Empagliflozin as treatment in glycogen storage disease type IB patients

Background: Glycogen Storage Disease Ib (GSD Ib) is a disease that associates both neutropenia and neutrophil dysfunction, thereby causing recurrent infections and inflammatory bowel disease (IBD). As of now, the standard treatment of these complications has been the administration of granulocyte-st...

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Main Authors: María Arbelo Rodríguez, Elena Márquez Mesa, Cristina Lorenzo González, Marina Gutiérrez Vilar, Loredana Arhip, Mónica Ruiz Pons, José Pablo Suárez Llanos
Format: Article
Language:English
Published: Elsevier 2025-06-01
Series:Molecular Genetics and Metabolism Reports
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Online Access:http://www.sciencedirect.com/science/article/pii/S2214426925000412
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author María Arbelo Rodríguez
Elena Márquez Mesa
Cristina Lorenzo González
Marina Gutiérrez Vilar
Loredana Arhip
Mónica Ruiz Pons
José Pablo Suárez Llanos
author_facet María Arbelo Rodríguez
Elena Márquez Mesa
Cristina Lorenzo González
Marina Gutiérrez Vilar
Loredana Arhip
Mónica Ruiz Pons
José Pablo Suárez Llanos
author_sort María Arbelo Rodríguez
collection DOAJ
description Background: Glycogen Storage Disease Ib (GSD Ib) is a disease that associates both neutropenia and neutrophil dysfunction, thereby causing recurrent infections and inflammatory bowel disease (IBD). As of now, the standard treatment of these complications has been the administration of granulocyte-stimulating factor (GCSF). However, recent studies have found that the use of empagliflozin, an antidiabetic drug, may have benefits by reducing the levels of 1,5 anhydroglucitol-6-phosphate (1,5-AG6P), a metabolite that accumulates in the cytosol of neutrophils and blocks the use of glucose. Results: We therefore report our experience with three patients, one of them being a liver and kidney transplant recipient, with promising results. Morbidity has been greatly reduced in all cases consisting in weight gain, better neutrophil count and management of respiratory, osteoarticular and gastrointestinal comorbidities. Overall, an improvement in quality of life has been observed. Conclusion: SGLT2 inhibitors, and specifically empagliflozin offer promising results in improving morbidity and quality of life in patients with GSD Ib. In the cases presented, including a patient with double liver-kidney transplant, a good profile of tolerance, safety and effectiveness has been observed. Synopsis: Empagliflozin offers promising results in improving morbidity and quality of life in patients with GSD Ib, including the first double organ transplant patient treated with this drug.
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spelling doaj-art-abf78d3be0ce417dbf3d005635ccc78c2025-08-20T03:31:06ZengElsevierMolecular Genetics and Metabolism Reports2214-42692025-06-014310122610.1016/j.ymgmr.2025.101226Empagliflozin as treatment in glycogen storage disease type IB patientsMaría Arbelo Rodríguez0Elena Márquez Mesa1Cristina Lorenzo González2Marina Gutiérrez Vilar3Loredana Arhip4Mónica Ruiz Pons5José Pablo Suárez Llanos6Endocrinology and Nutrition Department, Hospital Universitario Nuestra Señora de Candelaria, Ctra. Del Rosario 145, Santa Cruz de Tenerife 38010, Spain; Corresponding author.Endocrinology and Nutrition Department, Hospital Universitario Nuestra Señora de Candelaria, Ctra. Del Rosario 145, Santa Cruz de Tenerife 38010, SpainEndocrinology and Nutrition Department, Hospital Universitario Nuestra Señora de Candelaria, Ctra. Del Rosario 145, Santa Cruz de Tenerife 38010, SpainPediatrics Department Hospital Universitario Nuestra Señora de Candelaria, Ctra. Del Rosario 145, Santa Cruz de Tenerife 38010, SpainNutricia-Danone, C/De Buenos Aires, 21, L'Eixample, Barcelona 08029, SpainPediatrics Department Hospital Universitario Nuestra Señora de Candelaria, Ctra. Del Rosario 145, Santa Cruz de Tenerife 38010, SpainEndocrinology and Nutrition Department, Hospital Universitario Nuestra Señora de Candelaria, Ctra. Del Rosario 145, Santa Cruz de Tenerife 38010, SpainBackground: Glycogen Storage Disease Ib (GSD Ib) is a disease that associates both neutropenia and neutrophil dysfunction, thereby causing recurrent infections and inflammatory bowel disease (IBD). As of now, the standard treatment of these complications has been the administration of granulocyte-stimulating factor (GCSF). However, recent studies have found that the use of empagliflozin, an antidiabetic drug, may have benefits by reducing the levels of 1,5 anhydroglucitol-6-phosphate (1,5-AG6P), a metabolite that accumulates in the cytosol of neutrophils and blocks the use of glucose. Results: We therefore report our experience with three patients, one of them being a liver and kidney transplant recipient, with promising results. Morbidity has been greatly reduced in all cases consisting in weight gain, better neutrophil count and management of respiratory, osteoarticular and gastrointestinal comorbidities. Overall, an improvement in quality of life has been observed. Conclusion: SGLT2 inhibitors, and specifically empagliflozin offer promising results in improving morbidity and quality of life in patients with GSD Ib. In the cases presented, including a patient with double liver-kidney transplant, a good profile of tolerance, safety and effectiveness has been observed. Synopsis: Empagliflozin offers promising results in improving morbidity and quality of life in patients with GSD Ib, including the first double organ transplant patient treated with this drug.http://www.sciencedirect.com/science/article/pii/S2214426925000412Glycogen storage disease type IbEmpagliflozinNeutropeniaNeutrophil dysfunctionSGLT2 inhibitors1,5-andhydroglucitol
spellingShingle María Arbelo Rodríguez
Elena Márquez Mesa
Cristina Lorenzo González
Marina Gutiérrez Vilar
Loredana Arhip
Mónica Ruiz Pons
José Pablo Suárez Llanos
Empagliflozin as treatment in glycogen storage disease type IB patients
Molecular Genetics and Metabolism Reports
Glycogen storage disease type Ib
Empagliflozin
Neutropenia
Neutrophil dysfunction
SGLT2 inhibitors
1,5-andhydroglucitol
title Empagliflozin as treatment in glycogen storage disease type IB patients
title_full Empagliflozin as treatment in glycogen storage disease type IB patients
title_fullStr Empagliflozin as treatment in glycogen storage disease type IB patients
title_full_unstemmed Empagliflozin as treatment in glycogen storage disease type IB patients
title_short Empagliflozin as treatment in glycogen storage disease type IB patients
title_sort empagliflozin as treatment in glycogen storage disease type ib patients
topic Glycogen storage disease type Ib
Empagliflozin
Neutropenia
Neutrophil dysfunction
SGLT2 inhibitors
1,5-andhydroglucitol
url http://www.sciencedirect.com/science/article/pii/S2214426925000412
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