Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.
<h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinio...
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| Language: | English |
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Public Library of Science (PLoS)
2012-01-01
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| Series: | PLoS ONE |
| Online Access: | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0053201&type=printable |
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| author | Stefan Essig Roderick Skinner Nicolas X von der Weid Claudia E Kuehni Gisela Michel |
| author_facet | Stefan Essig Roderick Skinner Nicolas X von der Weid Claudia E Kuehni Gisela Michel |
| author_sort | Stefan Essig |
| collection | DOAJ |
| description | <h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinions on different models of LTFU.<h4>Methodology/principal findings</h4>We asked 179 pediatric oncology institutions in 20 European countries to complete an online survey on LTFU available at their institution. Of 110 respondents (62% response), 66% reported having LTFU for pediatric survivors, 38% for adult survivors of childhood cancer. Availability varied widely across European regions, from 9% of institutions in Northern Europe reporting LTFU for adult survivors to 83% of institution on the British Isles reporting LTFU for pediatric survivors. Pediatric and adult LTFU were usually located in pediatric hospitals and run by pediatric oncologists. Content of follow-up included screening for adverse outcomes and health education. Important problems included lack of time, personnel and funding. Most institutions without LTFU reported that they would like to offer a program (86%).<h4>Conclusion/significance</h4>Despite general agreement on the need of follow-up care, there is still a lack of well-organized LTFU for survivors of childhood cancer across Europe. |
| format | Article |
| id | doaj-art-93aa9726d5ca4d40a4e29e9f51357cbe |
| institution | OA Journals |
| issn | 1932-6203 |
| language | English |
| publishDate | 2012-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj-art-93aa9726d5ca4d40a4e29e9f51357cbe2025-08-20T02:32:14ZengPublic Library of Science (PLoS)PLoS ONE1932-62032012-01-01712e5320110.1371/journal.pone.0053201Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey.Stefan EssigRoderick SkinnerNicolas X von der WeidClaudia E KuehniGisela Michel<h4>Background</h4>For many childhood cancer survivors follow-up care is important long after treatment completion. We aimed to describe the availability and characteristics of long-term follow-up programs (LTFU) across Europe, their content and aims, their problems, and to assess opinions on different models of LTFU.<h4>Methodology/principal findings</h4>We asked 179 pediatric oncology institutions in 20 European countries to complete an online survey on LTFU available at their institution. Of 110 respondents (62% response), 66% reported having LTFU for pediatric survivors, 38% for adult survivors of childhood cancer. Availability varied widely across European regions, from 9% of institutions in Northern Europe reporting LTFU for adult survivors to 83% of institution on the British Isles reporting LTFU for pediatric survivors. Pediatric and adult LTFU were usually located in pediatric hospitals and run by pediatric oncologists. Content of follow-up included screening for adverse outcomes and health education. Important problems included lack of time, personnel and funding. Most institutions without LTFU reported that they would like to offer a program (86%).<h4>Conclusion/significance</h4>Despite general agreement on the need of follow-up care, there is still a lack of well-organized LTFU for survivors of childhood cancer across Europe.https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0053201&type=printable |
| spellingShingle | Stefan Essig Roderick Skinner Nicolas X von der Weid Claudia E Kuehni Gisela Michel Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. PLoS ONE |
| title | Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. |
| title_full | Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. |
| title_fullStr | Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. |
| title_full_unstemmed | Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. |
| title_short | Follow-up programs for childhood cancer survivors in Europe: a questionnaire survey. |
| title_sort | follow up programs for childhood cancer survivors in europe a questionnaire survey |
| url | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0053201&type=printable |
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