Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili
Abstract Thyroid eye disease (TED) is an autoimmune condition that commonly impacts patients’ visual function, appearance, and psychological well-being. Challenges in TED management include low early detection rates and large variation in treatment response. Video platforms like TikTok and Bilibili...
Saved in:
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Nature Portfolio
2025-07-01
|
| Series: | Scientific Reports |
| Subjects: | |
| Online Access: | https://doi.org/10.1038/s41598-025-11147-y |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1849388010829774848 |
|---|---|
| author | Haisheng Wang Huahong Zhang Jiamin Cao Feng Zhang Wei Xiong |
| author_facet | Haisheng Wang Huahong Zhang Jiamin Cao Feng Zhang Wei Xiong |
| author_sort | Haisheng Wang |
| collection | DOAJ |
| description | Abstract Thyroid eye disease (TED) is an autoimmune condition that commonly impacts patients’ visual function, appearance, and psychological well-being. Challenges in TED management include low early detection rates and large variation in treatment response. Video platforms like TikTok and Bilibili are increasingly utilized for health information dissemination, yet the quality of TED treatment content on these platforms varies significantly. This cross-sectional study collected videos on “甲亢突眼的治疗” from TikTok and Bilibili in March 2025. After applying exclusion criteria, 152 videos (89 from TikTok, 63 from Bilibili) were analyzed. Quality, reliability, and educational value were assessed using the Global Quality Score (GQS), modified DISCERN (mDISCERN), Patient Education Materials Assessment Tool (PEMAT), and Journal of the American Medical Association (JAMA) benchmark criteria. Additionally, the study analyzed video content integrity, uploader identity, and the correlation with user interaction data. TikTok videos scored higher in quality (GQS: 3.00 ± 0.58; mDISCERN: 3.17 ± 0.73) compared to Bilibili (GQS: 2.65 ± 0.65; mDISCERN: 2.21 ± 0.88; p < 0.001). On Bilibili, 62% of videos were uploaded by Traditional Chinese Medicine (TCM) physicians, yet these scored lower in quality. Professionally uploaded content, particularly by ophthalmologists, outperformed non-professional videos (e.g., patient). However, the video interaction metrics uploaded by patients showed better performance. In terms of content, only 27% addressed staged treatment, and 11.8% mentioned risk factor control. Correlation analysis revealed strong correlations between interaction data, but interaction data have no correlation with GQS, mDISCERN, and PEMAT scores. Short video platforms exhibit a dual role in the dissemination of TED treatment information: enhancing public awareness of diseases through professional content while risking misinformation due to inadequate auditing. Recommended interventions include robust platform certification, active involvement of medical organizations in content creation, and public education on prioritizing verified sources. |
| format | Article |
| id | doaj-art-a88a3ef787cd450b9744f778a3f2b119 |
| institution | Kabale University |
| issn | 2045-2322 |
| language | English |
| publishDate | 2025-07-01 |
| publisher | Nature Portfolio |
| record_format | Article |
| series | Scientific Reports |
| spelling | doaj-art-a88a3ef787cd450b9744f778a3f2b1192025-08-20T03:42:25ZengNature PortfolioScientific Reports2045-23222025-07-0115111310.1038/s41598-025-11147-yQuality and content evaluation of thyroid eye disease treatment information on TikTok and BilibiliHaisheng Wang0Huahong Zhang1Jiamin Cao2Feng Zhang3Wei Xiong4Department of Ophthalmology, The Third Xiangya Hospital, Central South UniversityDepartment of Ophthalmology, The Third Xiangya Hospital, Central South UniversityDepartment of Ophthalmology, The Third Xiangya Hospital, Central South UniversityDepartment of Ophthalmology, The Third Xiangya Hospital, Central South UniversityDepartment of Ophthalmology, The Third Xiangya Hospital, Central South UniversityAbstract Thyroid eye disease (TED) is an autoimmune condition that commonly impacts patients’ visual function, appearance, and psychological well-being. Challenges in TED management include low early detection rates and large variation in treatment response. Video platforms like TikTok and Bilibili are increasingly utilized for health information dissemination, yet the quality of TED treatment content on these platforms varies significantly. This cross-sectional study collected videos on “甲亢突眼的治疗” from TikTok and Bilibili in March 2025. After applying exclusion criteria, 152 videos (89 from TikTok, 63 from Bilibili) were analyzed. Quality, reliability, and educational value were assessed using the Global Quality Score (GQS), modified DISCERN (mDISCERN), Patient Education Materials Assessment Tool (PEMAT), and Journal of the American Medical Association (JAMA) benchmark criteria. Additionally, the study analyzed video content integrity, uploader identity, and the correlation with user interaction data. TikTok videos scored higher in quality (GQS: 3.00 ± 0.58; mDISCERN: 3.17 ± 0.73) compared to Bilibili (GQS: 2.65 ± 0.65; mDISCERN: 2.21 ± 0.88; p < 0.001). On Bilibili, 62% of videos were uploaded by Traditional Chinese Medicine (TCM) physicians, yet these scored lower in quality. Professionally uploaded content, particularly by ophthalmologists, outperformed non-professional videos (e.g., patient). However, the video interaction metrics uploaded by patients showed better performance. In terms of content, only 27% addressed staged treatment, and 11.8% mentioned risk factor control. Correlation analysis revealed strong correlations between interaction data, but interaction data have no correlation with GQS, mDISCERN, and PEMAT scores. Short video platforms exhibit a dual role in the dissemination of TED treatment information: enhancing public awareness of diseases through professional content while risking misinformation due to inadequate auditing. Recommended interventions include robust platform certification, active involvement of medical organizations in content creation, and public education on prioritizing verified sources.https://doi.org/10.1038/s41598-025-11147-yThyroid eye diseaseSocial mediaPatient educationPublic healthInformation qualityTikTok |
| spellingShingle | Haisheng Wang Huahong Zhang Jiamin Cao Feng Zhang Wei Xiong Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili Scientific Reports Thyroid eye disease Social media Patient education Public health Information quality TikTok |
| title | Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili |
| title_full | Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili |
| title_fullStr | Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili |
| title_full_unstemmed | Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili |
| title_short | Quality and content evaluation of thyroid eye disease treatment information on TikTok and Bilibili |
| title_sort | quality and content evaluation of thyroid eye disease treatment information on tiktok and bilibili |
| topic | Thyroid eye disease Social media Patient education Public health Information quality TikTok |
| url | https://doi.org/10.1038/s41598-025-11147-y |
| work_keys_str_mv | AT haishengwang qualityandcontentevaluationofthyroideyediseasetreatmentinformationontiktokandbilibili AT huahongzhang qualityandcontentevaluationofthyroideyediseasetreatmentinformationontiktokandbilibili AT jiamincao qualityandcontentevaluationofthyroideyediseasetreatmentinformationontiktokandbilibili AT fengzhang qualityandcontentevaluationofthyroideyediseasetreatmentinformationontiktokandbilibili AT weixiong qualityandcontentevaluationofthyroideyediseasetreatmentinformationontiktokandbilibili |