Development of the Nephrotic Syndrome Symptom and Impact Patient Reported Outcome (NephroSSI-PRO) measure for use in adults and adolescents with primary glomerulopathies

Development of the Nephrotic Syndrome Symptom and Impact Patient Reported Outcome (NephroSSI-PRO) measure for use in adults and adolescents with primary glomerulopathies

Abstract Background Patient reported outcome (PRO) instruments are important for assessing the effects of new therapeutics; however, no PRO measures have been specifically developed for use in Nephrotic Syndrome (NS) with documented evidence of content validity. Methodology The Nephrotic Syndrome Sy...

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Bibliographic Details
Main Authors: Joshua Maher, An-Qi Hu, Sagar U. Nigwekar, Julie Lin
Format: Article
Language:English
Published: SpringerOpen 2025-08-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Clinical outcome assessments
Disease impacts
Disease symptoms
Health-related quality of life
Nephrotic syndrome
Patient-reported outcomes
Online Access:https://doi.org/10.1186/s41687-025-00937-7
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