Living with a person with young onset dementia – spousal experience
Purpose Being of working age while at the same time needing to help a partner with young onset dementia has specific consequences for spouses. Research to date has been sparse concerning this particular group of spouses. The aim of the study was to explore spouses’ everyday experiences when living w...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/17482631.2024.2330233 |
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| _version_ | 1850260488965849088 |
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| author | Tania Håkansson Hilda Svensson Staffan Karlsson |
| author_facet | Tania Håkansson Hilda Svensson Staffan Karlsson |
| author_sort | Tania Håkansson |
| collection | DOAJ |
| description | Purpose Being of working age while at the same time needing to help a partner with young onset dementia has specific consequences for spouses. Research to date has been sparse concerning this particular group of spouses. The aim of the study was to explore spouses’ everyday experiences when living with a person with young onset dementia. Method The study had a descriptive qualitative design with semi-structured interviews with nine spouses. The interviews were analysed using content analysis. Result The interviewed spouses experienced emotions that varied from feelings of loneliness, frustration, and worry to peace of mind. They said that they used coping strategies, which included adopting a positive mindset, adapting to inabilities, adopting an avoidant approach, and finding ways to recharge. Spouses also felt that they could use more support, both formal and informal. Conclusion The spouse of a person with young onset dementia has a range of emotional experiences and has resourceful ways of handling everyday life. Various types of support are offered to spouses, however, they seemed to desire more from health care services. |
| format | Article |
| id | doaj-art-90e4a34abe9d4b6aaea3395700cdace5 |
| institution | OA Journals |
| issn | 1748-2623 1748-2631 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj-art-90e4a34abe9d4b6aaea3395700cdace52025-08-20T01:55:38ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312024-12-0119110.1080/17482631.2024.23302332330233Living with a person with young onset dementia – spousal experienceTania Håkansson0Hilda Svensson1Staffan Karlsson2Halmstad UniversityHalmstad UniversityHalmstad UniversityPurpose Being of working age while at the same time needing to help a partner with young onset dementia has specific consequences for spouses. Research to date has been sparse concerning this particular group of spouses. The aim of the study was to explore spouses’ everyday experiences when living with a person with young onset dementia. Method The study had a descriptive qualitative design with semi-structured interviews with nine spouses. The interviews were analysed using content analysis. Result The interviewed spouses experienced emotions that varied from feelings of loneliness, frustration, and worry to peace of mind. They said that they used coping strategies, which included adopting a positive mindset, adapting to inabilities, adopting an avoidant approach, and finding ways to recharge. Spouses also felt that they could use more support, both formal and informal. Conclusion The spouse of a person with young onset dementia has a range of emotional experiences and has resourceful ways of handling everyday life. Various types of support are offered to spouses, however, they seemed to desire more from health care services.http://dx.doi.org/10.1080/17482631.2024.2330233young onset dementiaeveryday lifespouseexperienceemotional impact |
| spellingShingle | Tania Håkansson Hilda Svensson Staffan Karlsson Living with a person with young onset dementia – spousal experience International Journal of Qualitative Studies on Health & Well-Being young onset dementia everyday life spouse experience emotional impact |
| title | Living with a person with young onset dementia – spousal experience |
| title_full | Living with a person with young onset dementia – spousal experience |
| title_fullStr | Living with a person with young onset dementia – spousal experience |
| title_full_unstemmed | Living with a person with young onset dementia – spousal experience |
| title_short | Living with a person with young onset dementia – spousal experience |
| title_sort | living with a person with young onset dementia spousal experience |
| topic | young onset dementia everyday life spouse experience emotional impact |
| url | http://dx.doi.org/10.1080/17482631.2024.2330233 |
| work_keys_str_mv | AT taniahakansson livingwithapersonwithyoungonsetdementiaspousalexperience AT hildasvensson livingwithapersonwithyoungonsetdementiaspousalexperience AT staffankarlsson livingwithapersonwithyoungonsetdementiaspousalexperience |