Social networks, social capital and end-of-life care for people with dementia: a realist review
Objectives (1) To develop an understanding of how social capital may be conceptualised within the context of end-of-life care and how it can influence outcomes for people with dementia and their families with specific reference to the context and mechanisms that explain observed outcomes. (2) To pro...
Saved in:
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2019-12-01
|
| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/9/12/e030703.full |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1850106418352357376 |
|---|---|
| author | Patrick Stone Elizabeth L Sampson Nuriye Kupeli Joseph M Sawyer Libby Sallnow |
| author_facet | Patrick Stone Elizabeth L Sampson Nuriye Kupeli Joseph M Sawyer Libby Sallnow |
| author_sort | Patrick Stone |
| collection | DOAJ |
| description | Objectives (1) To develop an understanding of how social capital may be conceptualised within the context of end-of-life care and how it can influence outcomes for people with dementia and their families with specific reference to the context and mechanisms that explain observed outcomes. (2) To produce guidance for healthcare systems and researchers to better structure and design a public health approach to end-of-life care for people with dementia.Design A realist review.Data sources MEDLINE, EMBASE, CINAHL and grey literature.Analysis We conceptualised social capital as a complex intervention and, in order to understand how change is generated, used realist evaluation methods to create different configurations of context, mechanism and outcomes. We conducted an iterative search focusing on social capital, social networks and end-of-life care in dementia. All study designs and outcomes were screened and analysed to elicit explanations for a range of outcomes identified. Explanations were consolidated into an overarching programme theory that drew on substantive theory from the social sciences and a public health approach to palliative care.Results We identified 118 articles from 16 countries ranging from 1992 to 2018. A total of 40 context-mechanism-outcome configurations help explain how social capital may influence end-of-life care for people with dementia. Such influence was identified within five key areas. These included: (1) socially orientating a person with dementia following diagnosis; (2) transitions in the physical environment of care; (3) how the caregiving experience is viewed by those directly involved with it; (4) transition of a person with dementia into the fourth age; (5) the decision making processes underpinning such processes.Conclusion This review contributes to the dispassionate understanding of how complex systems such as community and social capital might be viewed as a tool to improve end-of-life care for people with dementia.PROSPERO registration number CRD42018084524. |
| format | Article |
| id | doaj-art-a6701d9192fa41b9ab56ea702297570a |
| institution | OA Journals |
| issn | 2044-6055 |
| language | English |
| publishDate | 2019-12-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-a6701d9192fa41b9ab56ea702297570a2025-08-20T02:38:50ZengBMJ Publishing GroupBMJ Open2044-60552019-12-0191210.1136/bmjopen-2019-030703Social networks, social capital and end-of-life care for people with dementia: a realist reviewPatrick Stone0Elizabeth L Sampson1Nuriye Kupeli2Joseph M Sawyer3Libby Sallnow4Marie Curie Palliative Care Research Department, University College London, London, UKMarie Curie Palliative Care Research Department, Division of Psychiatry, University College, London, UKMarie Curie Palliative Care Research Department, University College London, London, UK1 Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK1 Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UKObjectives (1) To develop an understanding of how social capital may be conceptualised within the context of end-of-life care and how it can influence outcomes for people with dementia and their families with specific reference to the context and mechanisms that explain observed outcomes. (2) To produce guidance for healthcare systems and researchers to better structure and design a public health approach to end-of-life care for people with dementia.Design A realist review.Data sources MEDLINE, EMBASE, CINAHL and grey literature.Analysis We conceptualised social capital as a complex intervention and, in order to understand how change is generated, used realist evaluation methods to create different configurations of context, mechanism and outcomes. We conducted an iterative search focusing on social capital, social networks and end-of-life care in dementia. All study designs and outcomes were screened and analysed to elicit explanations for a range of outcomes identified. Explanations were consolidated into an overarching programme theory that drew on substantive theory from the social sciences and a public health approach to palliative care.Results We identified 118 articles from 16 countries ranging from 1992 to 2018. A total of 40 context-mechanism-outcome configurations help explain how social capital may influence end-of-life care for people with dementia. Such influence was identified within five key areas. These included: (1) socially orientating a person with dementia following diagnosis; (2) transitions in the physical environment of care; (3) how the caregiving experience is viewed by those directly involved with it; (4) transition of a person with dementia into the fourth age; (5) the decision making processes underpinning such processes.Conclusion This review contributes to the dispassionate understanding of how complex systems such as community and social capital might be viewed as a tool to improve end-of-life care for people with dementia.PROSPERO registration number CRD42018084524.https://bmjopen.bmj.com/content/9/12/e030703.full |
| spellingShingle | Patrick Stone Elizabeth L Sampson Nuriye Kupeli Joseph M Sawyer Libby Sallnow Social networks, social capital and end-of-life care for people with dementia: a realist review BMJ Open |
| title | Social networks, social capital and end-of-life care for people with dementia: a realist review |
| title_full | Social networks, social capital and end-of-life care for people with dementia: a realist review |
| title_fullStr | Social networks, social capital and end-of-life care for people with dementia: a realist review |
| title_full_unstemmed | Social networks, social capital and end-of-life care for people with dementia: a realist review |
| title_short | Social networks, social capital and end-of-life care for people with dementia: a realist review |
| title_sort | social networks social capital and end of life care for people with dementia a realist review |
| url | https://bmjopen.bmj.com/content/9/12/e030703.full |
| work_keys_str_mv | AT patrickstone socialnetworkssocialcapitalandendoflifecareforpeoplewithdementiaarealistreview AT elizabethlsampson socialnetworkssocialcapitalandendoflifecareforpeoplewithdementiaarealistreview AT nuriyekupeli socialnetworkssocialcapitalandendoflifecareforpeoplewithdementiaarealistreview AT josephmsawyer socialnetworkssocialcapitalandendoflifecareforpeoplewithdementiaarealistreview AT libbysallnow socialnetworkssocialcapitalandendoflifecareforpeoplewithdementiaarealistreview |