A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism

Objective To explore the intervention dilemma of autistic children and their parents’ upbringing and growth experience, aiming to provide evidence for family support measures. Methods Through a descriptive phenomenological study, semi-structured interviews were conducted with 20 parents of children...

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Main Author: DAI Yushen, ZHANG Lifeng, FENG Yongshen, LIU Shaofei, JI Yan, CHEN Miaoying
Format: Article
Language:zho
Published: Editorial Office of Journal of New Medicine 2024-12-01
Series:Xin yixue
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Online Access:https://www.xinyixue.cn/fileup/0253-9802/PDF/1736748465098-1720122001.pdf
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author DAI Yushen, ZHANG Lifeng, FENG Yongshen, LIU Shaofei, JI Yan, CHEN Miaoying
author_facet DAI Yushen, ZHANG Lifeng, FENG Yongshen, LIU Shaofei, JI Yan, CHEN Miaoying
author_sort DAI Yushen, ZHANG Lifeng, FENG Yongshen, LIU Shaofei, JI Yan, CHEN Miaoying
collection DOAJ
description Objective To explore the intervention dilemma of autistic children and their parents’ upbringing and growth experience, aiming to provide evidence for family support measures. Methods Through a descriptive phenomenological study, semi-structured interviews were conducted with 20 parents of children with autism from January to April 2023 at Child Development and Behavior Center of the Third Affiliated Hospital of Sun Yat-sen University. And data were analyzed using Colaizzi’s 7-step method. Results The intervention dilemmas of children with autism were distilled into two themes: lack of knowledge and resources, and intra-family conflict and disagreement. The parenting and growth experiences of parents were distilled into three themes: inclusive and tenacious mentality, multi-dimensional improvement of ability, and family members’ reconstruction of self and life value. Conclusions Parents of children with autism face intervention dilemmas while having positive caring growth experiences. Supporting children with autism and helping parents positively cope with challenges is crucial.
format Article
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institution Kabale University
issn 0253-9802
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publisher Editorial Office of Journal of New Medicine
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spelling doaj-art-a67a50f137c648588472bb1449a68efe2025-01-13T07:32:20ZzhoEditorial Office of Journal of New MedicineXin yixue0253-98022024-12-0155121009101610.3969/j.issn.0253-9802.2024.12.007A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autismDAI Yushen, ZHANG Lifeng, FENG Yongshen, LIU Shaofei, JI Yan, CHEN Miaoying01. School of Nursing, Sun Yat-sen University, Guangzhou 510080, China;2. Child Development and Behavior Center, the Third Affiliated Hospital of Sun Yat-sen University, Guangzhou 510630, ChinaObjective To explore the intervention dilemma of autistic children and their parents’ upbringing and growth experience, aiming to provide evidence for family support measures. Methods Through a descriptive phenomenological study, semi-structured interviews were conducted with 20 parents of children with autism from January to April 2023 at Child Development and Behavior Center of the Third Affiliated Hospital of Sun Yat-sen University. And data were analyzed using Colaizzi’s 7-step method. Results The intervention dilemmas of children with autism were distilled into two themes: lack of knowledge and resources, and intra-family conflict and disagreement. The parenting and growth experiences of parents were distilled into three themes: inclusive and tenacious mentality, multi-dimensional improvement of ability, and family members’ reconstruction of self and life value. Conclusions Parents of children with autism face intervention dilemmas while having positive caring growth experiences. Supporting children with autism and helping parents positively cope with challenges is crucial.https://www.xinyixue.cn/fileup/0253-9802/PDF/1736748465098-1720122001.pdfautism|growth dilemma|intervention|parents|qualitative research
spellingShingle DAI Yushen, ZHANG Lifeng, FENG Yongshen, LIU Shaofei, JI Yan, CHEN Miaoying
A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
Xin yixue
autism|growth dilemma|intervention|parents|qualitative research
title A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
title_full A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
title_fullStr A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
title_full_unstemmed A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
title_short A qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
title_sort qualitative study of the intervention dilemmas and parenting growth experiences for parents of children with autism
topic autism|growth dilemma|intervention|parents|qualitative research
url https://www.xinyixue.cn/fileup/0253-9802/PDF/1736748465098-1720122001.pdf
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AT daiyushenzhanglifengfengyongshenliushaofeijiyanchenmiaoying qualitativestudyoftheinterventiondilemmasandparentinggrowthexperiencesforparentsofchildrenwithautism