Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis
Introduction Engaging trauma survivors/caregivers results in research findings that are more relevant to patients’ needs and priorities. Although their perspectives increase research significance, there is a lack of understanding about how best to incorporate their insights. We aimed to capture stak...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-11-01
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| Series: | Trauma Surgery & Acute Care Open |
| Online Access: | https://tsaco.bmj.com/content/9/1/e001274.full |
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| author | Deborah M Stein Elliott R Haut Michelle A Price Pam J Bixby Anna Newcomb Rosemary Kozar Rochelle Dicker Princess Fortin Rachel D Appelbaum Katherine Joseph Morgan Hennessy Sue Prentiss Alexandra McConnell-Hill Rochelle Flayter |
| author_facet | Deborah M Stein Elliott R Haut Michelle A Price Pam J Bixby Anna Newcomb Rosemary Kozar Rochelle Dicker Princess Fortin Rachel D Appelbaum Katherine Joseph Morgan Hennessy Sue Prentiss Alexandra McConnell-Hill Rochelle Flayter |
| author_sort | Deborah M Stein |
| collection | DOAJ |
| description | Introduction Engaging trauma survivors/caregivers results in research findings that are more relevant to patients’ needs and priorities. Although their perspectives increase research significance, there is a lack of understanding about how best to incorporate their insights. We aimed to capture stakeholder perspectives to ensure research is meaningful, respectful, and relevant to the injured patient and their caregivers.Methods A multiphase, inductive exploratory qualitative study was performed, the first phase of which is described here. Virtual focus groups to elicit stakeholder perspectives and preferences were conducted across 19 trauma centers in the USA during 2022. Discussion topics were chosen to identify patients’ motivation to join research studies, preferences regarding consent, suggestions for increasing diversity and access, and feelings regarding outcomes, efficacy, and exception from informed consent. The focus groups were audio recorded, transcribed, coded, and analyzed to identify the range of perspectives expressed and any common themes that emerged.Results Ten 90-minute focus groups included patients/caregiver (n=21/1) and researchers (n=14). Data analysis identified common themes emerging across groups. The importance of trust and preexisting relationships with the clinical care team were the most common themes across all groups.Conclusion Our findings reveal common themes in preferences, motivations, and best practices to increase patient/caregiver participation in trauma research. The project’s next phases are distribution of a vignette-based survey to establish broad stakeholder consensus; education and dissemination activities to share strategies that increase research engagement and relevance for patients; and the formation of a panel of patients to support future research endeavors.Level of evidence Level IV. |
| format | Article |
| id | doaj-art-a7d975c795874d8192c78eb7fc200522 |
| institution | OA Journals |
| issn | 2397-5776 |
| language | English |
| publishDate | 2024-11-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | Trauma Surgery & Acute Care Open |
| spelling | doaj-art-a7d975c795874d8192c78eb7fc2005222025-08-20T02:37:10ZengBMJ Publishing GroupTrauma Surgery & Acute Care Open2397-57762024-11-019110.1136/tsaco-2023-001274Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysisDeborah M Stein0Elliott R Haut1Michelle A Price2Pam J Bixby3Anna Newcomb4Rosemary Kozar5Rochelle Dicker6Princess Fortin7Rachel D Appelbaum8Katherine Joseph9Morgan Hennessy10Sue Prentiss11Alexandra McConnell-Hill12Rochelle Flayter13Surgery, Zuckerberg San Francisco General Hospital and Trauma Center, San Francisco, CA, United StatesSurgery, Johns Hopkins University, Baltimore, Maryland, USANational Trauma Insitute, San Antonio, Texas, USANational Trauma Institute, San Antonio, Texas, USAInova Fairfax Medical Center, Falls Church, Virginia, USAR Adams Cowley Shock Trauma Center, Baltimore, Maryland, USADepartment of Surgery, University of California Los Angeles, Los Angeles, California, USAHealth Alliance for Violence Intervention, Boston, Massachusetts, USADepartment of Surgery, Vanderbilt University Medical Center, Nashville, Tennessee, USAAmerican Trauma Society, Falls Church, Virginia, USACedars Sinai, Los Angeles, California, USAAmerican Trauma Society, Falls Church, Virginia, USAUCSF Health, San Francisco, California, USAUC Health, Colorado Springs, Colorado, USAIntroduction Engaging trauma survivors/caregivers results in research findings that are more relevant to patients’ needs and priorities. Although their perspectives increase research significance, there is a lack of understanding about how best to incorporate their insights. We aimed to capture stakeholder perspectives to ensure research is meaningful, respectful, and relevant to the injured patient and their caregivers.Methods A multiphase, inductive exploratory qualitative study was performed, the first phase of which is described here. Virtual focus groups to elicit stakeholder perspectives and preferences were conducted across 19 trauma centers in the USA during 2022. Discussion topics were chosen to identify patients’ motivation to join research studies, preferences regarding consent, suggestions for increasing diversity and access, and feelings regarding outcomes, efficacy, and exception from informed consent. The focus groups were audio recorded, transcribed, coded, and analyzed to identify the range of perspectives expressed and any common themes that emerged.Results Ten 90-minute focus groups included patients/caregiver (n=21/1) and researchers (n=14). Data analysis identified common themes emerging across groups. The importance of trust and preexisting relationships with the clinical care team were the most common themes across all groups.Conclusion Our findings reveal common themes in preferences, motivations, and best practices to increase patient/caregiver participation in trauma research. The project’s next phases are distribution of a vignette-based survey to establish broad stakeholder consensus; education and dissemination activities to share strategies that increase research engagement and relevance for patients; and the formation of a panel of patients to support future research endeavors.Level of evidence Level IV.https://tsaco.bmj.com/content/9/1/e001274.full |
| spellingShingle | Deborah M Stein Elliott R Haut Michelle A Price Pam J Bixby Anna Newcomb Rosemary Kozar Rochelle Dicker Princess Fortin Rachel D Appelbaum Katherine Joseph Morgan Hennessy Sue Prentiss Alexandra McConnell-Hill Rochelle Flayter Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis Trauma Surgery & Acute Care Open |
| title | Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis |
| title_full | Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis |
| title_fullStr | Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis |
| title_full_unstemmed | Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis |
| title_short | Community of trauma care partnering with stakeholders to improve injury outcomes: focus group analysis |
| title_sort | community of trauma care partnering with stakeholders to improve injury outcomes focus group analysis |
| url | https://tsaco.bmj.com/content/9/1/e001274.full |
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