Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite

Abstract BackgroundInterventions that are self-administered and delivered online are increasingly being seen as a flexible way to support family caregivers. Intervention research should prioritize the measurement of feasibility throughout all of the stages of intervention deve...

Full description

Saved in:
Bibliographic Details
Main Authors: Amber D Thompson, Alexandra L Terrill, Michael Caserta, Bob Wong, Eli Iacob, Catharine Sparks, Louisa Stark, Rebecca L Utz
Format: Article
Language:English
Published: JMIR Publications 2025-08-01
Series:JMIR Aging
Online Access:https://aging.jmir.org/2025/1/e71792
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1849223169943011328
author Amber D Thompson
Alexandra L Terrill
Michael Caserta
Bob Wong
Eli Iacob
Catharine Sparks
Louisa Stark
Rebecca L Utz
author_facet Amber D Thompson
Alexandra L Terrill
Michael Caserta
Bob Wong
Eli Iacob
Catharine Sparks
Louisa Stark
Rebecca L Utz
author_sort Amber D Thompson
collection DOAJ
description Abstract BackgroundInterventions that are self-administered and delivered online are increasingly being seen as a flexible way to support family caregivers. Intervention research should prioritize the measurement of feasibility throughout all of the stages of intervention development and evaluation to provide the essential feedback loop needed for the iterative development and refinement process. ObjectiveWe describe the methodology and data used to assess the feasibility, usability, and acceptability of the Time for Living and Caring (TLC) intervention, a technology-delivered intervention (app) for dementia caregivers to improve respite time use. MethodsThe feasibility analysis is theoretically guided by a multidimensional definition of feasibility and uses a mixed-methods research design. Stakeholder feedback collected via focus groups during intervention development (n=15), self-reported surveys from participants enrolled in the pilot trial of the intervention (n=163), surveys of a nationwide sample of respite providers (n=57), and end-user statistics, captured passively by Google Analytics from those using the app, were used in the feasibility analysis of the TLC intervention. ResultsThe TLC study used an appropriate design and data collection procedures, along with acceptable recruitment capability. Out of 5 intervention features, 4 received favorable ratings (range of 82%‐99%) by intervention participants and respite providers, which, when combined with open-ended recommendations for improvements, indicate a high degree of usability. Acceptability was measured through appraisal of the intervention experience (135/159, 85% positive), potential future use (127/163, 78%), willingness to recommend (148/163, 91%), and perceived benefit (135/163, 83%). ConclusionsTaken together, the data suggest that the TLC app is a promising intervention that could be implemented as an on-demand resource for respite-using caregivers, irrespective of where they are located or when they choose to access it. Additionally, this paper provides a blueprint for systematically evaluating multiple dimensions of feasibility, using various forms of mixed-methods data collected during intervention development and pilot testing of an intervention, which should help streamline the eventual implementation of effective interventions in real-world settings.
format Article
id doaj-art-9958af2fd7ee4f12973b5eb658fc3fe1
institution Kabale University
issn 2561-7605
language English
publishDate 2025-08-01
publisher JMIR Publications
record_format Article
series JMIR Aging
spelling doaj-art-9958af2fd7ee4f12973b5eb658fc3fe12025-08-25T20:52:55ZengJMIR PublicationsJMIR Aging2561-76052025-08-018e71792e7179210.2196/71792Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve RespiteAmber D Thompsonhttp://orcid.org/0000-0002-0128-0089Alexandra L Terrillhttp://orcid.org/0000-0002-2698-7435Michael Casertahttp://orcid.org/0000-0002-8198-750XBob Wonghttp://orcid.org/0000-0003-1386-4505Eli Iacobhttp://orcid.org/0000-0003-1617-0314Catharine Sparkshttp://orcid.org/0009-0002-2686-5582Louisa Starkhttp://orcid.org/0000-0002-2978-7279Rebecca L Utzhttp://orcid.org/0000-0001-7734-7676 Abstract BackgroundInterventions that are self-administered and delivered online are increasingly being seen as a flexible way to support family caregivers. Intervention research should prioritize the measurement of feasibility throughout all of the stages of intervention development and evaluation to provide the essential feedback loop needed for the iterative development and refinement process. ObjectiveWe describe the methodology and data used to assess the feasibility, usability, and acceptability of the Time for Living and Caring (TLC) intervention, a technology-delivered intervention (app) for dementia caregivers to improve respite time use. MethodsThe feasibility analysis is theoretically guided by a multidimensional definition of feasibility and uses a mixed-methods research design. Stakeholder feedback collected via focus groups during intervention development (n=15), self-reported surveys from participants enrolled in the pilot trial of the intervention (n=163), surveys of a nationwide sample of respite providers (n=57), and end-user statistics, captured passively by Google Analytics from those using the app, were used in the feasibility analysis of the TLC intervention. ResultsThe TLC study used an appropriate design and data collection procedures, along with acceptable recruitment capability. Out of 5 intervention features, 4 received favorable ratings (range of 82%‐99%) by intervention participants and respite providers, which, when combined with open-ended recommendations for improvements, indicate a high degree of usability. Acceptability was measured through appraisal of the intervention experience (135/159, 85% positive), potential future use (127/163, 78%), willingness to recommend (148/163, 91%), and perceived benefit (135/163, 83%). ConclusionsTaken together, the data suggest that the TLC app is a promising intervention that could be implemented as an on-demand resource for respite-using caregivers, irrespective of where they are located or when they choose to access it. Additionally, this paper provides a blueprint for systematically evaluating multiple dimensions of feasibility, using various forms of mixed-methods data collected during intervention development and pilot testing of an intervention, which should help streamline the eventual implementation of effective interventions in real-world settings.https://aging.jmir.org/2025/1/e71792
spellingShingle Amber D Thompson
Alexandra L Terrill
Michael Caserta
Bob Wong
Eli Iacob
Catharine Sparks
Louisa Stark
Rebecca L Utz
Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite
JMIR Aging
title Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite
title_full Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite
title_fullStr Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite
title_full_unstemmed Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite
title_short Assessing the Time for Living and Caring (TLC) Study: Mixed-Methods Feasibility Study of a Web-Based Caregiver Intervention to Improve Respite
title_sort assessing the time for living and caring tlc study mixed methods feasibility study of a web based caregiver intervention to improve respite
url https://aging.jmir.org/2025/1/e71792
work_keys_str_mv AT amberdthompson assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT alexandralterrill assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT michaelcaserta assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT bobwong assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT eliiacob assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT catharinesparks assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT louisastark assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite
AT rebeccalutz assessingthetimeforlivingandcaringtlcstudymixedmethodsfeasibilitystudyofawebbasedcaregiverinterventiontoimproverespite