Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study

Neurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psy...

Full description

Saved in:
Bibliographic Details
Main Authors: María Cristina Lopes Dos Santos, María Victoria Navarta-Sánchez, José Antonio Moler, Ignacio García-Lautre, Sagrario Anaut-Bravo, Mari Carmen Portillo
Format: Article
Language:English
Published: Wiley 2020-01-01
Series:Parkinson's Disease
Online Access:http://dx.doi.org/10.1155/2020/2086834
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1832546962879021056
author María Cristina Lopes Dos Santos
María Victoria Navarta-Sánchez
José Antonio Moler
Ignacio García-Lautre
Sagrario Anaut-Bravo
Mari Carmen Portillo
author_facet María Cristina Lopes Dos Santos
María Victoria Navarta-Sánchez
José Antonio Moler
Ignacio García-Lautre
Sagrario Anaut-Bravo
Mari Carmen Portillo
author_sort María Cristina Lopes Dos Santos
collection DOAJ
description Neurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson’s disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson’s disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson’s or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.
format Article
id doaj-art-9b174e9654b7409692818069e7bb3200
institution Kabale University
issn 2090-8083
2042-0080
language English
publishDate 2020-01-01
publisher Wiley
record_format Article
series Parkinson's Disease
spelling doaj-art-9b174e9654b7409692818069e7bb32002025-02-03T06:46:29ZengWileyParkinson's Disease2090-80832042-00802020-01-01202010.1155/2020/20868342086834Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative StudyMaría Cristina Lopes Dos Santos0María Victoria Navarta-Sánchez1José Antonio Moler2Ignacio García-Lautre3Sagrario Anaut-Bravo4Mari Carmen Portillo5Department of Sociology and Social Work, Public University of Navarra, Pamplona, SpainDepartment of Nursing. Faculty of Medicine, Autonomous University of Madrid, Madrid, SpainDepartment of Statistics, Information Technology and Mathematics, Public University of Navarra, Pamplona, SpainDepartment of Statistics, Information Technology and Mathematics, Public University of Navarra, Pamplona, SpainDepartment of Sociology and Social Work, Public University of Navarra, Pamplona, SpainARC Wessex, NIHR, School of Health Sciences, University of Southampton, Southampton, UKNeurodegenerative diseases such as Parkinson’s and dementia are highly prevalent worldwide. People who suffer from these disorders often receive in-home care and assistance from family members, who must dedicate a considerable amount of time to the care recipient. The study of family caregivers’ psychosocial adjustment to the degenerative processes of both conditions is of interest due to the implications for the quality of life of both the care receiver and the caregiver, as well as other family members. This study compares the psychosocial adjustment of family members who care for people with dementia and Parkinson’s disease and identifies the main sociodemographic variables that affect the processes of adjustment to both conditions. To this end, the Psychosocial Adjustment to Illness Scale (PAIS-SR) and a sociodemographic form were administered to 157 family caregivers in Navarre, Spain. The results show that adjustment to the disease in family caregivers of people with Parkinson’s disease and dementia is, in general, satisfactory and related to variables such as place of residence, income, and employment status. The illness itself (Parkinson’s or dementia), however, is found to be the most influential variable in the level of psychosocial adjustment.http://dx.doi.org/10.1155/2020/2086834
spellingShingle María Cristina Lopes Dos Santos
María Victoria Navarta-Sánchez
José Antonio Moler
Ignacio García-Lautre
Sagrario Anaut-Bravo
Mari Carmen Portillo
Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study
Parkinson's Disease
title Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study
title_full Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study
title_fullStr Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study
title_full_unstemmed Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study
title_short Psychosocial Adjustment of In-Home Caregivers of Family Members with Dementia and Parkinson’s Disease: A Comparative Study
title_sort psychosocial adjustment of in home caregivers of family members with dementia and parkinson s disease a comparative study
url http://dx.doi.org/10.1155/2020/2086834
work_keys_str_mv AT mariacristinalopesdossantos psychosocialadjustmentofinhomecaregiversoffamilymemberswithdementiaandparkinsonsdiseaseacomparativestudy
AT mariavictorianavartasanchez psychosocialadjustmentofinhomecaregiversoffamilymemberswithdementiaandparkinsonsdiseaseacomparativestudy
AT joseantoniomoler psychosocialadjustmentofinhomecaregiversoffamilymemberswithdementiaandparkinsonsdiseaseacomparativestudy
AT ignaciogarcialautre psychosocialadjustmentofinhomecaregiversoffamilymemberswithdementiaandparkinsonsdiseaseacomparativestudy
AT sagrarioanautbravo psychosocialadjustmentofinhomecaregiversoffamilymemberswithdementiaandparkinsonsdiseaseacomparativestudy
AT maricarmenportillo psychosocialadjustmentofinhomecaregiversoffamilymemberswithdementiaandparkinsonsdiseaseacomparativestudy