Clinician and patient readiness to engage with community health workers at epilepsy care centers

IntroductionFor patients with epilepsy, medical and social support care gaps may potentially be addressed by clinic-based community health workers (CHWs), particularly for patients most susceptible to health disparities. However, little is known of health professionals’ readiness to integrate CHWs i...

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Main Authors: Felicia C. Chu, Barbara C. Jobst, Anna Murray, Trina Dawson, Christine F. Frisard, Barbara Glidden, Sarah J. Kaden, Elaine T. Kiriakopoulos
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-04-01
Series:Frontiers in Neurology
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Online Access:https://www.frontiersin.org/articles/10.3389/fneur.2025.1580655/full
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author Felicia C. Chu
Barbara C. Jobst
Barbara C. Jobst
Anna Murray
Trina Dawson
Christine F. Frisard
Barbara Glidden
Sarah J. Kaden
Elaine T. Kiriakopoulos
Elaine T. Kiriakopoulos
author_facet Felicia C. Chu
Barbara C. Jobst
Barbara C. Jobst
Anna Murray
Trina Dawson
Christine F. Frisard
Barbara Glidden
Sarah J. Kaden
Elaine T. Kiriakopoulos
Elaine T. Kiriakopoulos
author_sort Felicia C. Chu
collection DOAJ
description IntroductionFor patients with epilepsy, medical and social support care gaps may potentially be addressed by clinic-based community health workers (CHWs), particularly for patients most susceptible to health disparities. However, little is known of health professionals’ readiness to integrate CHWs into epilepsy health care delivery.MethodsAn online digital survey was developed and distributed to physicians, nurses and social workers working in 12 comprehensive epilepsy centers in the New England region. Questions in the survey pertained to respondents’ perceptions of working with and addressing clinic needs via a CHW at an epilepsy center. Demographic data were also collected.ResultsSurvey results across physicians, nurses and social workers (n = 65) revealed low knowledge and experience with CHWs. Epilepsy clinicians are unaware of the scientific evidence showing positive effects of CHW health outcomes. Knowledge of CHW recruitment, training and supervision is low. Despite this, the data collected demonstrate that social determinants of health care gaps exist for epilepsy patients receiving care at epilepsy centers. These gaps could potentially be addressed by a nontraditional healthcare professional, such as a CHW, instead of a social worker or nurse, thus alleviating burden from advanced practice provider members to address other clinically based patient needs.ConclusionDespite limited understanding of CHW roles or firsthand experience with CHWs, clinician and patient readiness for integration of CHW was high, with a strong indication that clinicians would refer patients to a CHW and that patients felt the potential for health benefit if provided with assistance from a CHW.
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spelling doaj-art-9ae121ef326a481a90ad498ca4eac3672025-08-20T02:26:30ZengFrontiers Media S.A.Frontiers in Neurology1664-22952025-04-011610.3389/fneur.2025.15806551580655Clinician and patient readiness to engage with community health workers at epilepsy care centersFelicia C. Chu0Barbara C. Jobst1Barbara C. Jobst2Anna Murray3Trina Dawson4Christine F. Frisard5Barbara Glidden6Sarah J. Kaden7Elaine T. Kiriakopoulos8Elaine T. Kiriakopoulos9Department of Neurology, University of Massachusetts Chan Medical School, Worcester, MA, United StatesDepartment of Neurology, Geisel School of Medicine, Dartmouth College, Hanover, NH, United StatesHOBSCOTCH Institute, Dartmouth Health, Lebanon, NH, United StatesHOBSCOTCH Institute, Dartmouth Health, Lebanon, NH, United StatesHOBSCOTCH Institute, Dartmouth Health, Lebanon, NH, United StatesDepartment of Neurology, University of Massachusetts Chan Medical School, Worcester, MA, United StatesDepartment of Neurology, University of Massachusetts Chan Medical School, Worcester, MA, United StatesHOBSCOTCH Institute, Dartmouth Health, Lebanon, NH, United StatesDepartment of Neurology, Geisel School of Medicine, Dartmouth College, Hanover, NH, United StatesHOBSCOTCH Institute, Dartmouth Health, Lebanon, NH, United StatesIntroductionFor patients with epilepsy, medical and social support care gaps may potentially be addressed by clinic-based community health workers (CHWs), particularly for patients most susceptible to health disparities. However, little is known of health professionals’ readiness to integrate CHWs into epilepsy health care delivery.MethodsAn online digital survey was developed and distributed to physicians, nurses and social workers working in 12 comprehensive epilepsy centers in the New England region. Questions in the survey pertained to respondents’ perceptions of working with and addressing clinic needs via a CHW at an epilepsy center. Demographic data were also collected.ResultsSurvey results across physicians, nurses and social workers (n = 65) revealed low knowledge and experience with CHWs. Epilepsy clinicians are unaware of the scientific evidence showing positive effects of CHW health outcomes. Knowledge of CHW recruitment, training and supervision is low. Despite this, the data collected demonstrate that social determinants of health care gaps exist for epilepsy patients receiving care at epilepsy centers. These gaps could potentially be addressed by a nontraditional healthcare professional, such as a CHW, instead of a social worker or nurse, thus alleviating burden from advanced practice provider members to address other clinically based patient needs.ConclusionDespite limited understanding of CHW roles or firsthand experience with CHWs, clinician and patient readiness for integration of CHW was high, with a strong indication that clinicians would refer patients to a CHW and that patients felt the potential for health benefit if provided with assistance from a CHW.https://www.frontiersin.org/articles/10.3389/fneur.2025.1580655/fullepilepsysocial determinants of healthcommunity health workershealth equitycare coordination
spellingShingle Felicia C. Chu
Barbara C. Jobst
Barbara C. Jobst
Anna Murray
Trina Dawson
Christine F. Frisard
Barbara Glidden
Sarah J. Kaden
Elaine T. Kiriakopoulos
Elaine T. Kiriakopoulos
Clinician and patient readiness to engage with community health workers at epilepsy care centers
Frontiers in Neurology
epilepsy
social determinants of health
community health workers
health equity
care coordination
title Clinician and patient readiness to engage with community health workers at epilepsy care centers
title_full Clinician and patient readiness to engage with community health workers at epilepsy care centers
title_fullStr Clinician and patient readiness to engage with community health workers at epilepsy care centers
title_full_unstemmed Clinician and patient readiness to engage with community health workers at epilepsy care centers
title_short Clinician and patient readiness to engage with community health workers at epilepsy care centers
title_sort clinician and patient readiness to engage with community health workers at epilepsy care centers
topic epilepsy
social determinants of health
community health workers
health equity
care coordination
url https://www.frontiersin.org/articles/10.3389/fneur.2025.1580655/full
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