Caregiver burden in lung transplantation: A review

Caregivers play a pivotal role in supporting patients undergoing lung transplant and often experience significant psychological, physical, and financial burdens. The current literature suggests that caregivers face heightened depression and anxiety in both the pre- and post-transplant periods. Careg...

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Main Authors: Keerthana Sankar, MD, Anne Johnson, LCSW, Kathryn McRae, LCSW, Reinaldo Rampolla, MD, Nicholas A. Kolaitis, MD, MAS
Format: Article
Language:English
Published: Elsevier 2025-05-01
Series:JHLT Open
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Online Access:http://www.sciencedirect.com/science/article/pii/S2950133425000345
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author Keerthana Sankar, MD
Anne Johnson, LCSW
Kathryn McRae, LCSW
Reinaldo Rampolla, MD
Nicholas A. Kolaitis, MD, MAS
author_facet Keerthana Sankar, MD
Anne Johnson, LCSW
Kathryn McRae, LCSW
Reinaldo Rampolla, MD
Nicholas A. Kolaitis, MD, MAS
author_sort Keerthana Sankar, MD
collection DOAJ
description Caregivers play a pivotal role in supporting patients undergoing lung transplant and often experience significant psychological, physical, and financial burdens. The current literature suggests that caregivers face heightened depression and anxiety in both the pre- and post-transplant periods. Caregivers of lung transplant patients may face unique challenges compared to other caregiver populations due to fears regarding pre- and post-transplant survival, lifestyle changes associated with post-transplant complications, and financial burden due to job loss and relocation. Caregiver well-being is linked to patient outcomes, with increased burden associated with higher post-transplant mortality. This review summarizes the symptoms associated with caregiver burden, assessment tools to evaluate caregiver strain, patient outcomes and social determinants of health as it relates to caregiver-patient relationships, and interventions to mitigate caregiver burden in the lung transplant population.
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spelling doaj-art-aa3e783e8af9426da0ae3bf0ed8f6bfe2025-08-20T03:48:50ZengElsevierJHLT Open2950-13342025-05-01810023910.1016/j.jhlto.2025.100239Caregiver burden in lung transplantation: A reviewKeerthana Sankar, MD0Anne Johnson, LCSW1Kathryn McRae, LCSW2Reinaldo Rampolla, MD3Nicholas A. Kolaitis, MD, MAS4Division of Pulmonary and Critical Care, Cedars-Sinai Medical Center, Los Angeles, CaliforniaLung Transplant Program, University of California, San Francisco, CaliforniaLung Transplant Program, University of California, San Francisco, CaliforniaDivision of Pulmonary and Critical Care, Cedars-Sinai Medical Center, Los Angeles, CaliforniaDivision of Pulmonary, Critical Care, Allergy and Sleep Medicine, Department of Medicine, University of California, San Francisco, California; Corresponding author: Nicholas A. Kolaitis, MD, MAS, Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Department of Medicine, University of California, 400 Parnassus Ave Box 0359, San Francisco, CA 94143.Caregivers play a pivotal role in supporting patients undergoing lung transplant and often experience significant psychological, physical, and financial burdens. The current literature suggests that caregivers face heightened depression and anxiety in both the pre- and post-transplant periods. Caregivers of lung transplant patients may face unique challenges compared to other caregiver populations due to fears regarding pre- and post-transplant survival, lifestyle changes associated with post-transplant complications, and financial burden due to job loss and relocation. Caregiver well-being is linked to patient outcomes, with increased burden associated with higher post-transplant mortality. This review summarizes the symptoms associated with caregiver burden, assessment tools to evaluate caregiver strain, patient outcomes and social determinants of health as it relates to caregiver-patient relationships, and interventions to mitigate caregiver burden in the lung transplant population.http://www.sciencedirect.com/science/article/pii/S2950133425000345caregivercaretakerlung transplantpre- and post-transplantsolid organ transplant
spellingShingle Keerthana Sankar, MD
Anne Johnson, LCSW
Kathryn McRae, LCSW
Reinaldo Rampolla, MD
Nicholas A. Kolaitis, MD, MAS
Caregiver burden in lung transplantation: A review
JHLT Open
caregiver
caretaker
lung transplant
pre- and post-transplant
solid organ transplant
title Caregiver burden in lung transplantation: A review
title_full Caregiver burden in lung transplantation: A review
title_fullStr Caregiver burden in lung transplantation: A review
title_full_unstemmed Caregiver burden in lung transplantation: A review
title_short Caregiver burden in lung transplantation: A review
title_sort caregiver burden in lung transplantation a review
topic caregiver
caretaker
lung transplant
pre- and post-transplant
solid organ transplant
url http://www.sciencedirect.com/science/article/pii/S2950133425000345
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AT nicholasakolaitismdmas caregiverburdeninlungtransplantationareview