Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness
Introduction Participatory research is a study method that engages patients in research programs, ideally from study design through to dissemination. It is not commonly used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a participatory...
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| Language: | English |
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BMJ Publishing Group
2021-03-01
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| Series: | BMJ Open Diabetes Research & Care |
| Online Access: | https://drc.bmj.com/content/9/1/e002154.full |
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| author | Gillian L Booth Stephen W Hwang Kerry McBrien David J T Campbell Rachel B Campbell Anna DiGiandomenico Matthew Larsen Marleane A Davidson |
| author_facet | Gillian L Booth Stephen W Hwang Kerry McBrien David J T Campbell Rachel B Campbell Anna DiGiandomenico Matthew Larsen Marleane A Davidson |
| author_sort | Gillian L Booth |
| collection | DOAJ |
| description | Introduction Participatory research is a study method that engages patients in research programs, ideally from study design through to dissemination. It is not commonly used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a participatory research project and to highlight the experiences of both patient co-researchers and academic researchers.Research design and methods We recruited people with lived experience of homelessness (PWLEH) and diabetes in Toronto, Canada to become patient co-researchers. They were asked to commit to attending biweekly meetings. We undertook two major research projects: concept mapping to choose a research focus; and photovoice to explore accessing healthy food while homeless. We used a convergent mixed-methods design to evaluate their experience.Results A diverse group of eight PWLEH had an average attendance of 82% over 21 meetings—despite this success, we encountered a number of challenges of conducting this research: funding, ethics approval and recruitment were particularly difficult. Group members reported that participation improved their ability to self-advocate in their diabetes care and provided them with tangible skills and social benefits. Group members stated that they valued being involved in all aspects of the research, in particular knowledge translation activities, including advocating for nutritious food at shelters; presenting to stakeholders; and meeting with policymakers.Conclusions The use of participatory research methods enables academic researchers to support community members in pursuing research that is pertinent to them and which has a positive impact. In our study, co-researchers contributed in meaningful ways and also valued the experience. |
| format | Article |
| id | doaj-art-997f3c238fbe411191db6015937f2b80 |
| institution | OA Journals |
| issn | 2052-4897 |
| language | English |
| publishDate | 2021-03-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open Diabetes Research & Care |
| spelling | doaj-art-997f3c238fbe411191db6015937f2b802025-08-20T01:58:55ZengBMJ Publishing GroupBMJ Open Diabetes Research & Care2052-48972021-03-019110.1136/bmjdrc-2021-002154Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessnessGillian L Booth0Stephen W Hwang1Kerry McBrien2David J T Campbell3Rachel B Campbell4Anna DiGiandomenico5Matthew Larsen6Marleane A Davidson7ICES, Toronto, ON, CanadaDalla Lana School of Public Health, University of Toronto, Toronto, Ontario, CanadaDepartment of Family Medicine, University of Calgary Cumming School of Medicine, Calgary, Alberta, CanadaDepartment of Cardiac Sciences, University of Calgary, Calgary, Alberta, CanadaDepartment of Medicine, University of Calgary Cumming School of Medicine, Calgary, Alberta, CanadaPatient Partners, Toronto, Ontario, CanadaDepartment of Medicine, University of Calgary Cumming School of Medicine, Calgary, Alberta, CanadaPatient Partners, Toronto, Ontario, CanadaIntroduction Participatory research is a study method that engages patients in research programs, ideally from study design through to dissemination. It is not commonly used in diabetes health services research. Our objectives were to describe the process and challenges of conducting a participatory research project and to highlight the experiences of both patient co-researchers and academic researchers.Research design and methods We recruited people with lived experience of homelessness (PWLEH) and diabetes in Toronto, Canada to become patient co-researchers. They were asked to commit to attending biweekly meetings. We undertook two major research projects: concept mapping to choose a research focus; and photovoice to explore accessing healthy food while homeless. We used a convergent mixed-methods design to evaluate their experience.Results A diverse group of eight PWLEH had an average attendance of 82% over 21 meetings—despite this success, we encountered a number of challenges of conducting this research: funding, ethics approval and recruitment were particularly difficult. Group members reported that participation improved their ability to self-advocate in their diabetes care and provided them with tangible skills and social benefits. Group members stated that they valued being involved in all aspects of the research, in particular knowledge translation activities, including advocating for nutritious food at shelters; presenting to stakeholders; and meeting with policymakers.Conclusions The use of participatory research methods enables academic researchers to support community members in pursuing research that is pertinent to them and which has a positive impact. In our study, co-researchers contributed in meaningful ways and also valued the experience.https://drc.bmj.com/content/9/1/e002154.full |
| spellingShingle | Gillian L Booth Stephen W Hwang Kerry McBrien David J T Campbell Rachel B Campbell Anna DiGiandomenico Matthew Larsen Marleane A Davidson Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness BMJ Open Diabetes Research & Care |
| title | Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness |
| title_full | Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness |
| title_fullStr | Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness |
| title_full_unstemmed | Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness |
| title_short | Using a community-based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness |
| title_sort | using a community based participatory research approach to meaningfully engage those with lived experience of diabetes and homelessness |
| url | https://drc.bmj.com/content/9/1/e002154.full |
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