“I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis

Abstract Background The circumstances and factors that explain diagnostic and treatment delays in TB are complex. The present study was planned to understand the journey of new pulmonary TB patients from the time they had their first symptom(s) up to the time they started treatment at a government o...

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Main Authors: Anand D Meundi, Jan Hendrik Richardus
Format: Article
Language:English
Published: BMC 2025-03-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-025-12547-6
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author Anand D Meundi
Jan Hendrik Richardus
author_facet Anand D Meundi
Jan Hendrik Richardus
author_sort Anand D Meundi
collection DOAJ
description Abstract Background The circumstances and factors that explain diagnostic and treatment delays in TB are complex. The present study was planned to understand the journey of new pulmonary TB patients from the time they had their first symptom(s) up to the time they started treatment at a government or private health facility in Bengaluru, a metropolitan city in India. Methods In depth interviews were conducted with twenty-six bacteriologically positive TB patients (15 male, 11 females aged 18–56 years) put on first line anti-TB treatment at government and private health facilities in Bengaluru city. Thematic content analysis of the transcript was done using the Framework approach. Constructs of the Health Belief Model were used to create codes in the framework. Results Delays were seen in TB diagnosis and treatment in government and private sectors. Pill burden and long duration of treatment were barriers perceived by patients. Myths and lack of knowledge about TB were documented. Patients acknowledged help provided by Non-Government Organizations. All TB patients had received Direct Benefit Transfer support from the national programme. Conclusions Empowering private providers to diagnose TB early and enabling channels for seamless referrals to a facility where anti TB treatment is provided is suggested. Tailored counselling by grass root health workers to deal with pill burden and long duration of treatment may be considered. Dissemination of knowledge about TB at community level by making it a part of agenda during routine interactions may be useful. Supporting wider engagement with non-government organizations in TB diagnosis and follow-up during treatment is recommended.
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spelling doaj-art-9b95624da13b4fd8ba3a91cbad9aa5652025-08-20T03:03:32ZengBMCBMC Health Services Research1472-69632025-03-0125111010.1186/s12913-025-12547-6“I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosisAnand D Meundi0Jan Hendrik Richardus1Department of Community Medicine, Dr Chandramma Dayananda Sagar Institute of Medical Education and Research, Dayananda Sagar UniversityDepartment of Public Health, Erasmus MC, University Medical CenterAbstract Background The circumstances and factors that explain diagnostic and treatment delays in TB are complex. The present study was planned to understand the journey of new pulmonary TB patients from the time they had their first symptom(s) up to the time they started treatment at a government or private health facility in Bengaluru, a metropolitan city in India. Methods In depth interviews were conducted with twenty-six bacteriologically positive TB patients (15 male, 11 females aged 18–56 years) put on first line anti-TB treatment at government and private health facilities in Bengaluru city. Thematic content analysis of the transcript was done using the Framework approach. Constructs of the Health Belief Model were used to create codes in the framework. Results Delays were seen in TB diagnosis and treatment in government and private sectors. Pill burden and long duration of treatment were barriers perceived by patients. Myths and lack of knowledge about TB were documented. Patients acknowledged help provided by Non-Government Organizations. All TB patients had received Direct Benefit Transfer support from the national programme. Conclusions Empowering private providers to diagnose TB early and enabling channels for seamless referrals to a facility where anti TB treatment is provided is suggested. Tailored counselling by grass root health workers to deal with pill burden and long duration of treatment may be considered. Dissemination of knowledge about TB at community level by making it a part of agenda during routine interactions may be useful. Supporting wider engagement with non-government organizations in TB diagnosis and follow-up during treatment is recommended.https://doi.org/10.1186/s12913-025-12547-6JourneyTB patientsUrbanHealth belief modelIndia
spellingShingle Anand D Meundi
Jan Hendrik Richardus
“I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis
BMC Health Services Research
Journey
TB patients
Urban
Health belief model
India
title “I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis
title_full “I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis
title_fullStr “I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis
title_full_unstemmed “I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis
title_short “I consulted so many doctors”: the journey of tuberculosis patients in Bengaluru, India, from first symptoms to diagnosis
title_sort i consulted so many doctors the journey of tuberculosis patients in bengaluru india from first symptoms to diagnosis
topic Journey
TB patients
Urban
Health belief model
India
url https://doi.org/10.1186/s12913-025-12547-6
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