHAs were monitoring and connection, and facilitating support for practical tasks. Service mapping of AWWs identified four domains – identification and referral, service coordination, monitoring and psychosocial support. Collaborative tasks between the two cadres were identified as; health education, coordinated activities with healthcare centres, house visits, and implementation of public health programs. Conclusion The current study provides insights into community-based disability care in India, bringing a culturally relevant perspective to global conversations about disability support services. Community health workers are an excellent resource for multidimensional care for families of people with disabilities in India. Through effectively coordinated task-shifting and task-sharing strategies, ASHAs and AWWs can work alongside each other to implement interventions to improve the lives of people with disabilities and their households in India.
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spelling doaj-art-aca34ef4dc744d4999a95296c3aed3d22025-08-20T02:03:32ZengSpringerDiscover Social Science and Health2731-04692025-05-015111310.1007/s44155-025-00233-1Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in IndiaLorane Scaria0Rachel Blance-Palmer1Lynette Joubert2Saju Madavanakadu Devassy3Department of Social Work, Rajagiri College of Social Sciences (Autonomous)Department of Social Work, Melbourne School of Health Sciences, University of MelbourneDepartment of Social Work, Melbourne School of Health Sciences, University of MelbourneDepartment of Social Work, Rajagiri College of Social Sciences (Autonomous)Abstract Aim To explore the roles and responsibilities of Accredited Social Health Activists (ASHAs) and Anganwadi Workers (AWWs) in providing support to people living with disability and their households. Subject and methods The current qualitative study involves a sequential research design involving two phases of qualitative data collection. Phase one includes a brief qualitative interview with thirty-three ASHAs to map the key themes of their work in the disability sector and how they work alongside AWWs. Phase two includes in-depth interviews with seven AWWs to explore their perspectives on the services available to people with disabilities in India, including the practical, emotional, and social support they provide and how they work alongside ASHAs. Thematic analysis was undertaken to analyze the results. Results The key responsibilities of the ASHAs were monitoring and connection, and facilitating support for practical tasks. Service mapping of AWWs identified four domains – identification and referral, service coordination, monitoring and psychosocial support. Collaborative tasks between the two cadres were identified as; health education, coordinated activities with healthcare centres, house visits, and implementation of public health programs. Conclusion The current study provides insights into community-based disability care in India, bringing a culturally relevant perspective to global conversations about disability support services. Community health workers are an excellent resource for multidimensional care for families of people with disabilities in India. Through effectively coordinated task-shifting and task-sharing strategies, ASHAs and AWWs can work alongside each other to implement interventions to improve the lives of people with disabilities and their households in India.https://doi.org/10.1007/s44155-025-00233-1Community health workers; ASHAsAnganwadi workersPerson with disabilityCollaborative tasksIndia
spellingShingle Lorane Scaria
Rachel Blance-Palmer
Lynette Joubert
Saju Madavanakadu Devassy
Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India
Discover Social Science and Health
Community health workers; ASHAs
Anganwadi workers
Person with disability
Collaborative tasks
India
title Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India
title_full Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India
title_fullStr Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India
title_full_unstemmed Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India
title_short Pathways to support: a qualitative investigation of community health workers'role in coordinating disability services in India
title_sort pathways to support a qualitative investigation of community health workers role in coordinating disability services in india
topic Community health workers; ASHAs
Anganwadi workers
Person with disability
Collaborative tasks
India
url https://doi.org/10.1007/s44155-025-00233-1
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AT rachelblancepalmer pathwaystosupportaqualitativeinvestigationofcommunityhealthworkersroleincoordinatingdisabilityservicesinindia
AT lynettejoubert pathwaystosupportaqualitativeinvestigationofcommunityhealthworkersroleincoordinatingdisabilityservicesinindia
AT sajumadavanakadudevassy pathwaystosupportaqualitativeinvestigationofcommunityhealthworkersroleincoordinatingdisabilityservicesinindia