The use of informal care by people with vision impairment.
<h4>Purpose</h4>To estimate and characterize the use of informal care by people with vision impairment in Portugal.<h4>Methods</h4>A total of 546 visually impaired individuals were recruited from Portuguese hospitals. Clinical information was obtained from medical records, so...
Saved in:
| _version_ | 1850076340678557696 |
|---|---|
| author | Ana Patricia Marques Antonio Filipe Macedo Laura Hernandez-Moreno Pedro Lima Ramos Thomas Butt Gary Rubin Rui Santana Portuguese visual impairment study group (PORVIS-group) |
| author_facet | Ana Patricia Marques Antonio Filipe Macedo Laura Hernandez-Moreno Pedro Lima Ramos Thomas Butt Gary Rubin Rui Santana Portuguese visual impairment study group (PORVIS-group) |
| author_sort | Ana Patricia Marques |
| collection | DOAJ |
| description | <h4>Purpose</h4>To estimate and characterize the use of informal care by people with vision impairment in Portugal.<h4>Methods</h4>A total of 546 visually impaired individuals were recruited from Portuguese hospitals. Clinical information was obtained from medical records, socio-demographic details and informal care use were collected during face-to-face interviews. In addition, participants responded to a functional vision questionnaire (activity inventory) to assess their visual ability. Logistic regression was used to determine independent factors associated with informal care use and linear regression was used to determine independent predictors of intensity of informal care use.<h4>Results</h4>Informal care was reported by 39.6% of the participants. The probability of reporting informal care was higher in non-married, those with comorbidities, with lower visual ability and worse visual acuity. The median number of caregivers' hours per year was 390 (mean = 470; 95%CI = 488-407), which represent a median opportunity cost of €2,586. Visual ability was the only independent predictor of number of hours of informal care received.<h4>Conclusions</h4>Informal care was frequently used by individuals with impaired vision. Improving visual ability of people with impaired vision when performing valued activities may reduce the burden of visual loss at personal and societal level. This could be achieved with person-centred visual rehabilitation. |
| format | Article |
| id | doaj-art-918ce9afc9344456a8c60b29f2e726fe |
| institution | DOAJ |
| issn | 1932-6203 |
| language | English |
| publishDate | 2018-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj-art-918ce9afc9344456a8c60b29f2e726fe2025-08-20T02:46:04ZengPublic Library of Science (PLoS)PLoS ONE1932-62032018-01-01136e019863110.1371/journal.pone.0198631The use of informal care by people with vision impairment.Ana Patricia MarquesAntonio Filipe MacedoLaura Hernandez-MorenoPedro Lima RamosThomas ButtGary RubinRui SantanaPortuguese visual impairment study group (PORVIS-group)<h4>Purpose</h4>To estimate and characterize the use of informal care by people with vision impairment in Portugal.<h4>Methods</h4>A total of 546 visually impaired individuals were recruited from Portuguese hospitals. Clinical information was obtained from medical records, socio-demographic details and informal care use were collected during face-to-face interviews. In addition, participants responded to a functional vision questionnaire (activity inventory) to assess their visual ability. Logistic regression was used to determine independent factors associated with informal care use and linear regression was used to determine independent predictors of intensity of informal care use.<h4>Results</h4>Informal care was reported by 39.6% of the participants. The probability of reporting informal care was higher in non-married, those with comorbidities, with lower visual ability and worse visual acuity. The median number of caregivers' hours per year was 390 (mean = 470; 95%CI = 488-407), which represent a median opportunity cost of €2,586. Visual ability was the only independent predictor of number of hours of informal care received.<h4>Conclusions</h4>Informal care was frequently used by individuals with impaired vision. Improving visual ability of people with impaired vision when performing valued activities may reduce the burden of visual loss at personal and societal level. This could be achieved with person-centred visual rehabilitation.https://storage.googleapis.com/plos-corpus-prod/10.1371/journal.pone.0198631/1/pone.0198631.pdf?X-Goog-Algorithm=GOOG4-RSA-SHA256&X-Goog-Credential=wombat-sa%40plos-prod.iam.gserviceaccount.com%2F20210222%2Fauto%2Fstorage%2Fgoog4_request&X-Goog-Date=20210222T125205Z&X-Goog-Expires=3600&X-Goog-SignedHeaders=host&X-Goog-Signature=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 |
| spellingShingle | Ana Patricia Marques Antonio Filipe Macedo Laura Hernandez-Moreno Pedro Lima Ramos Thomas Butt Gary Rubin Rui Santana Portuguese visual impairment study group (PORVIS-group) The use of informal care by people with vision impairment. PLoS ONE |
| title | The use of informal care by people with vision impairment. |
| title_full | The use of informal care by people with vision impairment. |
| title_fullStr | The use of informal care by people with vision impairment. |
| title_full_unstemmed | The use of informal care by people with vision impairment. |
| title_short | The use of informal care by people with vision impairment. |
| title_sort | use of informal care by people with vision impairment |
| url | https://storage.googleapis.com/plos-corpus-prod/10.1371/journal.pone.0198631/1/pone.0198631.pdf?X-Goog-Algorithm=GOOG4-RSA-SHA256&X-Goog-Credential=wombat-sa%40plos-prod.iam.gserviceaccount.com%2F20210222%2Fauto%2Fstorage%2Fgoog4_request&X-Goog-Date=20210222T125205Z&X-Goog-Expires=3600&X-Goog-SignedHeaders=host&X-Goog-Signature=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 |
| work_keys_str_mv | AT anapatriciamarques theuseofinformalcarebypeoplewithvisionimpairment AT antoniofilipemacedo theuseofinformalcarebypeoplewithvisionimpairment AT laurahernandezmoreno theuseofinformalcarebypeoplewithvisionimpairment AT pedrolimaramos theuseofinformalcarebypeoplewithvisionimpairment AT thomasbutt theuseofinformalcarebypeoplewithvisionimpairment AT garyrubin theuseofinformalcarebypeoplewithvisionimpairment AT ruisantana theuseofinformalcarebypeoplewithvisionimpairment AT portuguesevisualimpairmentstudygroupporvisgroup theuseofinformalcarebypeoplewithvisionimpairment AT anapatriciamarques useofinformalcarebypeoplewithvisionimpairment AT antoniofilipemacedo useofinformalcarebypeoplewithvisionimpairment AT laurahernandezmoreno useofinformalcarebypeoplewithvisionimpairment AT pedrolimaramos useofinformalcarebypeoplewithvisionimpairment AT thomasbutt useofinformalcarebypeoplewithvisionimpairment AT garyrubin useofinformalcarebypeoplewithvisionimpairment AT ruisantana useofinformalcarebypeoplewithvisionimpairment AT portuguesevisualimpairmentstudygroupporvisgroup useofinformalcarebypeoplewithvisionimpairment |