Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review

BackgroundClinical risk prediction models integrated into digitized health care informatics systems hold promise for personalized primary prevention and care, a core goal of precision health. Fairness metrics are important tools for evaluating potential disparities across sen...

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Main Authors: Lillian Rountree, Yi-Ting Lin, Chuyu Liu, Maxwell Salvatore, Andrew Admon, Brahmajee Nallamothu, Karandeep Singh, Anirban Basu, Fan Bu, Bhramar Mukherjee
Format: Article
Language:English
Published: JMIR Publications 2025-03-01
Series:Online Journal of Public Health Informatics
Online Access:https://ojphi.jmir.org/2025/1/e66598
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author Lillian Rountree
Yi-Ting Lin
Chuyu Liu
Maxwell Salvatore
Andrew Admon
Brahmajee Nallamothu
Karandeep Singh
Anirban Basu
Fan Bu
Bhramar Mukherjee
author_facet Lillian Rountree
Yi-Ting Lin
Chuyu Liu
Maxwell Salvatore
Andrew Admon
Brahmajee Nallamothu
Karandeep Singh
Anirban Basu
Fan Bu
Bhramar Mukherjee
author_sort Lillian Rountree
collection DOAJ
description BackgroundClinical risk prediction models integrated into digitized health care informatics systems hold promise for personalized primary prevention and care, a core goal of precision health. Fairness metrics are important tools for evaluating potential disparities across sensitive features, such as sex and race or ethnicity, in the field of prediction modeling. However, fairness metric usage in clinical risk prediction models remains infrequent, sporadic, and rarely empirically evaluated. ObjectiveWe seek to assess the uptake of fairness metrics in clinical risk prediction modeling through an empirical evaluation of popular prediction models for 2 diseases, 1 chronic and 1 infectious disease. MethodsWe conducted a scoping literature review in November 2023 of recent high-impact publications on clinical risk prediction models for cardiovascular disease (CVD) and COVID-19 using Google Scholar. ResultsOur review resulted in a shortlist of 23 CVD-focused articles and 22 COVID-19 pandemic–focused articles. No articles evaluated fairness metrics. Of the CVD-focused articles, 26% used a sex-stratified model, and of those with race or ethnicity data, 92% had study populations that were more than 50% from 1 race or ethnicity. Of the COVID-19 models, 9% used a sex-stratified model, and of those that included race or ethnicity data, 50% had study populations that were more than 50% from 1 race or ethnicity. No articles for either disease stratified their models by race or ethnicity. ConclusionsOur review shows that the use of fairness metrics for evaluating differences across sensitive features is rare, despite their ability to identify inequality and flag potential gaps in prevention and care. We also find that training data remain largely racially and ethnically homogeneous, demonstrating an urgent need for diversifying study cohorts and data collection. We propose an implementation framework to initiate change, calling for better connections between theory and practice when it comes to the adoption of fairness metrics for clinical risk prediction. We hypothesize that this integration will lead to a more equitable prediction world.
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spelling doaj-art-ab15f20c056e4ac48137ae45b48e8d402025-08-20T03:41:46ZengJMIR PublicationsOnline Journal of Public Health Informatics1947-25792025-03-0117e6659810.2196/66598Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping ReviewLillian Rountreehttps://orcid.org/0009-0008-3428-3914Yi-Ting Linhttps://orcid.org/0009-0006-8605-4086Chuyu Liuhttps://orcid.org/0009-0006-5514-6025Maxwell Salvatorehttps://orcid.org/0000-0002-3659-1514Andrew Admonhttps://orcid.org/0000-0002-7432-3764Brahmajee Nallamothuhttps://orcid.org/0000-0003-4331-6649Karandeep Singhhttps://orcid.org/0000-0001-8980-2330Anirban Basuhttps://orcid.org/0000-0003-4238-7402Fan Buhttps://orcid.org/0000-0003-3697-1477Bhramar Mukherjeehttps://orcid.org/0000-0003-0118-4561 BackgroundClinical risk prediction models integrated into digitized health care informatics systems hold promise for personalized primary prevention and care, a core goal of precision health. Fairness metrics are important tools for evaluating potential disparities across sensitive features, such as sex and race or ethnicity, in the field of prediction modeling. However, fairness metric usage in clinical risk prediction models remains infrequent, sporadic, and rarely empirically evaluated. ObjectiveWe seek to assess the uptake of fairness metrics in clinical risk prediction modeling through an empirical evaluation of popular prediction models for 2 diseases, 1 chronic and 1 infectious disease. MethodsWe conducted a scoping literature review in November 2023 of recent high-impact publications on clinical risk prediction models for cardiovascular disease (CVD) and COVID-19 using Google Scholar. ResultsOur review resulted in a shortlist of 23 CVD-focused articles and 22 COVID-19 pandemic–focused articles. No articles evaluated fairness metrics. Of the CVD-focused articles, 26% used a sex-stratified model, and of those with race or ethnicity data, 92% had study populations that were more than 50% from 1 race or ethnicity. Of the COVID-19 models, 9% used a sex-stratified model, and of those that included race or ethnicity data, 50% had study populations that were more than 50% from 1 race or ethnicity. No articles for either disease stratified their models by race or ethnicity. ConclusionsOur review shows that the use of fairness metrics for evaluating differences across sensitive features is rare, despite their ability to identify inequality and flag potential gaps in prevention and care. We also find that training data remain largely racially and ethnically homogeneous, demonstrating an urgent need for diversifying study cohorts and data collection. We propose an implementation framework to initiate change, calling for better connections between theory and practice when it comes to the adoption of fairness metrics for clinical risk prediction. We hypothesize that this integration will lead to a more equitable prediction world.https://ojphi.jmir.org/2025/1/e66598
spellingShingle Lillian Rountree
Yi-Ting Lin
Chuyu Liu
Maxwell Salvatore
Andrew Admon
Brahmajee Nallamothu
Karandeep Singh
Anirban Basu
Fan Bu
Bhramar Mukherjee
Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review
Online Journal of Public Health Informatics
title Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review
title_full Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review
title_fullStr Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review
title_full_unstemmed Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review
title_short Reporting of Fairness Metrics in Clinical Risk Prediction Models Used for Precision Health: Scoping Review
title_sort reporting of fairness metrics in clinical risk prediction models used for precision health scoping review
url https://ojphi.jmir.org/2025/1/e66598
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