A qualitative study on dietary behaviors and nutritional management needs of patients with active systemic lupus erythematosus (系统性红斑狼疮活动期患者饮食行为与营养管理需求的质性研究)

A qualitative study on dietary behaviors and nutritional management needs of patients with active systemic lupus erythematosus (系统性红斑狼疮活动期患者饮食行为与营养管理需求的质性研究)

Objective To investigate the awareness, behavioral patterns, and current status of medical care support regarding nutritional needs among patients with active systemic lupus erythematosus (SLE). Methods A descriptive study was conducted, involving semi-structured interviews with 10 patients with a...

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Main Authors: SONG Weiting (宋炜婷), LI Yuwei (李雨蔚), QIAO Caicai (乔彩彩), WANG Sa (王飒), XUE Fei (薛菲), WANG Yuzhen (王玉珍), MIAO Huali (苗华丽)
Format: Article
Language:zho
Published: Journal of International Translational Medicine Limited 2025-07-01
Series:中西医结合护理
Subjects:
systemic lupus erythematosus
active stage
dietary behavior
nutritional management
qualitative research
系统性红斑狼疮
活动期
饮食行为
营养管理
质性研究
Online Access:http://www.zxyjhhl.hk/thesisDetails#10.55111/j.issn2709-1961.20250605005
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Summary:Objective To investigate the awareness, behavioral patterns, and current status of medical care support regarding nutritional needs among patients with active systemic lupus erythematosus (SLE). Methods A descriptive study was conducted, involving semi-structured interviews with 10 patients with active SLE and 6 healthcare providers. The key themes were extracted using thematic analysis. Results After organizing the interview data, three major themes were identified: the interactive influence of disease and nutrition, the lack of awareness and knowledge among patients and healthcare providers, and psychological and sociocultural factors. Conclusion This study reveals core issues in nutritional management for patients with active SLE, such as insufficient linkage between symptoms and diet, and the lack of doctor-patient awareness. It is recommended that clinical settings develop symptom-specific nutritional guidance tools and incorporate nutritional screening into routine assessment procedures. The aim is to establish a standardized path of assessment, education, and follow-up through multidisciplinary collaboration, and explore digital intervention strategies to enhance patient compliance. (目的 探讨系统性红斑狼疮活动期患者营养需求认知、行为模式及医护支持现状。方法 采用描述性质性研究, 对10例系统性红斑狼活动期患者和6名医护人员进行半结构化访谈, 运用主题分析法提炼关键主题。结果 经过对访谈资料的整理, 提炼出疾病与营养的交互影响、患者与医护人员的认知及知识缺乏和心理与社会文化因素三大主题。结论 本研究揭示系统性红斑狼疮活动期患者营养管理存在“症状-饮食”联动不足、医患认知缺乏等核心问题。建议临床中开发症状特异性营养指导工具, 将营养筛查纳入常规评估流程。以期通过多学科协作, 建立评估-教育-随访标准化路径, 同时探索数字化干预方案, 从而提升患者依从性。)
ISSN:2709-1961

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