Care to child with muscular dystrophies dependent of home technology: mothers´ conception
It was aimed to understand the mother's conception on care to child with muscular dystrophies dependent on technology. Descriptive study with qualitative approach carried out in a children's hospital of the tertiary net in Fortaleza-Ceará, Brazil, as well as in homes of children with mu...
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| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Universidade Federal do Ceará
2013-02-01
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| Series: | Rev Rene |
| Subjects: | |
| Online Access: | https://periodicos.ufc.br/rene/article/view/3332 |
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| _version_ | 1849229820401025024 |
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| author | Fabíola Sousa de Oliveira Viviane Mamede Vasconcelos Mariana Cavalcante Martins Ingrid Martins Leite Lúcio |
| author_facet | Fabíola Sousa de Oliveira Viviane Mamede Vasconcelos Mariana Cavalcante Martins Ingrid Martins Leite Lúcio |
| author_sort | Fabíola Sousa de Oliveira |
| collection | DOAJ |
| description |
It was aimed to understand the mother's conception on care to child with muscular dystrophies dependent on technology. Descriptive study with qualitative approach carried out in a children's hospital of the tertiary net in Fortaleza-Ceará, Brazil, as well as in homes of children with muscular dystrophy assisted by the Home Ventilation Assistance Program. The informants were mothers of children with dystrophy aged between zero and four years old, admitted in the Special Patients Unit and assisted by this program. We performed semi-structured interviews and after analysis, the following categories emerged: Care of children with muscular dystrophy and Feelings and expectations of mothers of children with muscular dystrophy. We identified that some mothers consider the child's daily life within the normal patterns, and others report difficulties, creating anxiety and fear of death. Thus, we verify the importance of nurses in the training of these mothers for directed care enabling to overcome stressful moments.
DOI:https://doi.org/10.15253/2175-6783.20130001000024
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| format | Article |
| id | doaj-art-939a76d118074609aaeaa47c46234e12 |
| institution | Kabale University |
| issn | 1517-3852 2175-6783 |
| language | English |
| publishDate | 2013-02-01 |
| publisher | Universidade Federal do Ceará |
| record_format | Article |
| series | Rev Rene |
| spelling | doaj-art-939a76d118074609aaeaa47c46234e122025-08-21T13:29:31ZengUniversidade Federal do CearáRev Rene1517-38522175-67832013-02-01141Care to child with muscular dystrophies dependent of home technology: mothers´ conceptionFabíola Sousa de OliveiraViviane Mamede VasconcelosMariana Cavalcante MartinsIngrid Martins Leite Lúcio It was aimed to understand the mother's conception on care to child with muscular dystrophies dependent on technology. Descriptive study with qualitative approach carried out in a children's hospital of the tertiary net in Fortaleza-Ceará, Brazil, as well as in homes of children with muscular dystrophy assisted by the Home Ventilation Assistance Program. The informants were mothers of children with dystrophy aged between zero and four years old, admitted in the Special Patients Unit and assisted by this program. We performed semi-structured interviews and after analysis, the following categories emerged: Care of children with muscular dystrophy and Feelings and expectations of mothers of children with muscular dystrophy. We identified that some mothers consider the child's daily life within the normal patterns, and others report difficulties, creating anxiety and fear of death. Thus, we verify the importance of nurses in the training of these mothers for directed care enabling to overcome stressful moments. DOI:https://doi.org/10.15253/2175-6783.20130001000024 https://periodicos.ufc.br/rene/article/view/3332Muscular DystrophiesMothersChildren. |
| spellingShingle | Fabíola Sousa de Oliveira Viviane Mamede Vasconcelos Mariana Cavalcante Martins Ingrid Martins Leite Lúcio Care to child with muscular dystrophies dependent of home technology: mothers´ conception Rev Rene Muscular Dystrophies Mothers Children. |
| title | Care to child with muscular dystrophies dependent of home technology: mothers´ conception |
| title_full | Care to child with muscular dystrophies dependent of home technology: mothers´ conception |
| title_fullStr | Care to child with muscular dystrophies dependent of home technology: mothers´ conception |
| title_full_unstemmed | Care to child with muscular dystrophies dependent of home technology: mothers´ conception |
| title_short | Care to child with muscular dystrophies dependent of home technology: mothers´ conception |
| title_sort | care to child with muscular dystrophies dependent of home technology mothers´ conception |
| topic | Muscular Dystrophies Mothers Children. |
| url | https://periodicos.ufc.br/rene/article/view/3332 |
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